• 제목/요약/키워드: Pediatric patient′s Parent

검색결과 18건 처리시간 0.03초

Validation of Pediatric Functional Assessment of Cancer Therapy Questionnaire (Version 2.0) in Brain Tumor Survivor Aged 13 Years and Older (Parent Form) (PedsFACT-BrS Parent of Adolescent)

  • Yoo, Hee-Jung;Kim, Dong-Seok;Lai, Jin-Shei;Cella, David;Shin, Hee-Young;Ra, Young-Shin
    • Journal of Korean Neurosurgical Society
    • /
    • 제49권3호
    • /
    • pp.147-152
    • /
    • 2011
  • Objective : The aim of this study was to evaluate the reliability and validity of the Pediatric Functional Assessment of Cancer Therapy Questionnaire Brain Tumor Survivor (version 2.0) Aged 13 years and older (Parent Form) (pedsFACT-BrS parent of adolescent). Methods : The pedsFACT-BrS parent of adolescent was translated and cross-culturally adapted into Korean, following standard Functional Assessment of Chronic Illness Therapy (FACIT) methodology. The psychometric properties of the pedsFACT-BrS parent of adolescent were evaluated in 170 brain tumor patient's mothers (mean age=43.38 years). Pretesting was performed in 30 mothers, and the results indicated good symptom coverage and overall comprehensibility. The participants also completed the Child Health Questionnaire Parent Form 50 (CHQ-PF-50), Neuroticism in Eysenck Personality Questionnaire, and Karnofsky score. Results : In validating the pedsFACT-BrS parent of adolescent, we found high internal consistency, with Cronbach's ${\alpha}$ coefficients ranging from 0.76 to 0.94. The assessment of test-retest reliability using intraclass correlation coefficient revealed satisfactory values with ICCs ranging from 0.84 to 0.93. The pedsFACT-BrS for parent of adolescent also demonstrated good convergent and divergent validities when correlated with the Child Health Questionnaire Parent Form 50 (CHQ-PF-50) and the Neuroticism in Eysenck Personality Questionnaire. The pedsFACT-BrS parent of adolescent showed good clinical validity, and effectively differentiated between clinically distinct patient groups according to the type of treatment, tumor location, shunt, and Karnofsky score of parent proxy report. Conclusion : We confirmed that this reliable and valid instrument can be used to properly evaluate the quality of life of Korean adolescent brain tumor patients by their parents' proxy report.

Role of colonoscopy in the diagnosis and treatment of pediatric lower gastrointestinal disorders

  • Park, Jae-Hong
    • Clinical and Experimental Pediatrics
    • /
    • 제53권9호
    • /
    • pp.824-829
    • /
    • 2010
  • The safety and effectiveness of colonoscopy in the investigation of lower gastrointestinal tract pathology in children has been established for more than 2 decades in Korea. The skill and experience have since advanced to the point that both diagnostic and therapeutic colonoscopy are now routinely performed by most pediatric gastroenterologists. Pediatric colonoscopy differs significantly from its adult parallels in nearly every aspect including patient and parent management and preparation, selection criteria for sedation and general anesthetic, bowel preparation, expected diagnoses, instrument selection, imperative for terminal ileal intubation, and requirement for biopsies from macroscopically normal mucosa. Investigation of inflammatory bowel disease, whether for diagnosis or follow-up evaluation, and suspected colonic polyps are the most common indication for pediatric colonoscopy. The child who presents with signs and symptoms of lower gastrointestinal disorder should undergo colonoscopy with biopsy to make the diagnosis, as well as to help determine the appropriate therapy. This review introduces practical information on pediatric colonoscopy, the author's experiences, and the role of colonoscopic examination in the diagnosis and treatment of pediatric lower gastrointestinal disorders.

Role for Social Media in Pediatric Liver Disease: Caregiver and Provider Perspectives

  • Mogul, Douglas B.;Bowring, Mary Grace;Lau, Jennifer;Babin, Erin;Bridges, John F.P.;Harpavat, Sanjiv;Miloh, Tamir
    • Pediatric Gastroenterology, Hepatology & Nutrition
    • /
    • 제23권6호
    • /
    • pp.548-557
    • /
    • 2020
  • Purpose: To better understand the benefits and harms of engagement with online pediatric liver disease communities within social media. Methods: We conducted a survey of caregivers of children with liver disease participating in online pediatric liver disease communities within social media, as well as a survey of healthcare providers (e.g., physicians, surgeons, nurse coordinators) from this field to better understand the perceived benefits and harms of participation. Results: Among 138 caregivers of children with liver disease that completed the survey, 97.8% agreed social media was a good place to learn about patient experiences and 88% agreed it was a good source of general information. Among caregivers, 84.8% agreed social media helps them to better advocate for their child. While 18% agreed that the information over social media was equal to the information from their healthcare team and 19% neither agreed/disagreed, only 3% indicated they would use this information to change care without telling their provider; in contrast, among 217 healthcare providers, 55% believed social media may lead caregivers to change management without telling their team. Conclusion: Engagement with online disease-specific communities in social media yields several benefits for caregivers and, in contrast to healthcare providers' concerns, participation is unlikely to lead to problems including caregivers changing the treatment plan without first discussing these plans with their team. Openness between caregivers and medical teams about the role for social media can help to improve trust and maximize the potential benefits of engagement with these groups.

수술 중 정보제공을 통한 환자 부모 및 가족의 만족도 증진 (Improvement of Parent and Family Satisfaction by Offering Informational Interventions throughout Surgery)

  • 홍희정;이명애
    • 한국의료질향상학회지
    • /
    • 제7권1호
    • /
    • pp.90-104
    • /
    • 2000
  • Background : This study was designed to assess the effects of information on the satisfaction of parents and families whose children underwent elective surgery in the Pediatric Operating Room. Methods : We measured parent and family satisfaction with information given before and after offering informational interventions. The data were collected from 510 patients parents and families whose children had undergone elective surgery in the Pediatric Operating Room of Seoul National University Hospital in Seoul. South Korea. The data collection ran from May 3. 1999 to May 30. 1999 and from September 6, 1999 to September 30, 1999. The research instrument consisted of four categories (pre-operative period, intra-operative period, post-operative period, others) and 24 questionnaires. SPSS was used to analyze the data. Results : The major findings of this study are summarized as follows: 1. Before surgery, the satisfaction with the following was increased: the explanations of the necessary preparation for the surgery (6.0%), the time the patient would enter the operating room (20.6%), the operative procedure (2.0%), and the use of the waiting room (10.0%). 2. During the operation, the satisfaction with the situation board (15.1%), public announcements in the waiting room (8.4%), and the answering of the families questions (12.2%) was increased. however, the satisfaction with the surgeons explanations of the surgical outcomes decreased by 8.3%, even though the frequency of these explanations increased by 5%. 3. After surgery, the satisfaction with the following was increased: the explanations of patient's status of recovery(10.3%) the time the patient would be moved from the recovery room (17.6%), how the patient would be transferred to the ward (19.2%), and post-operative care (6.3%). Conclusion : Based upon the above findings, we concluded that pre-, intra-, and post-operative informational interventions were effective in increasing the satisfaction of the parents and families of children undergoing elective surgery.

  • PDF

외래 전신마취를 이용한 치과치료에 대한 만족도 조사 -장애인환자 보호자를 대상으로- (SATISFACTION OF HANDICAPPED PATIENT TREATED UNDER OUTPATIENT ANESTHESIA)

  • 이송은;김태완;김영진
    • 대한장애인치과학회지
    • /
    • 제2권1호
    • /
    • pp.31-38
    • /
    • 2006
  • 90 handicapped patients with dental problem treated under outpatient general anesthesia at one day operation room of kyungpook National University Hospital during 2000-2005 were analyzed. Following are the conclusions. 1. For those 90patients treated under general anesthesia, 62(68.9%)patients had autism or mental retardation. 2. The most difficult work for the preparation of general anesthesia was preoperative examination(53.3%). 3. The parent's satisfaction level after treatment under general anesthesia was high(75.6%). 4. 36(40%) of the patients responded to periodic recall check till now.

  • PDF

Transfer anxiety in parents of children transferred from pediatric intensive care units to general wards in South Korea: a hybrid concept analysis

  • Park, Jisu;Choi, Eun Kyoung
    • Child Health Nursing Research
    • /
    • 제28권2호
    • /
    • pp.154-165
    • /
    • 2022
  • Purpose: This study aimed to analyze the concept of transfer anxiety in parents of children transferred from pediatric intensive care units to general wards. Methods: The hybrid model by Schwarz-Barcott and Kim was used to analyze the characteristics of transfer anxiety in parents of children transferred from pediatric intensive care units to general wards. Results: Transfer anxiety was defined by the following attributes: 1) stress concerning the adaptation process, 2) concern about the child's condition worsening due to the parent's caregiving, and 3) involuntary changes in daily life due to the treatment. Transfer anxiety has the following antecedents: 1) uncertainty; 2) a lack of knowledge about the illness, medical devices, and caregiving; and 3) a lack of social support. It resulted in 1) caregiver burden, 2) a decrease in the capacity for coping with caregiving, 3) delays in the child's physical and psychological recovery, and 4) decreased quality of life. Conclusion: It is necessary to develop an assessment scale that considers the attributes of transfer anxiety in parents of children transferred from pediatric intensive care units to general wards. Furthermore, an effective nursing intervention should be developed to reduce transfer anxiety.

경구진정 실패 후 피부 도포마취제를 사용한 정주진정으로의 전환 치료 (CONVERTING FROM ORAL SEDATION TO INTRAVENOUS SEDATION USING TOPICAL ANESTHETICS ON SKIN AFTER ORAL SEDATION FAILURE)

  • 이은희;김승오;김종수;유승훈
    • 대한소아치과학회지
    • /
    • 제37권2호
    • /
    • pp.213-217
    • /
    • 2010
  • Chloral hydrate와 hydroxizine을 이용한 경구진정법은 적용대상의 나이와 체중에 따라 제한을 받는다. 일반적으로 경구 진정법은 36개월 미만, 체중 15 kg 미만의 환아에서 가장 좋은 진정 효과를 보인다. 그러나 36개월 이상 또는 15 kg 이상의 환아에 대해서는 경구진정법이 적절한 진정 효과를 얻는데 한계를 가지며, 얕은진정으로 인해 시술 중 잦은 움직임을 보여 쉽게 진정에 실패하게 된다. 진정 실패 시 고려 할 수 있는 대안은 추가적인 약제 투여로 인한 재진정의 유도나, 좀 더 깊은진정 법으로의 전환이 있다. 그러나 깊은진정법으로의 전환은 환아의 움직임과 동통의 감소를 위해 흡입마취제 및 마취기계가 요구되어 외래 진료실에서는 쉽게 선택되지 못한다. EMLA cream(Eutectic Mixture of Local Anesthesia)은 피부의 도포마취를 위해 널리 사용되고 있는 약제로 본 증례에서는 이를 이용하여 자극 없이 정주진정 경로를 확보하여 경구진정에서 정주진정으로의 전환에 성공하였다. 만 46개월, 체중 15 kg 남아가 다발성 우식을 주소로 단국대학교 치과대학 병원 소아치과에 내원하였다. 일반적인 행동조절 하에 치료 권유하였으나 보호자의 요구에 의해 경구진정 시도하였으며, 경구진정 실패를 고려하여 복용 전 EMLA cream을 사전 도포하였다. 경구 복용 90분 경과 뒤에도 진정효과를 얻지 못하여 보호자의 동의하에 아산화질소를 이용하여 얕은진정 유도 후, EMLA cream 도포 부위에 정맥로를 확보하였다. 총 시술 시간 2시간 30분으로 특별한 부작용 없이 성공적으로 시술을 완료하였다.

행동조절이 어려운 소아환자의 Deep sedation을 이용한 치과치료 (THE USE OF DEEP SEDATION FOR THE DENTAL MANAGEMENT OF PEDIATRIC PATIENTS WITH DEFINITELY NEGATIVE BEHAVIOR)

  • 엄혜숙;윤형배
    • 대한소아치과학회지
    • /
    • 제25권4호
    • /
    • pp.710-716
    • /
    • 1998
  • It is one of difficulties to control children who show definitely negative behavior in dental clinic. In such a case, the pharmacologic management has been used to provide quality care, minimize the extremes of disruptive behavior, promote a positive psychologic response to treatment and patient welfare and safety. Deep sedation can be defined as a controlled, pharmacologically-induced state of depressed consciousness from which the patient is not easily aroused which may be accompanied by a partial loss of protective reflexes. In this retrospective report, the sedation records of 200 pediatric dental patients of ASA Class I & II who were not successfully treated under conscious sedation were used for analysis. Most frequently used regimen of deep sedation was the co-medication of midazolam(0.3mg/kg), enflurane(1.0-2.0 vol%) and 50-70% $N_2O_2$. The average age and weight of the patients was 4.6 yr (S.D: 2.72) and 18.7kg(S.D: 6.35) respectively. The average operative time was 52 minutes and midazolam (0.1-0.2cc) was additionally administered intranasally to prolong the operative time as needed. The episodes of untoward side effects were reported during and/or after the procedure in 58 patients. Serious adverse reactions such as cyanosis or laryngospasm were even reported in 7 patients but without mortality. Deep sedation is a very effective way of completing the dental treatments for those who failed to respond well to the conscious sedation. This technique has many practical advantages over general anesthesia case but the demands for the rigid monitoring criteria limit its use in general practice setting. The continuous efforts to improve the safety of the medication and the technique are required for the benefits of the patients and parent.

  • PDF

Features of the Filum Terminale in Tethered Cord Syndrome with Focus on Pathology

  • Sim, Jungbo;Shim, Youngbo;Kim, Kyung Hyun;Kim, Seung-Ki;Lee, Ji Yeoun
    • Journal of Korean Neurosurgical Society
    • /
    • 제64권4호
    • /
    • pp.585-591
    • /
    • 2021
  • Objective : Filum transection is one of the most commonly performed operative procedure in pediatric neurosurgery. However, the clinical and pathological features as well as the surgical indication are not well-established. This study aimed to analyze the characteristics of patients who underwent transection of the filum during the last 10 years in a single institute. Methods : A total of 82 patients underwent transection of the filum during the period. As a general rule, we performed the transection in patients who are symptomatic or have abnormality in the urologic or neuromuscular evaluations. There were exceptions as asymptomatic patients who only fit the definition of thickened filum (width greater than 2.0 mm or conus level below L3 vertebral body) were operated by parent's wish or surgeon's preference according to radiological findings, etc. Results : Seventy-six out of 82 patients had fibrous tissue in the pathologic specimen of filum. Interestingly, patients who had glial cells were more correlated with no preoperative syrinx, and no progression of syrinx even for those who did have syrinx initially. Also, larger percentage of symptomatic patients had peripheral nerve twigs than asymptomatic patients. No difference in conus level or thickness of filum was found between patients with or without preoperative syrinx. Significantly more patients with syrinx (56%) were chosen to be operated without any symptom or abnormality in study i.e., solely based on radiological findings than those without syrinx (21%). The surgical outcome for syrinx was favorable, as all but one patient had either improved or static syrinx. The exceptional case had increase in size due to the upward displacement of the proximal end of the cut filum. Conclusion : This study evaluated the pathological, clinical, radiological features of patients who underwent transection of the filum. Interesting correlations between pathological findings and clinical features were found. Excellent outcome regarding preoperative syrinx was also shown.

치과 방문 시 어린이와 부모의 치과 불안도의 상관 관계 (RELATIONSHIP OF DENTAL ANXIETY BETWEEN CHILD AND PARENT DURING DENTAL VISIT)

  • 김성희;김재곤;양연미;권병우;백병주
    • 대한소아치과학회지
    • /
    • 제32권2호
    • /
    • pp.370-376
    • /
    • 2005
  • 어린이에게 있어서 치과 불안의 문제는 오랫동안 환자 행동조절의 문제로서 여겨져 왔으며 이러한 문제로 인해 치료 시의 비협조도, 치료 약속 취소 및 회피 등이 발생할 수 있다. 따라서 치과의사 및 치과 팀에게 가능한 한 빨리 어린이의 치과 불안을 인지하여 적절히 대처할 것이 요구되어진다. 한편, 부모의 치과 불안이 그들의 아이의 치과 불안과 치료 협조도에 영향을 줄 수 있음이 이전의 여러 연구들로부터 언급되어지고 있다. 또한 치과 방문 결정의 주체가 어린이라기보다는 부모임을 고려할 때, 부모와 어린이 사이의 치과 불안도의 관계 규명이 중요하다 하겠다. 본 연구는 전북대학교 병원 소아치과에 내원한 $3{\sim}10$세(평균 연령 5.27세, 표준 편차 2.172세)의 어린이 78명(남아 45명, 여아 33명)과 그들의 부모 78명을 대상으로 하였으며, 치과 치료 전의 어린이의 치과 불안도 평가를 위해 Venham Picture Scale을, 부모의 치과 불안도 평가를 위해 Corah's dental anxiety scale을 사용하여 두 값을 비교하였다. 또한 어린이의 치료 시 협조도, 기질, 성별, 나이, 부모의 교육 정도를 평가하여 치과 불안도와 비교하였다. 이에 다음과 같은 결론을 얻었다. 1. 어린이의 치과 불안도와 부모의 치과 불안도 사이의 상관 분석 및 회귀분석에서 상호 관계성 이 존재하였다(P<0.02). 2. 어린이의 치과 불안도와 치료 협조도 사이의 상관 분석 및 교차 분석에서 음의 상호 관계를 나타내었다(P<0.001). 3. 어린이의 치과불안도와 기질에 관한 Student's t-test에서 낮은 불안도와 높은 불안도 그룹의 네 가지 기질 평군 점수 비교 시, 낮은 불안도 그룹에서 모두 약간 낮은 평균 점수를 보였으나 통계학적 유의차는 없었다(P>0.1). 4. 어린이의 치과 불안도와 어린이의 성별, 나이에 관한 Student's t-test에서, 여아에서 높은 불안도, $3{\sim}6$세의 어린 그룹에서 높은 불안을 보였다(P<0.001). 5. 부모의 치과 불안도와 부모의 학력에 관한, Student's t-test에서, 대학교육을 받지 않은 저학력 부모 그룹에서 더 높은 불안도를 보였으나 통계학적 유의차는 없었다(P>0.1).

  • PDF