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Family resilience and caregiver's well-being across different age groups of children with ADHD in the United States: a cross-sectional study

  • Received : 2024.01.26
  • Accepted : 2024.04.07
  • Published : 2024.04.30

Abstract

Purpose: This study aimed to investigate the impact of family resilience on caregiver well-being across various age groups of children diagnosed with ADHD (attention-deficit/hyperactivity disorder) groups (0-5, 6-11, and 12-17 years). Methods: Utilizing secondary data from the 2022 US National Survey of Child Health, this cross-sectional study involved 2,752 children who were formally diagnosed with ADHD. Statistical analysis included descriptive analysis, Spearman's rank correlation, chi-square tests, and linear regression, conducted using SPSS version 27. Results: The study revealed a moderate positive correlation (r=.35, p<.001) between family resilience and caregiver well-being. Controlling for covariates, family resilience accounted for 25.2%, 21.1%, and 22.1% of caregiver well-being variance in age groups 0-5, 6-11, and 12-17 years, respectively. Additionally, factors like employment status, family structure, and caregiver age showed varying influences on caregiver well-being across these developmental stages. A consistent pattern emerged across these age groups: unemployment and non-traditional family structures were associated with negative impacts on caregiver well-being, whereas older caregiver age positively influenced well-being. Conclusion: This research underscores the importance of age-specific family resilience strategies to improve caregiver well-being and family interactions in ADHD contexts. Investigating these aspects through qualitative studies across various cultures could deepen our understanding of well-being and inform culturally sensitive interventions.

Keywords

References

  1. Donoghue EA, Kraft CA. Managing chronic health needs in child care and schools: a quick reference guide. 2nd ed. American Academy of Pediatrics; 2018. p. 281. 
  2. Salari N, Ghasemi H, Abdoli N, Rahmani A, Shiri MH, Hashemian AH, et al. The global prevalence of ADHD in children and adolescents: a systematic review and meta-analysis. Italian Journal of Pediatrics. 2023;49(1):48. https://doi.org/10.1186/s13052-023-01456-1 
  3. Harpin VA. The effect of ADHD on the life of an individual, their family, and community from preschool to adult life. Archives of Disease in Childhood. 2005;90(Suppl 1):i2-i7. https://doi.org/10.1136/adc.2004.059006 
  4. Wolraich ML, Hagan JF Jr, Allan C, Chan E, Davison D, Earls M, et al. Clinical practice guideline for the diagnosis, evaluation, and treatment of attention-deficit/hyperactivity disorder in children and adolescents. Pediatrics. 2019;144(4):e20192528. https://doi.org/10.1542/peds.2019-2528 
  5. Pahlavanzadeh S, Mousavi S, Maghsoudi J. Exploring the needs of family caregivers of children with attention deficit hyperactivity disorder: a qualitative study. Iranian Journal of Nursing and Midwifery Research. 2018;23(2):149-154.  https://doi.org/10.4103/ijnmr.IJNMR_16_17
  6. Walls M, Cabral H, Feinberg E, Silverstein M. Association between changes in caregiver depressive symptoms and child attention-deficit/hyperactivity disorder symptoms. Journal of Developmental and Behavioral Pediatrics. 2018;39(5):387-394. https://doi.org/10.1097/dbp.0000000000000562 
  7. Sorensen T, Naess S. To measure quality of life: relevance and use in the psychiatric domain. Nordic Journal of Psychiatry. 1996;50(Suppl 37):29-39. https://doi.org/10.3109/08039489609099728 
  8. Polenick CA, Sherman CW, Birditt KS, Zarit SH, Kales HC. Purpose in life among family care partners managing dementia: links to caregiving gains. Gerontologist. 2019;59(5):e424-e432. https://doi.org/10.1093/geront/gny063 
  9. Hayes KN, Rossetti KG, Zlomke K. Community support, family resilience and mental health among caregivers of youth with autism spectrum disorder. Child: Care, Health and Development. 2023;49(1):130-136. https://doi.org/10.1111/cch.13025 
  10. Walsh F. Family resilience: a framework for clinical practice. Family Process. 2003;42(1):1-18. https://doi.org/10.1111/j.1545-5300.2003.00001.x 
  11. Walsh F. Applying a family resilience framework in training, practice, and research: mastering the art of the possible. Family Process. 2016;55(4):616-632. https://doi.org/10.1111/famp.12260 
  12. Walsh F. Community-based practice applications of a family resilience framework. In: Becvar D, Editor. Handbook of family resilience. Springer; 2013. p. 65-82. 
  13. McMenemy C, Nicholas D. Resilience in families of early adolescents with ADHD: implications for practice. Child Care in Practice. 2022;28(4):561-575. https://doi.org/10.1080/13575279.2022.2060187 
  14. Fossati M, Negri L, Fianco A, Cocchi MG, Molteni M, Fave AD. Resilience as a moderator between objective and subjective burden among parents of children with ADHD. Archives of Psychiatric Nursing. 2020;34(1):53-63. https://doi.org/10.1016/j.apnu.2019.11.001 
  15. Song J, Fogarty K, Suk R, Gillen M. Behavioral and mental health problems in adolescents with ADHD: Exploring the role of family resilience. Journal of Affective Disorders. 2021;294:450-458. https://doi.org/10.1016/j.jad.2021.07.073 
  16. Uddin J, Alharbi N, Uddin H, Hossain MB, Hatipoglu SS, Long DL, et al. Parenting stress and family resilience affect the association of adverse childhood experiences with children's mental health and attention-deficit/hyperactivity disorder. Journal of Affective Disorders. 2020;272:104-109. https://doi.org/10.1016/j.jad.2020.03.132 
  17. Moen OL, Hedelin B, Hall-Lord ML. Family functioning, psychological distress, and well-being in parents with a child having ADHD. Sage Open. 2016;6(1). https://doi.org/10.1177/2158244015626767 
  18. United States Census Bureau. National Survey of Children's Health [Internet]. 2022 [cited 2023 December 3]. Available from: https://www.census.gov/programs-surveys/nsch/data/datasets.html 
  19. Cuschieri S. The STROBE guidelines. Saudi Journal of Anaesthesia. 2019;13(Suppl 1):S31-S34. https://doi.org/10.4103/sja.SJA_543_18 
  20. Cui P, Shi J, Li S, Getu MA, Wang R, Chen C. Family resilience and its influencing factors among advanced cancer patients and their family caregivers: a multilevel modeling analysis. BMC Cancer. 2023;23(1):623. https://doi.org/10.1186/s12885-023-11101-z 
  21. Prime H, Wade M, Browne DT. Risk and resilience in family well-being during the COVID-19 pandemic. American Psychologist. 2020;75(5):631-643. https://doi.org/10.1037/amp0000660 
  22. Wallisch A, Little L, Dean E, Dunn W. Parent concerns: differentiating developmental diagnoses in young children. Research in Developmental Disabilities. 2020;103:103684. https://doi.org/10.1016/j.ridd.2020.103684 
  23. Craig F, Savino R, Fanizza I, Lucarelli E, Russo L, Trabacca A. A systematic review of coping strategies in parents of children with attention deficit hyperactivity disorder (ADHD). Research in Developmental Disabilities. 2020;98:103571. https://doi.org/10.1016/j.ridd.2020.103571 
  24. Sanchez-Teruel D, Robles-Bello MA, Sarhani-Robles M, Sarhani-Robles A. Exploring resilience and well-being of family caregivers of people with dementia exposed to mandatory social isolation by COVID-19. Dementia (London). 2022;21(2):410-425. https://doi.org/10.1177/14713012211042187 
  25. Krueger PM, Jutte DP, Franzini L, Elo I, Hayward MD. Family structure and multiple domains of child well-being in the United States: a cross-sectional study. Population Health Metrics. 2015;13:6. https://doi.org/10.1186/s12963-015-0038-0 
  26. Brandon PD. Welfare receipt among children living with grandparents. Population Research and Policy Review. 2005;24(5):411-429. https://doi.org/10.1007/s11113-005-4437-y 
  27. Musil CM, Gordon NL, Warner CB, Zauszniewski JA, Standing T, Wykle M. Grandmothers and caregiving to grandchildren: continuity, change, and outcomes over 24 months. Gerontologist. 2011;51(1):86-100. https://doi.org/10.1093/geront/gnq061 
  28. Ku LJ, Stearns SC, Van Houtven CH, Lee SY, Dilworth-Anderson P, Konrad TR. Impact of caring for grandchildren on the health of grandparents in Taiwan. Journals of Gerontology. Series B, Psychological Sciences and Social Sciences. 2013;68(6): 1009-1021. https://doi.org/10.1093/geronb/gbt090 
  29. Mendoza AN, Fruhauf CA, MacPhee D. Grandparent caregivers' resilience: stress, support, and coping predict life satisfaction. International Journal of Aging & Human Development. 2020;91(1):3-20. https://doi.org/10.1177/0091415019843459 
  30. Kas Alay G, Kacan H. Care burden and resilience in parents of children with special needs and chronic diseases. Journal of Pediatric Nursing. 2024;76:61-67. https://doi.org/10.1016/j.pedn.2024.02.001 
  31. Ahmed MGAE, Felemban EM, El-slamoni MAEFA. A comparative study: quality of life, self-competence, and self-liking among the caregivers of children with attention deficit hyperactivity disorder and other non-ADHD children. Middle East Current Psychiatry. 2022;29(1):27. https://doi.org/10.1186/s43045-022-00189-x 
  32. Jamja P, Suktrakul S, Rodcumdee B. The effect of stress management program on caregivers' caring ability of children with attention deficit hyperactivity disorder. Royal Thai Navy Medical Journal. 2019;46(1):32-48. 
  33. Walenista W, Izydorczyk B, Lipowska M, Markevych I, Baumbach C, Mysak Y, et al. Family functioning style as a predictor of the quality of cognitive functioning of primary school students with ADHD. Journal of Attention Disorders. 2023;27(8):867-879. https://doi.org/10.1177/10870547231158749