Journal of Hospice and Palliative Care

Korean Society for Hospice and Palliative Care (한국호스피스완화의료학회)
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Volunteer Experiences of Pediatric Palliative Care among University Students: A Phenomenological Approach

  • Moon, Yi Ji (Department of Social Welfare, Sungkyunkwan University)
  • Received : 2022.06.29
  • Accepted : 2022.08.17
  • Published : 2022.09.01
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Abstract

Purpose: This phenomenological analysis was conducted to explore the experiences of college student volunteers in the field of pediatric palliative care. Methods: In-depth interviews were conducted with nine study participants who had experience volunteering with children receiving pediatric palliative care. The study analysis was conducted using the Colaizzi method, a rigorous qualitative research method, to develop "intra-group" comparisons among the study participants. Results: Through an analysis of the data, 51 themes, 18 theme clusters, and five main categories were derived. The results confirmed that the experience of university student volunteers in pediatric palliative care can be summarized as "awareness of the role of a volunteer," "difficulties encountered while volunteering," "efforts to overcome the difficulties of volunteer work," "personal reflection," and "awareness of life and death." Conclusion: The results of this study can be used as a practical guide for the effective management of volunteers in the pediatric palliative care setting.

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References

  1. Distribution of information on pediatric palliative care [Internet]. Goyang: National Hospice Center; 2021 [cited 2022 Feb 22]. Available from: https://www.hospice.go.kr/pain/archivesView.do?brd_no=101059.
  2. Moon YJ, Shin HY, Kim MS, Song IG, Kim CH, Yu J, et al. Palliative care practitioners' perception toward pediatric palliative care in the Republic of Korea. Korean J Hosp Palliat Care 2019;22:39-47. https://doi.org/10.14475/kjhpc.2019.22.1.39
  3. Yu J, Song IG, Kim CH, Moon YJ, Shin HY, Kim MS. Perceptions of pediatric palliative care among physicians who care for pediatric patients in South Korea. J Palliat Med 2020;23:346-52. https://doi.org/10.1089/jpm.2018.0584
  4. Azuero CB, Harris GM, Allen RS, Williams BR, Kvale E, Ritchie CS. Team-based volunteerism with the seriously ill: a qualitative analysis from 10 volunteers' perspectives. J Soc Work End Life Palliat Care 2014;10:282-95. https://doi.org/10.1080/15524256.2014.938893
  5. Claxton-Oldfield S. Hospice palliative care volunteers: the benefits for patients, family caregivers, and the volunteers. Palliat Support Care 2015;13:809-13. https://doi.org/10.1017/S1478951514000674
  6. NHPCO's facts and figures: hospice care in America [Internet]. Virginia: National Hospice and Palliative Care Organization; 2021 [cited 2022 Mar 1]. Available from: https://-figures-report-shows-changes-in-hospice-patient-diagnoses.
  7. Duggal S, Farah P, Straatman LP, Freeman L, Dickson S. The volunteer program in a Children's Hospice. J Palliat Med 2008;11:997-1001. https://doi.org/10.1089/jpm.2007.0257
  8. Claxton-Oldfield S. Hospice palliative care volunteers: a review of commonly encountered stressors, how they cope with them, and implications for volunteer training/management. Am J Hosp Palliat Care 2016;33:201-4. https://doi.org/10.1177/1049909115571545
  9. Roh SJ, Lim SH. Factors affecting subjective quality of life of hospice volunteers. Korean J Hosp Palliat Care 2011;14:163-71. https://doi.org/10.14475/kjhpc.2011.14.3.163
  10. Shim SH. A case study on the experience of hospice volunteers. Korean J Hosp Palliat Care 2016;19:45-60. https://doi.org/10.14475/kjhpc.2016.19.1.45
  11. Hu SH, Jung TY. Effects of volunteer activities on self-development and sociability-development of undergraduates: focus on meaning of volunteering. Korean Psychol J Cul Soc Issues 2013;19:133-58.
  12. Roessler A, Carter H, Campbell L, MacLeod R. Diversity among hospice volunteers: a challenge for the development of a responsive volunteer program. Am J Hosp Palliat Care 1999;16:656-64. https://doi.org/10.1177/104990919901600506
  13. Meyer D, Schmidt P, Zernikow B, Wager J. It's all about communication: a mixed-methods approach to collaboration between volunteers and staff in pediatric palliative care. Am J Hosp Palliat Care 2018;35:951-8. https://doi.org/10.1177/1049909117751419
  14. Niinomi K, Soejima M, Hiraga K, Kodama S, Okazaki S, Nakao S. Effectiveness of a volunteer training program on the learning support of children in hospice palliative care. Am J Hosp Palliat Care 2020;37:100-7. https://doi.org/10.1177/1049909119860249
  15. Kim GR, Hwang HW. The Relationship between volunteer experience and career decision level of university students majoring in social welfare: the mediating effects of self-efficacy and community consciousness. J Korea Contents 2020;20:615-27.
  16. Yoon MO. Effect of a death preparing education program on death anxiety and meaning of life in volunteers. Korean J Hosp Palliat Care 2009;12:199-208. https://doi.org/10.14475/kjhpc.2009.12.4.199
  17. Colazzi PF. Psychological research as the phenomenologist views it. In: Valle RS, King M, eds. Existential-phenomenological alternatives for psychology. New York: Oxford U Press; 1978. p. 48-71.
  18. Moon YJ, Um MY. A qualitative case study on the pediatric palliative psychosocial support program experienced by parents of children suffering from life-threatening disease. Health Soc Welfare Rev 2020;40:351-91.
  19. Kubler-Ross E, Kessler D. On grief and grieving: finding the meaning of grief through the five stages of loss. New York: Simon and Schuster Audio; 2005.
  20. Muckaden MA, Pandya SS. Motivation of volunteers to work in palliative care setting: a qualitative study. Indian J Palliat Care 2016;22:348-53. https://doi.org/10.4103/0973-1075.185083
  21. Padgett D. Qualitative methods in social work research: challenges and rewards. Thousand Oaks, CA: Sage Publications; c1998.