• Child Health Nursing Research
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• 제9권2호
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• pp.190-197
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• 2003

Purpose: This study is to identify the present situation of children's hospice and to find the developing strategies for child hospice system in Korea. Method: The data was collected from both literatures and the recent data provided by the government. The direction of future of children's hospice cared in Korea was predicted based on the literature analysis and the report and policy of government. Result: In Korea, the system of the child hospice is not processing. There are the importance differences between children and adult in that the characteristics and approach of the hospice care. All medical personnel and the people related to hospice care including children and their family should be recognized the necessity of the children's hospice care. The following strategies is needed for setting up the child hospice :the principles and standards, recognizing of the necessities, developing of educational program for the specialist and the systemic children's hospice program, and the organization of child hospice. Conclusion: Directions suggested from this study have the importance of child hospice to establish and develop well in Korea for both children with life-threatening disease and their families.

• Child Health Nursing Research
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• 제15권3호
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• pp.325-333
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• 2009

Purpose: This study was done to investigate the cognition and needs for hospice care among.parentsofchildrenwith cancer. Methods: The participants were 73 parents of children with cancer. Data were collected through self-report questionnaires and analyzed using the SPSS/WIN Program. Results: Less than half of parents (49.3%) told the child about the disease. If the child could not be treated medically, 39.5% of the parents answered that they would have the child treated in a hospital until his/her last days, while 62.8% of the parents replied that it would be. appropriate for the child to get hospice care when all medical treatments for the child failed, or when the end of the child's life was near. Needs for hospice care for the parents were high, and the physical care of the child ranked as the most important. Conclusion: The above findings indicate that the parents were not cognitive enough about hospice care, but needed hospice care,especially as it is related to the physical care of the children. Therefore hospice care, based on cognition and needs of parents, should be provided for children and their families.

• Child Health Nursing Research
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• 제11권1호
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• pp.72-82
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• 2005

Purpose: The purpose of this study was to develop a tool to assess the need for child hospice care in families of children with cancer. Method: The research design was a methodological study. The tool was developed in 4 stages : first, preliminary items were developed based on a questionnaire about the needs for child hospice care that was given to 20 families of children with cancer; second, a panel of specialists reduced the number of preliminary items using 3 validity tests for the content; third, final items were selected from the results of a pre-test. Finally, from February to July 2004, reliability and validity were tested with a sample of 104 families who had a child with cancer. Results: The final tool on the need for child hospice care consisted of 22 items and Cronbach's alpha coefficient for internal consistency was .93. Using factor analysis, 5 factors were extracted and these factors explained 69％ of the total variance. Conclusion: The instrument, for assessing the need for child hospice care in families of children with cancer, developed in this study was identified as a tool with a high degree of reliability and validity. In this sense, this tool can be effectively utilized for implementing and improving hospice care for children with cancer.

• Journal of Hospice and Palliative Care
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• 제1권1호
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• pp.6-13
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• 1998

• 호스피스학술지
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• 제5권2호
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• pp.54-63
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• 2005

The purpose of this study is to examine the requirement for child life support specialist and fetal education for children with cancer. This research presented was composed with three chapters : First chapter, I presented the purpose, scope and definitions of this research. Second chapter, I defined about hospice care service for children with cancer and kind of pediatric cancer. And general characteristics of children with cancer, a understanding character of death and dietary therapy. Lastly, I defined and investigated about spiritual care. Third chapter, I concluded with some of findings and final suggestions based on the results. According to the developmental stages children with cancer are disability of communication competence and more dependence on their parents, therefore parents' decision making were more difficulty. And parents with a child who suffers from a cancer needs a counseling in order to discover the meaning of life. Parents' psychological experience about the caring for their child suffering from pediatric cancer was equal to broken hearts due to shadow of the child's death from time to time. In other words a parents with a child who suffers from a cancer needs comprehensive services such as hospice, consultor as well as wide experienced pediatrician and nurse. Child life support specialist can help them recover and improve their o주 potential strength in behalf of overcoming their difficulties. And pastoral counseling can help them reduce the fear and anxiety about unknown world and death. The systematically developed a school-based counseling program would help children adjust to the difficulties after a perfect cure because of children adjusted to school well when they have good peer relationships.

• 한국산학기술학회논문지
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• 제13권4호
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• pp.1706-1713
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• 2012

본 논문은 암 환아와 가족의 아동호스피스 요구도를 파악하기위해 실시되었다. 자료 수집은 2011년 1월 31일부터 3월 31일까지 대구 소재 3차 의료기관 4개병원의 외래통원 치료중인 암 환아 가족을 대상으로 연구 참여에 동의한 83명에게 설문조사하여 SPSS WIN 19.0 프로그램으로 t-test와 ANOVA로 분석하였다. 아동호스피스 요구도는 평균 3.34점으로 높게 나타났다. 요인별로는 "아동의 정서적 간호"가 가장 높았으며, "2차적인 생리적 문제의 조절", "가족의 어려움을 수용", "말기주요 신체적 증상", "죽음 준비"를 위한 "영적 돌봄"의 순이었고, 가족의 아동호스피스 요구는 종교, 형제, 친척 중 암환자의 유무에서 유의한 차이가 있었다. 암 환아 가족의 호스피스 요구도는 높았으며 요인별로는 "정서적 간호" 요구가 가장 높았고 문항별로는 "아동이 불안해 할 때 정서적인 지지"가 가장 높음을 알 수 있었다. 이를 토대로 아동호스피스 간호에서 정서적 지지에 대한 부분에 더 많은 비중을 두어야하며 필요할 때 지원할 수 있는 전문적인 자질을 갖춘 다학제 아동호스피스팀, 아동호스피스의 체계적인 아동호스피스 돌봄이 이루어져야한다.

• Child Health Nursing Research
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• 제11권2호
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• pp.229-239
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• 2005

Purpose: The objective of this study was to provide an understanding of the difficulties for facing parents of children with terminal cancer. Method: The design of this study was an inductive and descriptive study. Thirty???]one parents of children with terminal cancer participated in???]depth were interviewed s. C in depth and content analysis was used for analyzing the data. Results: The main categories in the findings were 'difficulties in coping', 'physical and psychological suffering of children', 'suffering of family', 'bereavement with children', 'economic problems', 'incurable situation', 'preparation of death', 'social isolation', 'coping after a child dies', 'spiritual problems', receiving active treatment', 'informing children of their condition', 'a sense of meaninglessness', 'emotional iunstability', and 'giving up hope'. Conclusion: The main point identified from this result in this study was that parents who have a child with terminal cancer don't never give up the hope of recovery for their child even when the child is in by the terminal stage of their children, even though and they are unwillingly to prepare for their child's death. This is a unique characteristic in the attitude of the families' attitude in child hospice care and differs from that found in adult hospice care. This result can be used as an important guide for nurses to in assessing the parents' needs in the terminal care setting.

• Journal of Hospice and Palliative Care
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• 제7권2호
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• pp.221-231
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• 2004

목적: 본 연구는 암환아 가족의 호스피스 요구도를 파악하여 앞으로 암 환아 간호시, 대상자의 요구에 적절한 호스피스 간호를 제공하기 위한 목적으로 시도되었다. 방법: 자료수집은 2004년 2월부터 7월까지 서울의 2개 대학병원에서 암으로 진단 받고 입원한 아동의 가족 104명을 대상으로 하였다. 대상자의 아동 호스피스 요구도를 측정하기 위해서는 아동 호스피스에 대한 국내 외 문헌고찰과 아동 호스피스 전문가와 관련자, 암 환아 가족 20명을 대상으로 면담하여 개발한 암 환아 가족의 아동 호스피스 요구 측정도구[10]를 사용하였다. 결과: 1. 대상자의 아동 호스피스 요구 정도는 4점 만점에 $2.77{\sim}4.00$점의 범위로 평균 3.41점(.38)으로 높게 나타났다. 각 요인에 따른 요구정도는 아동의 정서적 간호 말기 주요 신체적 증상의 조절, 2차적인 생리적 문제의 조절, 가족이 어려움 수용, 죽음준비를 위한 영적 돌봄의 순으로 나타났다. 2. 대상자의 일반적 특성에 따른 아동 호스피스의 요구 정도는 아동 어머니의 연령(F==4.980, P=.009), 형제나 친척 중 암 환자의 유무(t=2.423, P=.017)에 따라서만 유의한 차이가 있었다. 즉, 대상자의 아동 호스피스 요구정도는 어머니의 연령이 $36{\sim}40$세인 경우가 요구 정도가 가장 높고 35세 이하인 경우가 가장 낮았으며 형제나 친척 중 암 환자가 있는 경우가 없는 경우보다 요구 정도가 더 높았다. 결론: 아동 호스피스에 대한 암 환아 가족의 요구 정도는 정서적, 신체적, 사회적, 영적 돌봄의 순으로 나타나 가족이 자녀의 죽음을 앞두고 자녀의 신체적 증상관리와 함께 자신의 죽음에 대한 이해가 어려운 자녀의 불안과 두려움을 경감시켜주기 원하는 부모의 특성이 파악되었다. 또한 호스피스에 대한 요구도는 높았으나 자녀에 대한 호스피스 돌봄의향은 낮게 나타나 암 환아 부모들이 적극적인 치료와 호스피스에 대한 양가감정을 가지고 있음을 유추해 볼 수 있었다. 본 연구의 결과는 암 환아 가족들을 위해 간호사가 제공해야 하는 호스피스 돌봄의 방향을 제시하고 있다고 생각되며 이를 위해서는 호스피스 관련 기관뿐만 아니라 국가적 차원의 아동 호스피스에 대한 관심과 지원이 요구된다고 생각한다.

• Child Health Nursing Research
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• 제11권4호
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• pp.465-471
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• 2005

Purpose: The purpose of this study was to identify the self-image of adolescents with cancer. Method: This study was a descriptive study. The participants in the study were 75 adolescents recruited from four medical centers in Seoul and all were receiving cancer therapy Korean Offer Self-Image Questionnaire was used and data were analyzed using the SPSS program. Result & Conclusions: The self-image of adolescents with cancer exists within the average range, but all groups of adolescents with cancer had a more positive self-image than Korean reference groups. The reason why adolescents with cancer showed a relatively positive self-image despite their painful experiences, is because they developed new value systems and view point through their experiences and teaming to cope with their situation. This research revealed that relapse affects the self-image of adolescents and therefore it is important to note that adolescents with relapses need more intensive interventions to maintain their positive self-image. In order to help with their coping process, further research on the factors that affect self-image in adolescents with cancer is also needed.

• 호스피스학술지
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• 제7권2호
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• pp.6-14
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• 2007

Purpose: Hepatocellular carcinoma is the 3rd leading cause of cancer death in Korea and its prognosis is very poor. We aimed to investigate the clinical characteristics of terminal patients with hepatocellular carcinoma on admission into a hospice unit, and to know if they had received appropriate hospice and palliative care. Methods: We retrospectively reviewed the medical records in 62 patients with hepatocellular carcinoma who had admitted, received palliative care, and died in a hospice unit between January 2003 and December 2005. Results: The median age of patients was 56.5 years with 50 men(80.65%) and 12 women(19.35%) and gender ratio(male to female) was 417. Child-Pugh class A, B, and C were 6(9.68%), 22(35.38%), and 34(58.84%) respectively. We divided the patients into two groups and compared, the terminal HCC patients with class C as group I and those with class A & B as group 2. The median time from hospice referral to death was significantly short in group 1 with 15.5 days compared to group 2 with 53 days. Statistically more prevalent symptoms in group I were ascites, dyspnea, peripheral edema, and hepatic encephalopathy with abnormal laboratory findings (jaundice, hypoalbuminemia, or renal insufficiency). There, however, was no significant difference in complications and managements during admission between group 1 and 2. Conclusion: Most terminal HCC patients were often accompanied with chronic liver disease. The length of hospice and palliative care for above patients was not enough to attend them. Therefore, we suggest that proper education and information should be provided to physicians, patients, and their family members for effective hospice and palliative care.