• Title/Summary/Keyword: Caregivers' Burden

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Hermeneutic Phenomenological Study on Caring Experience of the Mothers of Children with Epilepsy (뇌전증 자녀를 둔 어머니의 돌봄 체험에 관한 해석학적 현상학 연구)

  • Joung, Woo Joung;Yi, Myungsun
    • Journal of Korean Academy of Nursing
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    • v.47 no.1
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    • pp.71-85
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    • 2017
  • Purpose: The purpose of this study was to develop a deeper understanding of the experience of mothers caring for children with epilepsy. Methods: Data were collected through individual in-depth interviews and observation from 12 mothers of children with epilepsy. Data were collected from December, 2014 to February, 2015 and analyzed using van Manen's hermeneutic phenomenological methodology to identify essential themes of their experience. Results: The essential themes that fit into the context of the 4-existential grounds of time, body, other people, and space were: Lived time-ongoing influence of the past, living in insecure present, fearful future with no answer; Lived body-bonded body, burned out state; Lived other-burden but also support, shrunken down; Lived space-narrowed range of activity, widened horizon. Conclusion: The findings in this study show in-depth understanding of the hardships of mothers who are caring for children with epilepsy. The beauty and greatness of these mothers are revealed through the analysis of various phenomenological materials such as literary and artistic work reflecting socio-cultural context, as well as vivid care experiences of mothers of children with epilepsy. This will be helpful in increasing understanding of the nature of caregivers' experience for medical professionals dealing with patients and caregivers. Also it helps to improve the understanding of the disease among the general public, followed by a more warming and caring attitude towards patients and family members. Finally, it will enhance psychological well-being and overall quality of life of the epileptic children and their families.

The Development of a Continuing Nursing Care Program for Cancer Patients after Discharge (암환자의 퇴원후 계속 간호 프로그램 개발)

  • Kwon, In-Soo;Eun, Young
    • Journal of Korean Academy of Nursing
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    • v.31 no.1
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    • pp.81-93
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    • 2001
  • The purpose of this study was to develop a continuing nursing care program for cancer patients and the caregivers staying at their home and to test its effects on patients' symptom distress, caregiver burden, and satisfaction of life. The continuing nursing care program was based on the homecare needs of cancer patients, and was provided by three clinical nurses who took care of the patients while they were hospitalized. The program consisted of discharge education about selfcare using education materials(book and handout) and provisions of direct care. These were counselling and education during which visiting patients' home one week after discharge and telephone counseling two weeks after discharge. Counseling by telephone was always available during the research period. A quasi-experimental research design was used to test the effects of the program. Subjects for this study were 53 cancer patients discharged from the hospital and caregivers. These subjects were assigned to an experimental group (n=23) receiving continuous nursing care, or to a control group (n=30) not receiving continuous nursing care. Data from control group was collected first to protect from contamination. Data collection was done from October of 1998 to February of 2000. The collected data was analysed using mean, t-test, and chi-square test computed by SPSS software. The summary of results was as follows: 1) The symptom distress was a little decreased at posttest, but there were no significant differences between the experimental and the control group in symptom distress. 2) The score of caregiver burden was significantly decreased in experimental group at posttest, but no differences in control group. 3) There were no significant differences between the experimental and control group in the satisfaction of life. 4) The score of satisfaction of continuing nursing care program in experimental group at posttest was 2.321 of 3. In conclusion, even though this study did not obtain evidence of effectiveness of continuing nursing care program on patients, such as. It is still expected to be effective by a more improved program. Therefore we want to give some suggestions for further studies. 1) It is needed to make a communication channel with the patient's doctor to response promptly and appropriately to patient's conditions. 2) The research is necessary on patients in terminal stage or early stage of cancer diagnosis who have many nursing needs. 3) It is needed to readjust the roles and job assignment of clinical nurse to implement effectively as a program provider.

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Development of Dementia Care Model in a Community (지역사회 치매관리 모형 개발 : 광명시의 경우)

  • 배상수;김동현;우영국;오진주;민경복;이수현;이미라;이상숙;표옥정
    • Health Policy and Management
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    • v.9 no.1
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    • pp.30-71
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    • 1999
  • There has been a dramatic increase in public awareness regarding dementia during recent years. However, dementia remains a family affair and patients do not receive adequate care in Korea. This study aims to assist patients and their caregivers by establishing Home and Community based Long-Term Care in a city. The data collected for analysis include five main categories: dementia prevalence, limitations of daily activities of patients, burden of caregivers, the services that patient's family want to utilize, the resources that handle dementia in the community. Major findings can be summarized as follows: 1)The prevalence rate of dementia for elderly people is 13.1 per 100 persons. Alzheimer's disease amount to 38.9% of dementia patients and vascular dementia account for 36.7% of them 2)Eight out of ten patients have mild dementia. Almost all patients have normal ADL. IADL, however, shows different picture. In every items of IADL, about 60% of patients reveals some limitations. 3)The proportion of patients who had medical diagnosis is as low as 20%. Families of patients think dementia as normal aging process and medical doctors in the community do not give special concern to dementia patients. 4)Caregivers does not have proper social support. They suffer from long care time, experience large obstacles in respect of health, daily living, and social activity. 5)Health center and Community welfare center have launched some programs-consultation, home-visiting nursing, day care center, voluntary force mobilization and so on-for dementia patients. But they do not perform expected roles and functions because of lack of skilled personnels and inadequate coordination of relevant organizations for dementia care. 6)Families of dementia patients prefer home helper and home-visiting nurse to hospitalization. For the future, however, demand for institution-based long-term services will increase. We develope community dementia care model based on above findings as follows: 1)Health center execute community cardiovascular control program for the prevention of vascular dementia. 2)Refer to epidemiologic characteristics of patients and preference of family, the most urgent task for dementia care in this city is to expand and organize Home and Community based Long-Term Care. 3)For the continuous and comprehensive care, care plan for a patient must be prepared. Case management team should be builded to prepare this plan and coordinate relevant resources. 4)Special long-term care unit for dementia will be needed in a near future. This unit should have multiple functions, such as day-care center, short stay facility, training center for relevant personnels, besides long-term nursing home considering effective care of dementia and efficient operation of the facility. 5)Voluntary workers deserve their due efforts. Incentive mechanisms must be developed to activate voluntary activities.

Review on Wandering Behavior in Persons with Dementia (치매 노인의 배회행동에 관한 문헌 조사)

  • HongSon, Gwi-Ryung
    • Perspectives in Nursing Science
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    • v.3 no.1
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    • pp.35-45
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    • 2006
  • In Korea, about 8.3% over aged 65 are suffering from Alzheimer's disease or other type of dementia. Among dementia-related behaviors, wandering is the one of strongest factors on burden and stress of caregivers. On Lee and Kwon's report with community living persons with dementia, upto 85% of caregivers reported wandering as a problem. Wandering is a frequently encountered problem in communities and long-term care facilities, but it is among least understood dementia. related behavior. Despite the prevalence of wandering, its significant adverse outcomes, and the increase in persons with dementia in Korea, no systematic research has been conducted in Korea. The purpose of this study is to review on literature related to wandering behavior among persons with dementia. The specific topics related to wandering are included: definition, the prevalence of dementia and wandering behavior, the influencing factor on wandering, outcomes of wandering behavior, and the measurement method. Wandering is defined as "aimless walking" and "Meandering, aimless or repetitive locomotion that exposes one to harm and is incongruent with boundaries, limits, or obstacles". Wandering is viewed as a problematic behavior, however, it has to be understood as need-driven compromised behavior. For example, wandering may be an expression of searching for familiar person and/or place. Recently, in Korea, there is an effort for establishing the therapeutic environment for elders who are wanderers in long-term-care facilities. Cognitive impairment of persons with dementia is found to be a consistent factor on wandering behavior through many national and international studies. The adverse outcomes of wandering are serious problem in persons with dementia as well as their caregivers. The adverse outcomes include falls, fractures, getting lost, use of restraints, or even death. In fact, wandering is one of the major reasons for a patient to be institutionalized. For measurement of wandering behavior, two methods are broadly used: observation using stop watch, and survey form. A revised instrument of the Korean version of Algase wandering scale (K_RAWS) is established the psychometric properties (Son, Song, & Lim, 2006) demonstrating valid and reliable instrument in measuring wandering behavior among persons with dementia who are residing in communities. K_RAWS has a 39 items with six subscales including persistent walking, repetitive walking, spatial disorientation, eloping behavior, negative outcome, and mealtime impulsivity. In conclusion, studies including the prevalence of wandering behavior and predictive factors on wandering should be conducted to understand wandering clearly before developing any types of intervention.

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The societal cost of rotavirus infection in South Korea (한국에서 로타바이러스 급성 위장관염의 질병 부담)

  • Yang, Bong Min;Jo, Dae Sun;Kim, Youn Hee;Hong, Ji Min;Kim, Jung Soo
    • Clinical and Experimental Pediatrics
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    • v.51 no.9
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    • pp.977-986
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    • 2008
  • Purpose : This study aims to estimate the financial cost of rotavirus infection in Korea in the year of 2005. Methods : The incidence rates used were from the epidemiological profile at Jeoungeub District (5.8 cases/1,000 children <5 years old for inpatients, and 22.65 cases/1,000 children <5 years old for outpatients, per year). The health care cost per capita of rotavirus infection (ICD code: A08.0) was extracted from the Health Insurance Review and Assessment Service database in Korea. The patient survey was conducted to capture information about non-medical costs and associated productivity loss incurred by adult caregivers. Results : The number of annual national cases among children <5 years old with rotavirus infection was estimated to be 69,122 (i.e., 55,030 outpatients and 14,092 inpatients). The total cost of rotavirus infection was estimated at 13.3 billion Korean won, comprising 11 billion Korean won (82.7%) of direct medical costs, 1.6 billion Korean won (12.0%) of direct non-medical costs (e.g., transportation and supplies), and 0.68 billion Korean won (5.1%) of productivity lost by adult caregivers. Conclusion : Rotavirus infection carries not only medical costs but also non-medical and indirect costs; together, these costs incur a significant burden on South Korean society. The impact of rotavirus on quality of life and health among patient caregivers was not considered in this study, but it does merit further research.

The Child Rearing and Inner Growth Experiences of Mothers of Children with Developmental Disabilities: A Photovoice Study (발달장애 자녀를 둔 어머니의 양육과 성장 경험에 관한 포토보이스 연구)

  • Kim, Kyung-Hee;Kim, Miok;Jung, Min Ah
    • Korean Journal of Family Social Work
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    • no.54
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    • pp.263-296
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    • 2016
  • This study aimed to understand the child rearing burden of mothers of youth with developmental disabilities and mothers' inner growth through their rearing experiences. The researchers conducted focus group interviews using the 'photovoice' method and individual interviews with a mothers' group of an orchestra whose members are youth with developmental disabilities. The data were qualitatively analyzed applying systematic content analysis. The results revealed that the lives of mothers of children with developmental disabilities were framed as 'keeping walking, even it's invisible', and their experiences were summed up by the phrase 'coming together and growing with their children.' Although the mothers of children with developmental disabilities experienced distress and difficulties, they also experienced joy and growth while parenting their children. Their children's participation in the orchestra were associated with changes in the mothers' perceptions of their children as well as their self-perceptions as caregivers, and the relationships with the support systems. Based on these findings, the implications of this study for social welfare practice were discussed.

A Comparative Study on the Effects of an Individual Intervention Program and a Group Intervention Program on the Demented Elderly and Their Families (치매환자 및 가족지지 프로그램 효과 연구 : 개별 및 집단프로그램 비교)

  • Oh, Jin-Joo
    • Research in Community and Public Health Nursing
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    • v.19 no.2
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    • pp.205-215
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    • 2008
  • Purpose: This study was to compare the effects of individual and group intervention programs on the demented elderly and their families. Methods: The programs were applied to two groups, one by home visiting and the other by group intervention. The groups were composed of 14 elders and 12 elders, respectively, with their families. The programs were applied twice a week, ninety minutes per session for four weeks. Programs consisted of cognitive therapy, music and art therapy, and massage for the demented elderly, education on dementia, cognitive-behavioral intervention for problematic behavior, methods to lessen stress, and counselling for the families. Results: AER, problematic behavior, QOL of pts and QOL, caregiving burden, and relationship with the pts of caregivers were improved after each program but not significantly except QOL of pts (Z=-3.37, p=.00) in the group intervention. When the two interventions were compared with each other, the group intervention program was more effective than the home visiting program in all variables but not significantly except QOL of pts (U=32.00, p=.00). Conclusion: In summary, both the individual and group intervention programs were helpful to both pts and families, and even though there was no statistically significant difference between the two intervention programs except in QOL of pts, the group intervention was more effective.

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Preventive Effects of Dairy Products on Dementia and Cognitive Decline (유제품의 치매 및 인지기능 저하 예방 효과)

  • Yun, Jeong-hee;Seol, Kuk-Hwan;Yoo, Jayeon;Oh, Mi-Hwa;Ham, Jun-Sang
    • Journal of Dairy Science and Biotechnology
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    • v.38 no.1
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    • pp.27-36
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    • 2020
  • The prevention of cognitive decline and dementia is an increasingly important global public health priority due to an increase in the percentage of the elderly population. Dementia, a severe cognitive disorder, not only negatively impacts the patients' quality of life but also creates a substantial burden for caregivers. This review introduced recent advances regarding the protective effects of dairy product intake against dementia and cognitive decline. Recent epidemiological studies have suggested that specific components of dairy products including bioactive peptides, colostrinin, proline-rich polypeptides, α-lactalbumin, vitamin B12, calcium, and probiotics might promote healthy brain function during aging. Additionally, oleamide and dehydroergosterol in Camembert cheese have been suggested as agents capable of reducing microglial inflammatory responses and neurotoxicity. The intake of neuroprotective and anti-inflammatory compounds in meals is safe and easy, hence nutritional approaches, including dairy product consumption, serve as a promising intervention for the prevention of neurodegenerative disorders.

A Study on the SociodemographicCharacteristics and Life Satisfaction of Family Caregivers

  • Lim, Ahn-Na;Park, Young-Suk
    • International journal of advanced smart convergence
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    • v.7 no.3
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    • pp.140-145
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    • 2018
  • This study is based on the National Pension Research Institute's 2013 Korean Retirement and Income Study(KReIS) 5 Data for Parents and Children Care over 50 years old and analyzed the satisfaction level of life according to the characteristics of 226 people in society. The results showed that women were more satisfied with their lives than men, and when the age was lower, when they had spouses, and when they had independent economic power. As for the grandchildren caring provider, the higher the education levels, the higher the satisfaction with life. And across all areas, the grandchildren care provider showed greater satisfaction with life than the parents care provider. These results show that the burden of the parents' carers is as great as that. Suggestions based on these results are as follows. First, It is necessary to develop a health care program that can be easily accessed by family carers. Second, Direct economic support is needed, with the primary focus being on family carers. Third, services targeting parents care providers are needed. It is also necessary to form a network that can share the difficulties of parental care.

A Study of Developing the Policies Addressing the Elder Abuse : Focus on the Laws and Programs Addressing Elder Abuse in the United States (노인학대 관련 정책 개발을 위한 일 고찰 : 미국의 노인학대 관련법과 서비스 정책을 중심으로)

  • Woo, Kug-Hee
    • Korean Journal of Social Welfare
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    • v.44
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    • pp.209-231
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    • 2001
  • Recently, child abuse is mentioned in revised Child Welfare Law, on the other hand, elder abuse is not yet recognized as a social problem and little addressed in the field of social service. Like this, elder abuse has gotten less public and professional attention than other areas within the family abuse field. Despite the lack of attention to elder abuse, the number of elder abuse reports and incidents is likely to increase in the future. Based on the recognition that current effort and approach to elder abuse is not appropriate, this study attemped to briefly review laws and programs addressing elder abuse in the United States which have shaped in other contries. In the United States where various laws and programs that address elder abuse exit, there are incresing arguments that addressing elder abuse in the area of social service rather than in the criminal justice systems is more desirable. Because the most common form of elder abuse is not physical abuse but neglect including self-neglect. Self-neglect and neglect caused by caregivers' burden can not be addressed through criminal justice systems appropriately. From these experiences of the United States, the implications for policy, programs, and practice aimed at intervening elder abuse were discussed.

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