• Title/Summary/Keyword: data registry

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Estimation of Cancer Cases Using Capture-Recapture Method in Northwest Iran

  • Ghojazadeh, Morteza;Mohammadi, Marziye;Azami-Aghdash, Saber;Sadighi, Alireza;Piri, Reza;Naghavi-Behzad, Mohammad
    • Asian Pacific Journal of Cancer Prevention
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    • v.14 no.5
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    • pp.3237-3241
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    • 2013
  • Background: Under-ascertainment and over-ascertainment are common phenomena in surveillance and registry systems of health-related events. Capture-recapture is one of the methods which is applied to determine the sensitivity of surveillance or registry systems to recognize cancer cases. This study aimed to estimate the number of cancers using data available both in the Cancer Registry Center of Northwestern Iran and in the Population-based Cancer Registry Center of Iran. Material and Methods: The studied population consisted of all cancerous cases in the northwest of Iran from 2008 to 2010. All data were extracted from two resources and entered into Microsoft Excel software. After removing common and repeat cases the data were statistically analyzed using a capture-recapture studies' specific software "CARE 1.4". Estimations were calculated by Chapman and Petersen methods with the approximate confidence interval of 95%. Results: From 2008 to 2010, the number of all cancer cases was estimated to be 21,652 (CI 95%: 19,863-22,101). Sensitivity rate of all cancer cases was 83.9% and that of Population-based Cancer Registry Center of Iran was 52%. It was 93.1% considering both resources. Conclusion: Using two resources and the capture-recapture method rather than a single resource may be a more reliable method to estimate the number of cancer cases.

A Path Prediction-Based Sensor Registry System for Stable Use of Sensor Information (센서 정보의 안정적인 이용을 위한 경로 예측 기반 센서 레지스트리 시스템)

  • Jeong, Dongwon;Doo, Migyeong
    • Journal of KIISE
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    • v.42 no.2
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    • pp.255-263
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    • 2015
  • The sensor registry system has been developed for instant use and seamless interpretation of sensor data in a heterogeneous sensor network environment. However, the existing sensor registry system cannot provide information for interpretation of the sensor data in situations in which the network is unstable. This limitation causes several problems such as sensor data loss, inaccuracy of processed results, and low service quality. A method to resolve such problems in the aspect of software is presented herein. In other words, an extended sensor registry system is proposed to enable the stable use of sensor information, even under conditions of unstable network connection, by providing sensor information with a mobile device in advance through the user path prediction. The results of experiments and evaluation are also presented. The extended sensor registry system proposed in this paper enhances the stable usability of sensor information as well as improves the quality of sensor-based services.

Radiotherapy and Concurrent Chemo-Radiotherapy in Locally Advanced Hypopharyngeal Cancers - A Hospital Registry Based Analysis

  • Sharma, Jagannath Dev;Krishnatreya, Manigreeva;Das, Ashok Kumar;Bhattacharyya, Mouchumee;Hazarika, Munlima;Kataki, Amal Chandra;Baishya, Nizara;Nandy, Pintu
    • Asian Pacific Journal of Cancer Prevention
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    • v.16 no.11
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    • pp.4723-4726
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    • 2015
  • Background: The survival of patients with hypopharyngeal cancer is low amongst head and neck cancer cases. The incidence rates of hypopharyngeal cancers in our population are amongst the highest in the world and there are limited data available on the literature on varied responses to first course of treatment with radiotherapy (RT) and concurrent chemo-radiotherapy (CRT) in our population. Materials and Methods: Clinical characteristics and initial responses to treatment in patients who had received radiotherapy and chemo-radiotherapy in a regional cancer center from January 2010 to December 2013 were evaluated. The data were obtained from the hospital cancer registry, and analysis was carried using descriptive statistics. Pearson's chi-square was used to test for differences in the variables and p<0.05 was considered statistically significant. Results: A total of 554 patients were included in the analysis, 411 (74.2%) receiving RT and 143 (25.8%) being given CRT. There was significantly lower number of patients above 70 years with a higher proportion of patients below 50 years who had received CRT (p<0.05). Some 79.3% and 84.6% of patients in the RT and CRT groups respectively presented with a favorable performance status, and in the RT group 240 (58.4%) showed complete response (CR), and in the CRT group 103 (72.0%) showed CR at the first follow-up (p<0.05). Conclusions: Concurrent chemo-radiotherapy gives better short term response to treatment in locally advanced hypopharyngeal cancers.

A Design and Implementation of Data Registry for sharing data elements of Intelligent Building Systems (지능형 빌딩 시스템의 데이터 요소 공유를 위한 데이터 레지스트리의 설계와 구현)

  • Kim, Chang-Yong;Kim, Sheung-Kown
    • Proceedings of the Korean Operations and Management Science Society Conference
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    • 2000.04a
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    • pp.562-565
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    • 2000
  • A data registry is a physical place to keep characteristics of classes of objects exist in the real world when they are chosen to record as data. It provides a centralized directory to describe the meaning, representation, and identification of data elements and their values. It assists to prevent redundancy and to preserve common understanding about the data described in a metadata set. In this paper, we investigate and classify various components of IBS(Intelligent Building Systems), specially HVAC in Building Automation Systems. We present IBSDR(Intelligent Building Systems Data Registry) model that specifies not only the detailed information on data elements but also the process of documenting data in IBS. It functions as the medium to create the data sharing environment to maintain exact meaning of data for every data elements so that database management designers or related users can create and exchange their DB without major modification. It also serves as a clearinghouse for information about IBS data. So all users can freely retrieve from and register data elements to IBSDR based on ISO/IEC 11179 through World Wide Web.

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Comparison between Overall, Cause-specific, and Relative Survival Rates Based on Data from a Population-based Cancer Registry

  • Utada, Mai;Ohno, Yuko;Shimizu, Sachiko;Hori, Megumi;Soda, Midori
    • Asian Pacific Journal of Cancer Prevention
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    • v.13 no.11
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    • pp.5681-5685
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    • 2012
  • Three kinds of survival rates are generally used depending on the purpose of the investigation: overall, cause-specific, and relative. The differences among these 3 survival rates are derived from their respective formulas; however, reports based on actual cancer registry data are few because of incomplete information and short follow-up duration recorded on cancer registration. The aim of this study was to numerically and visually compare these 3 survival rates on the basis of data from the Nagasaki Prefecture Cancer Registry. Subjects were patients diagnosed with cancer and registered in the registry between 1999 and 2003. We calculated the proportion of cause of death and 5-year survival rates. For lung, liver, or advanced stage cancers, the proportions of cancer-related death were high and the differences in survival rates were small. For prostate or early stage cancers, the proportions of death from other causes were high and the differences in survival rates were large. We concluded that the differences among the 3 survival rates increased when the proportion of death from other causes increased.

Effectiveness of Cervical Cancer Screening Based on a Mathematical Screening Model using data from the Hiroshima Prefecture Cancer Registry

  • Ito, Katsura;Tsunematsu, Miwako;Satoh, Kenichi;Kakehashi, Masayuki;Nagata, Yasushi
    • Asian Pacific Journal of Cancer Prevention
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    • v.14 no.8
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    • pp.4897-4902
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    • 2013
  • Here we assessed the effectiveness of cervical cancer screening using data from the Hiroshima Prefecture Cancer Registry regarding patient age at the start of screening and differences in screening intervals. A screening model was created to calculate the health status in relation to prognosis following cervical cancer screening and its influence on life expectancy. Epidemiological data on the mortality rate of cervical cancer by age groups and mortality rates from the Hiroshima Prefecture Cancer Registry were used for the model projections. Our results showed that life expectancy when screening rate was 100% compared with 0% was extended by approximately 1 month. Furthermore, when the incidence of cervical cancer was 0% compared with the screening rate was 100%, life expectancy was extended by a maximum of 3 months. Moreover, among individuals affected by cervical c ancer, a difference of 13 years in life expectancy was calculated between screened and unscreened groups.

Development of Drug Exposure Registries on Pregnant Women (임부의 약물 노출 관련 등록지침 개발 연구)

  • Kim, Soo-Hee;Noh, Hye-Jin;Ji, Eun-Hee;Yoon, Jeong-Hyun;Kim, Kyung-Im;Shin, Wan-Gyoon;Oh, Jung-Mi
    • Korean Journal of Clinical Pharmacy
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    • v.20 no.2
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    • pp.114-119
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    • 2010
  • Objectives: We developed a registry guidance to provide a standard for data collection, analysis and methodical management of information on the influence of drug exposure on pregnant women and fetus. Methods: We surveyed guidances and regulations of clinical trials and the pharmaceutical affairs law, compared them with Pregnancy Exposure Registry of other countries and in addition, investigated related references. We found the flaws of the present registry and supplemented it based on better results from other countries. Results: We developed a concrete and detailed report that included pregnancy drug exposure cases necessary for close monitoring, types and characteristics of data on pregnancy drug exposure, the requirements of registry data, and essential items needed to be researched. Conclusions: Information on pregnancy drug exposure in Korea can be effectively collected by using this report which provides a comprehensive assess to drug's influence on pregnant women and fetus, and in addition, accurate information about safety and effectiveness of drug use in pregnant women and fetus can be obtained by sharing data globally and managing it synthetically and systematically.

Application of Health Care Big data and Necessity of Traditional Korean Medicine Data Registry (보건의료 빅데이터를 활용한 연구방법 및 한의학 레지스트리의 필요성)

  • Han, Kyungsun;Ha, In-Hyuk;Lee, Jun-Hwan
    • Journal of Korean Medicine for Obesity Research
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    • v.17 no.1
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    • pp.46-53
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    • 2017
  • Health care big data is thought to be a promising field of interest for disease prediction, providing the basis of medical treatment and comparing effectiveness of different treatments. Korean government has begun an effort on releasing public health big data to improve the quality and safety of medical care and to provide information to health care professionals. By studying population based big data, interesting outcomes are expected in many aspects. To initiate research using health care big data, it is crucial to understand the characteristics of the data. In this review, we analyzed cases from inside and outside the country using clinical data registry. Based on successful cases, we suggest research method for evidence-based Korean medicine. This will provide better understanding about health care big data and necessity of Korean medicine data registry network.

A Study on Data Migration using XMDR-DAI (XMDR-DAI를 이용한 데이터 이주 기법에 관한 연구)

  • Moon, Seok-Jae;Jung, Gye-Dong;Choi, Young-Keun
    • Journal of the Korea Institute of Information and Communication Engineering
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    • v.13 no.12
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    • pp.2707-2718
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    • 2009
  • Enterprises saved and controled data using individual and various database which were occurred on business. The saved data that were existed in the database were approached by business processing for specified achievement of service's aims and were occurred frequently data migration. This research propose the data migration method using XMDR-DAI(eXtended Meta-Data Registry-Data and Integration) that were occurred by approaching and integration in the process of business processing based on sql query.

A Synchronizing Agent in Distributed Database using XMDR (XMDR을 이용한 분산 DB의 동기화 에이전트)

  • Kook Youn-Gyou;Jung Gye-Dong;Choi Yung-Geun
    • The KIPS Transactions:PartA
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    • v.12A no.1 s.91
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    • pp.31-40
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    • 2005
  • In this paper, we propose XMDR(XML Metadata Registry) to guarantee the interoperability of data in distributed database, and describe a data synchronizing agent system using it. The proposal of XMDR is to solve the data heterogeneity problem in the sharing and exchanging data. Data heterogeneity problem is generated by different definition or mismatching expression of the same information. Therefore, we define XMDR with XML document by analyzing data elements based on MDR specification. The proposed synchronizing agent system using XMDR not only solves data heterogeneity for data interoperability in synchronizing data but also provides more efficient the agent system by offering errors of low frequency in the number of systems and requests of synchronizing data.