• Asian Oncology Nursing
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• v.12 no.2
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• pp.186-193
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• 2012

Purpose: The purpose of this narrative study was to understand how family caregivers interpreted themselves life during caring for dying patients with gliobalstoma, and how they integrated these experiences into their personal biographies. Methods: Three family caregivers were recruited for the study. Data were collected through a series of audio-taped unstructured interviews and conversations with participants. The interviews and observation were conducted between October and November, 2011. Data were analyzed using psychosocial analytical methods that combined case based, in-depth staged analysis of narratives. Results: The life experiences of the family caregivers with a dying family member were summarized as, in their own voices, 'the repetition of gliobalstoma,' 'a smart patient,' 'being obsessed with rehabilitation treatment,' 'the frustration from nothing but just looking at the suffering of the patient,' and 'a stubborn son'. Conclusion: Caregiving was characterised by various roles and life changes from the moment of diagnosis. Family caregivers of brain tumor reported experiences similar to those described by caregivers of people with other cancers. What differed for this group was the rapidity of change and the need for immediate information and support to assist with caring for a person with high-grade glioma.

• Asian Journal for Public Opinion Research
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• v.5 no.3
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• pp.228-249
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• 2018

In 2015, the population of elderly people in Thailand was 16% of the total population and is predicted to be over 20% by 2021 and nearly 28% by 2031. The increase of the elderly population in Thailand has also increased the proportion of dependent elderly people, and caring for them poses many challenges for both families and the government. This descriptive method research aimed to survey the health status of dependent older people in the rural community of Lampang province in northern Thailand. The participants consisted of 62 older people and 62 primary family caregivers from Hong Ha Health Promoting Hospital, Lampang, Thailand (totaling 124 people). The researchers assessed the health status of older people and their activities of daily living (ADL). In addition, researchers assessed the health status and stress of caregivers. All the participants were interviewed about their experiences with caregiving. The results showed that most of the older respondents were female with an average age of 78.15 years. Based on the ADL assessment, 50 of the 62 older persons were homebound while the rest were bedridden. The majority of older people had chronic or long-term conditions that required hospitalization from time to time. Their frequent health problems included oral disorders such as tooth decay or caries/gum disease/no teeth, reduced sight, psychological disorders, knee pain and risk of falling, low BMI, risk of malnutrition, and urinary leakage and incontinence (58.06%, 66.13%, 62.90%, 70.97%, 38.71%, 66.13%, and 37.10%, respectively). Usual care provided by the family members included personal hygiene care, food preparation and feeding, medication management, housekeeping and organizing necessary equipment, supply of needed equipment, prevention of falls, helping with travel for medical checkups and treatment, and providing companionship. Families experienced shortages of medical supplies, daily use equipment, lack of employment, inadequate income, and difficulty accessing health care services due to lack of transportation. Some caregivers experienced caregiving stress related to a lack of social interactions as well as routine caregiving activities. Families need different types of support in order to promote the well-being of older people and caregivers. This highlights the need for a community participation model for the care of older people in order to reflect sustainable long-term outcomes.

• 한국노년학
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• v.40 no.1
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• pp.111-130
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• 2020

This qualitative study aims to understand family members' caregiving experience for middle-aged and elderly breast cancer survivors at early stages. A total of four families of breast cancer survivors were given focus group interviews(FGI), and an additional family was interviewed individually. The thematic analyses of the FGI and individual in-depth interview discussions revealed the following four themes: first, day-to-day feelings like walking on thin ice (entangled emotions with each treatment stage, regret of watching a survivor's pain, fear of recurrence and death, concerns of changes in family relationships, and various feelings experienced as a daughter), second, caregiving has become a mainstay in my life (unfamiliar and unskilled care, losing my life), third, beginning to recover and different experiences between a survivor and a family caregiver (not understanding a survivor's pain from the abyss, forgetting that the survivor is still a cancer patient and that treating him or her casually), and fourth, moving forward (hope that things will be better, taking care of myself to prevent exhaustion). Based on the results of this study, we proposed social welfare services and policy measures to reflect the psychosocial needs of family caregivers of breast cancer survivors and support family caregivers during the care process.

• Korean Journal of Social Welfare
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• v.64 no.4
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• pp.311-336
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• 2012

Under the Korean mental health circumstances where familistic culture is predominant and social resources are limited, siblings are an important presence that effect chronically mentally ill people's lives. Despite this fact, our society in some aspect overlooks their importance. Therefore, this study is focused on the role of siblings as caregivers of chronically mentally ill adults and is conducted to understand the relevant process and types of how siblings fulfill the role of caregivers. In order to achieve this goal, data was collected from nine study participants through individual interviews and focus group interviews and its contents were analyzed according to Grounded Theory. The results revealed that the siblings' experiences as caregivers of chronically mentally ill people were mainly categorized as 'carrying painful memory, responsibility, and concern about the obscure future of the mentally ill sibling and finding a caring role different from those of parents.' Moreover three types of sibling caregivers were recognized: 'reality-adapting, obligation fulfilling' type, 'sacrificial self-responsibility fulfilling' type, and 'growing guardianship creator' type. This research aimed to vividly deliver the voices of research participants and proposed social support and permanent planning services based on the experiences and desires unique to siblings.

• Journal of Digital Convergence
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• v.12 no.8
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• pp.501-513
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• 2014

The purpose of this study was to examine experiences of caring parents-in-law in Korea among daughters-in-law who are currently caring their parents-in-law while living with them, or have experienced such care-giving, and who have been married for at least 5 years. Daughters-in-law this study deals with are from three countries: Korean women, Chinese and Japanese women who immigrated to Korea by getting married with Korean husbands. To find out those women who can express their experiences clearly, this study used an intentional sampling method where this study asked the Multicultural Family Support Center to recommend five Chinese and five Japanese housewives who matched the following qualifications: those who have experiences of caring their parents-in-law at home, who have lived in Korea for at least five years, and who had no difficulty in expressing their opinions in Korean language. Korean married women were recommended by the neighbors. This study conducted in-depth interviews to those 15 housewives from Korea, china, and Japan. Before doing the interview, this study gave explanation of the contents and aims of this study to those interview participants over phone, and got the written consent from each of the women. To analyze the interview data, Colaizzi's phenomenological method was used. The emergent themes identified in the findings were as follows: 'positive perception of traditional nature of filial duty', 'help and encouragement by those who are nearby', 'exhausting marriage life', 'Korean family culture that is hard to adapt to', and 'unreasonable male-focused patriarchal culture.'

• Journal of Korean Clinical Nursing Research
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• v.29 no.1
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• pp.1-11
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• 2023

Purpose: The purpose of this study was to identify the influencing effects of job stress, professional autonomy, and reciprocity on the job embeddedness among comprehensive nursing care unit nurses. Methods: The participants in this study were 147 nurses who have worked for over 6 months in Comprehensive Nursing Care Unit. Data were collected from January 3 to January 31, 2022 from six general hospitals with more than 300 beds in three cities in G, G and P. Results: As the results of hierarchical regression analysis, job embeddedness was lower when nurses had clinical experiences for 1 to under 5 years (β=-.49, p<.001), 5 to under 10 years (β=-.27, p=.035), 10 to under 20 years (β=-.54, p<.001) compared to those who had clinical experiences for more than 20 years. Also, job embeddedness was higher when there was greater balance within team caregiving of reciprocality (β=.27, p<.001) and intrinsic reward (β=.22, p=.003), and lower role conflict (β =-.27, p<.001). Conclusion: The results of the study showed that job embededness would increase if the role conflict of comprehensive nursing care unit nurses reduces, if there was a culture that the members can make cooperative relationship with other health care professionals and, if there was an appropriate intrinsic reward depending on their work experience.

• Journal of the Korea Academia-Industrial cooperation Society
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• v.17 no.1
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• pp.188-198
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• 2016

This study explored the experience of clinical nurses caring for foreign wives in Korea. A narrative study approach within the qualitative research paradigm was applied in this study. The data were collected using individual in-depth interviews with 10 clinical nurses who had at least 5 years working experiences caring for foreign wives and their children in the Women and Children's clinical setting. The narrative stories of the clinical nurses were analyzed in the frame of culture-bounded nursing care. In the culture-bounded nursing care, ethnocentric viewpoints, acceptable viewpoints, and culture-based viewpoints were identified within the time frame. Significantly, the narrator identified herself as a therapeutic caregiver in the culture-based viewpoints providing tailored caregiving for foreign wives. This study requires cultural sensitivity of nurses who care for the people with different cultural backgrounds. Self-awareness would be the starting point to reach culturally competent nursing care.

• Journal of Hospice and Palliative Care
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• v.26 no.4
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• pp.171-184
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• 2023

Purpose: The study explored the meaning of experiences within a family art therapy process among terminal cancer patients and their families. Methods: Ten participants, including four terminal cancer patients currently admitted to the hospice ward at an inpatient hospice facility in S City and four caregiving family members, engaged in four cycles of family art therapy sessions. The sessions were conducted weekly or bi-weekly, and each lasted approximately 50 minutes. Results: Nine cross-case themes emerged: "feeling unfamiliar and intimidated by the idea of expressing my thoughts through art," "trying to accept the present and positively overcome sadness," "expressing hope through emotional bonds during the process of parting," "conveying and preserving personal and family beliefs," "feeling upset about family imbalances caused by deteriorating health," "valuing togetherness and striving for stability amidst the current challenges," "art as a medium of empowerment for patients and facilitator of family conversations, even amidst difficulties," "sharing a range of emotions-not just joy, but concerns and sorrow-through art," and "gratitude for art' s role in improving family communication and connection through artwork. Conclusion: The findings of this study lead to several conclusions. First, patients and their families faced psychological challenges when confronted with impending death, yet they strove to remain optimistic by seeking meaning in their struggles. Second, families practiced open and expressive communication, sharing a spectrum of complex emotions with one another. Third, even as the patient's condition worsened, resulting in family fatigue, their support and cohesion strengthened.

• Journal of the Korean Home Economics Association
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• v.39 no.3
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• pp.67-81
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• 2001

The purpose of this investigation was to examine whether early child-care experience, alone or in combination with mother/child factors, was associated with emotion regulation. Participants were forty 12-18 month-old infants, their mothers and their caregivers. Infants were observed in the Strange Situation to assess the pattern of emotion regulation. Mothers were interviewed, given Questionnaires, and observed in play. Caregivers were observed in child care to assess the caregiving environment. There were significant main effects of good quality child care on open emotion expression and heightening emotion expression. Significant interaction effects revealed that infants were more likely to be open emotion expression when high maternal sensitivity /responsiveness was combined with good quality child care, or nonmaterial care initiated prior to six month of age. Infants were more likely to be minimizing emotion expression when low maternal sensitivity/responsiveness was combined with nonmaternal care initiated after six month of age, or more than one care arrangement. Difficult temperament infants received nonrelative care were somewhat more likely to be minimizing emotion expression. Infants were more Likely to be heightening emotion expression when high maternal sensitivity/responsiveness was combined with relative care. Boys experiencing nonrelative care were more Likely to be heightening emotion expression.

• Korean Journal of Social Welfare
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• v.66 no.1
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• pp.191-219
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• 2014

The major purpose of this study was to explore care giving experiences of mothers, who have their children with borderline intellectual functioning disorder. The core analytical strategy was to find out the essential meaning of caring their children. For this purpose, eight mothers were participated in depth interview, which conducted during October, 2011 through July 2012. The face-to-face interview repeated two or three times based on phenomenological perspective. The interview suggested two major findings: changing mother's view from raising retarded children to caregiving a child with growing-up substantially slow speed; the essence of nurturing experiences for mothers, whose children have borderline intellectual functioning, was to watching with attention rather than advocating ownership. This result can be also found in Barshow's concept of 'watching' rather than 'possession', which is suggested by Tennyson. However, the essential meaning of this concept was associated with 'watching with care', which was originated form Goethe's notion of 'existence'. Mother's of children with borderline intellectual functioning have reached a point of view: when creating a parent-child relationship, it was essential that the child was not 'my child', but was 'a child' per se. This type of parent-child relationship was a result of giving up a desire that the child raised within mother's boundary. It was also a result of psychological warfare and conflict in mother's mind. To internalized this view, it is recommended that the mothers implement the following three perspectives: first, the mothers put down overly-pushed motive toward their children; second, they enhance their level of understanding toward their child; third, it is necessary that the mothers build a new sense of existence through matching their level of concern with their children.