PNF and Movement

Korea Proprioceptive Neuromuscular Facilitation Association (대한고유수용성신경근촉진법학회)
권호 표지
DOI QR코드

DOI QR Code

Investigation of Quality of Life for Families with Developmental Disabilities Participating in Regular Physical Activity

규칙적 신체활동에 참여하는 발달장애인 가족의 삶의 질 검증

  • Seung-Jun Choi (Department of Sport and Health Sciences, Kyungsung University)
  • 최승준 (경성대학교 스포츠건강학과)
  • Received : 2024.03.18
  • Accepted : 2024.04.08
  • Published : 2024.04.30
Download PDF
⟨ Previous Next ⟩

Abstract

Purpose: This study examined the perceived quality of life of families of individuals with developmental disabilities who regularly participate in physical activities. It also explored differences in the quality of family life based on variables such as family relationships, family income, gender, disability type, and age. Methods: A survey was administered to 69 family members of individuals with developmental disabilities who regularly participate in physical activities. The collected data were analyzed using descriptive statistics, independent samples t-test, and one-way analysis of variance. Results: The average overall quality of life for families of individuals with developmental disabilities who participate in continuous physical activities was 3.49. After analyzing each subtype, psychological health was found to be 3.91, the burden for people with developmental disabilities was 2.75, community participation was 3.76, cohesion was 3.83, and openness was 3.49. No statistically significant differences were found in family relationships or family classes, disability type, age, or gender of the individuals with developmental disabilities across the variables. Conclusion: When planning service development and support to improve the quality of life for families of individuals with developmental disabilities, it is necessary to develop systematic programs at the family level rather than providing support based on various variables.

Keywords

References

  1. Brown IR, MacAdam-Crisp J, Wang M, et al. Family quality of life when there is a child with a developmental disability. Journal of Policy and Practice in Intellectual Disabilities. 2006;3(4):238-245. https://doi.org/10.1111/j.1741-1130.2006.00085.x
  2. Han MJ, Kang YS. Development and validation on family quality of life scale of families with members with developmental disability. Journal of Intellectual Disabilities. 2022;24(3):27-54.
  3. Hick A, Martin KA, Ditor DS, et al. Long-term exercise training in persons with spinal cord injury: effects on strength, arm ergometry performance and psychological well-being. Spinal Cord. 2003;41(1):34-43. https://doi.org/10.1038/sj.sc.3101389
  4. Jung YS, Lee SB. Pattern dimensions for children with developmental disabilities and family welfare model. Korean Journal of Special Education. 2001;36(3):1-23.
  5. Kang KS. Study on the difficulty of parents of children with developmental disabilities, recognition of the quality of life and needs for the services to improve the quality of family support services. The Journal of Inclusive Education. 2016;11(2):217-247. https://doi.org/10.26592/ksie.2016.11.2.217
  6. Kang YS. Identifying the barriers and facilitators to participation in physical activity for children and adolescents with developmental disabilities. The Korea Journal of Sport. 2015;13(3):99-113.
  7. Kim KM. The Counseling needs for according to life cycle of a mothers parenting adult child who have developmental disabilities. The Journal of the Korean Association on Developmental Disabilities. 2019;23(4):1-27.
  8. Kim MO, Kim GE. Issues and prospects on challenging behaviors supports of developmental disability. Journal of Critical Social Welfare. 2017;56(3):59-94
  9. Kim MO, Kim JH, Kim GE. Parents' experience caring for people with severe developmental disabilities with challenging behavior - focusing on the participants of the severe daytime activity pilot project in Seoul. Journal of Disability and Welfare. 2020;49(49):119-146. https://doi.org/10.22779/KADW.2020.49.49.119
  10. Kim SD. The effects of death anxiety on parents' Self-esteem and care stress of adult children with developmental disabilities : focusing on mediated effect of social network. Busan National University. Dissertation of Master's Degree. 2017.
  11. Kim SJ, Kang YS. Physical Self-concept of people with cerebral palsy through participating in physical activity and disability class. Korean Journal of Adapted Physical Activity. 2008;16(3):25-46.
  12. Kim YS, Jin JY. Mediating Effect of self-efficacy between physical activity participation and quality of life of adults with a developmental disability in a day care facility and a daily activity service. Korean Journal of Adapted Physical Activity. 2022;30(3):77-99.
  13. Lee BH, Kim JB. Development and validation on family quality of life scale of families with members with developmental disability. Journal of Intellectual Disabilities. 2018;20(4):137-158.
  14. Murphy NA, Carbone PS. Promoting the participation of children with disabilities in sports, recreation, and physical activities. Pediatrics. 2008;121(5):1057-1061. https://doi.org/10.1542/peds.2008-0566
  15. Oh MG, Lee JS. Sociology. Seoul. Minyoungsa. 1995.
  16. Pan CY, Frey GC. Physical activity patterns in youth with autism spectrum disorders. Journal of Autism and Developmental Disorders. 2006;36(5):597-606. https://doi.org/10.1007/s10803-006-0101-6
  17. Park TY, Kim HS, Kim TH. A case study on the family therapy for couples experiencing conflicts with husbands family of origin. Journal of Family Relations. 2010;15(3):43-66.
  18. Poston D, Turnbull A, Park J, et al. Family quality of life outcomes: A qualitative inquiry launching a long-term research program. Mental Retardation. 2003;41(5):313-328. https://doi.org/10.1352/0047-6765(2003)41<313:FQOLAQ>2.0.CO;2
  19. Reiner M, Niermann C, Jekauc D, et al. Long-term health benefits of physical activity-a systematic review of longitudinal studies. BMC Public Health, 2013;13(1):813.
  20. Perrier MJ, Sweet SN, Strachan SM, et al. I act, therefore I am: Athletic identity and the health action process approach predict sport participation among individuals with acquired physical disabilities. Psychology of Sport and Exercise. 2012;13(6): 713-720. https://doi.org/10.1016/j.psychsport.2012.04.011
  21. Rhee KY, Lee EJ. The Relationships among perception of parenting attitudes, parenting stress and challenging behavior of adults with developmental disabilities. Journal of Emotional & Behavioral Disorders. 2016;31(1):133-150.
  22. Schalock RL, Begab MJ. Quality of Life: Perspectives and issues. American Association on Mental Retardation. Washington DC. 1990.
  23. Seltzer, M. M. Informal supports for aging mentally retarded persons. American Journal of Mental Dificiency, 1985;90(3):259-265.
  24. Stanish HI, Curtin C, Must A, et al. Comparison of physical activity levels in children and adolescents with and without autism spectrum disorder. Autism, 2017;21(4):370-378.
  25. Turnbull AP. President's address 2004: "Wearing two hats": Morphed perspectives on family quality of life. Mental Retardation. 2004;42(5):383-399.
  26. Warburton DE, Nicol CW, Bredin SS. Health benefits of physical activity: the evidence. Canadian Medical Association Journal. 2006;174(6):801-809. https://doi.org/10.1503/cmaj.051351
  27. Yang HT, Park JY. Qualitative research of mother's nurturing experience with developmental disabilities according to their life cycle. Journal of Disability and Welfare. 2013; 21(21): 43-68.
  28. Yoo YJ, Kim SO, Kim KS. Family relationships. Gyomoonsa. Paju. 2013.