과제정보
We would like to thank all SLE patients who participated in the study and the Thai SLE Foundation leaders who actively engaged in the eWP.
참고문헌
- Lupus Foundation of America. What is lupus? [cited 2022 Oct 21]. Available from: https://www.lupus.org/resources/what-is-lupus.
- Gandelman JS, Khan OA, Shuey MM, Neal JE, McNeer E, Dickson A, et al. Increased incidence of resistant hypertension in patients with systemic lupus erythematosus: a retrospective cohort study. Arthritis Care Res (Hoboken) 2020;72(4):534-543. https://doi.org/10.1002/acr.23880
- Rees F, Doherty M, Grainge MJ, Lanyon P, Zhang W. The worldwide incidence and prevalence of systemic lupus erythematosus: a systematic review of epidemiological studies. Rheumatology (Oxford) 2017;56(11):1945-1961. https://doi.org/10.1093/rheumatology/kex260
- Drenkard C, Lim SS. Update on lupus epidemiology: advancing health disparities research through the study of minority populations. Curr Opin Rheumatol 2019;31(6):689-696. https://doi.org/10.1097/BOR.0000000000000646
- Barber MR, Drenkard C, Falasinnu T, Hoi A, Mak A, Kow NY, et al. Global epidemiology of systemic lupus erythematosus. Nat Rev Rheumatol 2021;17(9):515-532. https://doi.org/10.1038/s41584-021-00668-1
- Carter EE, Barr SG, Clarke AE. The global burden of SLE: prevalence, health disparities and socioeconomic impact. Nat Rev Rheumatol 2016;12(10):605-620. https://doi.org/10.1038/nrrheum.2016.137
- Palavutitotai N, Buppajarntham T, Katchamart W. Etiologies and outcomes of pleural effusions in patients with systemic lupus erythematosus. J Clin Rheumatol 2014;20(8):418-421. https://doi.org/10.1097/RHU.0000000000000179
- Pereira MG, Duarte S, Ferraz A, Santos M, Fontes L. Quality of life in patients with systemic lupus erythematosus: the mediator role of psychological morbidity and disease activity. Psychol Health Med 2020;25(10):1247-1257. https://doi.org/10.1080/13548506.2020.1728350
- Delis PC. Uncertainty and quality of life in systemic lupus erythematosus: a cross-sectional study. Rehabil Nurs 2019;44(1):2-10. https://doi.org/10.1097/rnj.0000000000000118
- Mazzoni D, Cicognani E. Positive and problematic support, stress and quality of life in patients with systemic lupus erythematosus. Anxiety Stress Coping 2016;29(5):542-551. https://doi.org/10.1080/10615806.2015.1134785
- Lertwongpaopun W, Tilokskulchai F, Sindhu S, Pattaragan A, Chai-Aroon T. Factors associated with kidney damage among Thais with lupus nephritis. Pac Rim Int J Nurs Res Thail 2016;20(4):309-319.
- Ratanasiripong NT, Ratanasiripong P. Predictive factors of quality of life among systemic lupus erythematosus patients in Thailand: a web-based cross-sectional study. Qual Life Res 2020;29(9):2415-2423. https://doi.org/10.1007/s11136-020-02494-6
- Case S, Sinnette C, Phillip C, Grosgogeat C, Costenbader KH, Leatherwood C, et al. Patient experiences and strategies for coping with SLE: a qualitative study. Lupus 2021;30(9):1405-1414. https://doi.org/10.1177/09612033211016097
- Fernandez-Ruiz R, Masson M, Kim MY, Myers B, Haberman RH, Castillo R, et al. Leveraging the United States epicenter to provide insights on COVID-19 in patients with systemic lupus erythematosus. Arthritis Rheumatol 2020;72(12):1971-1980. https://doi.org/10.1002/art.41450
- Tselios K, Gladman DD, Touma Z, Su J, Anderson N, Urowitz MB. Clinical remission and low disease activity outcomes over 10 years in systemic lupus erythematosus. Arthritis Care Res (Hoboken) 2019;71(6):822-828. https://doi.org/10.1002/acr.23720
- Tselios K, Gladman DD, Touma Z, Su J, Anderson N, Urowitz MB. Disease course patterns in systemic lupus erythematosus. Lupus 2019;28(1):114-122. https://doi.org/10.1177/0961203318817132
- Fangtham M, Kasturi S, Bannuru RR, Nash JL, Wang C. Non-pharmacologic therapies for systemic lupus erythematosus. Lupus 2019;28(6):703-712. https://doi.org/10.1177/0961203319841435
- Chang A, Winquist NW, Wescott AB, Lattie EG, Graham AK. Systematic review of digital and non-digital non-pharmacological interventions that target quality of life and psychological outcomes in adults with systemic lupus erythematosus. Lupus 2021;30(7):1058-1077. https://doi.org/10.1177/09612033211005085
- da Hora TC, Lima K, Maciel RR. The effect of therapies on the quality of life of patients with systemic lupus erythematosus: a meta-analysis of randomized trials. Adv Rheumatol 2019;59(1):34.
- Nabundit R, Tangvoraphonkchai J. The effects of innovation in providing health information and health game on self-care behaviors for adolescent SLE patients admitted in hospital. J Nurs Sci Health 2012;35(1):10-17 (Thai).
- Baum F, MacDougall C, Smith D. Participatory action research. J Epidemiol Community Health 2006;60(10):854-857. https://doi.org/10.1136/jech.2004.028662
- Faul F, Erdfelder E, Lang AG, Buchner A. G*Power 3: a flexible statistical power analysis program for the social, behavioral, and biomedical sciences. Behav Res Methods 2007;39(2):175-191. https://doi.org/10.3758/BF03193146
- Ferguson CJ. An effect size primer: a guide for clinicians and researchers. Prof Psychol Res Pract 2009;40(5):532-538. https://doi.org/10.1037/a0015808
- Lovibond SH, Lovibond PF. Manual of the depression anxiety stress scales. 2nd ed. Sydney: Psychology Foundation; 1995, p. 1-42.
- Ratanasiripong N, Warawitsaranggoon R, Junda T, Sangchan H, Goo PA, Siripaitoon B, et al. Mental health status and health-related quality of life among systemic lupus erythematosus (SLE) patients in Thailand: a multi-site study. J Med Assoc Thai 2020;103(11):1185-1193. https://doi.org/10.35755/jmedassocthai.2020.11.11156
- RWS Life Sciences. LupusQoL scale [cited 2022 Oct 18]. Available from https://lifesciences.rws.com/lupusqol/instrument-information/instrument-scoring.
- Plichta SB, Kelvin EA. Munro's statistical methods for health care research. 6th ed. Philadelphia: Lippincott Williams & Wilkins; 2013, p. 130-137.
- United States Agency for International Development (USAID). International data & economic analysis. Thailand general education [cited 2022 Oct 11]. Available from: https://idea.usaid.gov/cd/thailand/education.
- Elsayed D, Mesbah S. Effect of health education based intervention on self-care among systemic lupus erythematosus clients. Am J Nurs Res 2018; 6(3):105-112. https://doi.org/10.12691/ajnr-6-3-4
- Puccinelli PJ, da Costa TS, Seffrin A, de Lira CA, Vancini RL, Nikolaidis PT, et al. Correction to: reduced level of physical activity during COVID-19 pandemic is associated with depression and anxiety levels: an internet-based survey. BMC Public Health 2021;21(1):613.
- Lu MC, Koo M. Effects of exercise intervention on health-related quality of life in patients with systemic lupus erythematosus: a systematic review and meta-analysis of controlled trials. Healthcare (Basel) 2021;9(9):1215.
- Williams EM, Egede L, Faith T, Oates J. Effective self-management interventions for patients with lupus: potential impact of peer mentoring. Am J Med Sci 2017;353(6):580-592. https://doi.org/10.1016/j.amjms.2017.01.011
- Rodrigues L, Sim-Sim MM, Sousa L, Faria-Schutzer DB, Surita FG. Self-concept and body image of people living with lupus: a systematic review. Int J Rheum Dis 2021;24(11):1339-1353. https://doi.org/10.1111/1756-185X.14187
- Jolly M, Peters KF, Mikolaitis R, Evans-Raoul K, Block JA. Body image intervention to improve health outcomes in lupus: a pilot study. J Clin Rheumatol 2014;20(8):403-410. https://doi.org/10.1097/RHU.0000000000000141
- Polit DF, Beck CT. Nursing research: generating and assessing evidence for nursing practice. 10th ed. Philadelphia: Wolters Kluwer Health; 2017, p.197.
- Hewitt CE, Kumaravel B, Dumville JC, Torgerson DJ; Trial attrition study group. Assessing the impact of attrition in randomized controlled trials. J Clin Epidemiol 2010;63(11):1264-1270. https://doi.org/10.1016/j.jclinepi.2010.01.010