지역사회간호학회지 (Research in Community and Public Health Nursing)

  • 제32권2호
  • /
  • Pages.205-219
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  • 2021
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  • 1225-9594(pISSN)
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  • 2288-4203(eISSN)
한국지역사회간호학회 (Korean Academy of Community Health Nursing)
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뇌전증 아동·청소년 부모의 치료이행 개념분석

Concept Analysis of Parents' Treatment Adherence for an Epileptic Child or Adolescent

  • 이준아 (서울대학교 간호대학 미래 간호인재 양성사업단) ;
  • 윤주영 (서울대학교 간호대학.간호과학연구소)
  • Lee, Juna (Center for Human-Caring Nurse Leaders for the Future by Brain Korea 21 (BK 21) Four Project, College of Nursing, Seoul National University) ;
  • Yoon, Ju Young (College of Nursing.Research Insitute of Nursing Science, Seoul National University)
  • 투고 : 2021.03.04
  • 심사 : 2021.05.27
  • 발행 : 2021.06.30
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초록

Purpose: This concept analysis was conducted to clarify 'parents' treatment adherence for an epileptic child or adolescent'. Methods: The analysis used a hybrid model comprising three phases: theoretical phase, fieldwork phase, and integration phase. In the theoretical phase, fifty studies were reviewed. Interviews with four parents of epileptic children or adolescents were conducted during the fieldwork phase. In the integration phase, the results derived from prior phases were synthesized and clarified. All phases were performed cyclically. Results: The concept, 'parents' treatment adherence for an epileptic child or adolescent' was defined as parents' voluntary and goal-directed behavior towards the epilepsy treatment for their children: a collaborative decision-making process with health-care providers, establishing a support system, adaptability to the treatment plans, and appraisals of the child's health condition. Conclusion: This achievement is thought to contribute to improving the accuracy and validity of the concept measurement. It has implications for additional research on how the concept 'treatment adherence' differs in diverse health problems and other population groups than parents of children and adolescents with epilepsy.

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과제정보

본 논문은 교육부 및 한국연구재단의 BK21 4단계 사업(미래간호인재양성사업단)의 지원을 받았음.

참고문헌

  1. World Health Organization. Epilepsy fact sheet [Internet]. Geneva, Switzerland: Author; 2019 [cited 2019 October 8]. Available from: https://www.who.int/en/news-room/fact-sheets/detail/epilepsy
  2. Kim SH, Lee YH, Oh U, Hwang JH, Oh M, Yi MG et al. National survey of the disabled persons 2017. Sejong: Korea Institute for Health and Social Affairs; 2017 November. Report No.: 11-1352000-000568-12.
  3. Baca CB, Vickrey BG, Caplan R, Vassar SD, Berg AT. Psychiatric and medical comorbidity and quality of life outcomes in childhood-onset epilepsy. Pediatrics. 2011;128(6):e1532-e1543. https://doi.org/10.1542/peds.2011-0245
  4. Wong J, Wirrell E. Physical activity in children/teens with epilepsy compared with that in their siblings without epilepsy. Epilepsia. 2006;47(3):631-639. https://doi.org/10.1111/j.1528-1167.2006.00478.x
  5. Wei SH, Lee WT. Comorbidity of childhood epilepsy. Journal of the Formosan Medical Association. 2015;114(11):1031-1038. https://doi.org/10.1016/j.jfma.2015.07.015
  6. Hrabok M, Sherman EMS, Bello-Espinosa L, Hader W. Memory and health-related quality of life in severe pediatric epilepsy. Pediatrics. 2013;131(2):e525-e532. https://doi.org/10.1542/peds.2012-1428
  7. Engel-Yeger B, Zlotnik S, Ravid S, Shahar E. Childhood-onset primary generalized epilepsy-Impacts on children's preferences for participation in out-of-school activities. Epilepsy & Behavior. 2014;34:1-5. https://doi.org/10.1016/j.yebeh.2014.02.021
  8. Modi AC, Monahan S, Daniels D, Glauser TA. Development and validation of the pediatric epilepsy medication self-management questionnaire. Epilepsy & Behavior. 2010;18(1):94-99. https://doi.org/10.1016/j.yebeh.2010.03.009
  9. Jones JE, Kessler-Jones A, Thompson MK, Young K, Anderson AJ, Strand DM. Zoning in on parents' needs: Understanding parents' perspectives in order to provide person-centered care. Epilepsy & Behavior. 2014;37:191-197. https://doi.org/10.1016/j.yebeh.2014.06.029
  10. Lee J, Lee I. A concept analysis of uncertainty in epilepsy. Journal of Korean Academy of Nursing. 2017;47(4):499-513. https://doi.org/10.4040/jkan.2017.47.4.499
  11. Ingram TL. Compliance: A concept analysis. Nursing Forum. 2009;44(3):189-194. https://doi.org/10.1111/j.1744-6198.2009.00142.x
  12. Lee Y. Adherence to antiepileptic drug therapy in pediatric epilepsy [master's thesis]. [Seoul]: Hanyang University; 2015. 34 p.
  13. Schwartz-Barcott D, Kim SH. An expansion and elaboration of the hybrid model of concept development. In: Rodgers BL, Knafl KA, editors. In concept development in nursing: Foundations, techniques, and applications. 2nd ed. Philadelphia, PA: W.B. Saounders Company; 2000. p. 129-159.
  14. Murugupillai R, Wanigasinghe J, Muniyandi R, Arambepola C. Parental concerns towards children and adolescents with epilepsy in Sri Lanka-qualitative study. Seizure. 2016;34:6-11. https://doi.org/10.1016/j.seizure.2015.10.016
  15. Yi M, Lee SW, Kim KJ, Kim MG, Kim JH, Lee KH, et al. A review study on the strategies for concept analysis. Journal of Korean Academy of Nursing. 2006;36(3):493-502. https://doi.org/10.4040/jkan.2006.36.3.493
  16. National Institute of Korean Language. The Korean standard dictionary [Internet]. Seoul: Author; 2019 [cited 2019 September 29]. Available from: https://stdict.korean.go.kr/main/main.do
  17. Oxford University Press. Oxford learner's dictionary [Internet]. Oxford, United Kingdom: Author; 2019 [cited 2019 September 29]. Available from: https://www.oxfordlearnersdictionaries.com/
  18. Evangelista LS. Compliance: A concept analysis. Nursing Forum. 1999;34(1):5-11. https://doi.org/10.1111/j.1744-6198.1999.tb00230.x
  19. Sabate E, editor. Adherence to long-term therapies: Evidence for action, Geneva, Switzerland: World Health Organization; 2003. 198 p.
  20. Corbin CB, Lindsey R. Concepts of physical fitness, with laboratories. 8th ed. Dubuque, Iowa: W.C. Brown; 1994. 408 p.
  21. Mevaag M, Henning O, Baftiu A, Granas AG, Johannessen SI, Nakken KO, et al. Discrepancies between physicians' prescriptions and patients' use of antiepileptic drugs. Acta Neurologica Scandinavica. 2017;135(1):80-87. https://doi.org/10.1111/ane.12578
  22. Yang A, Wang B, Zhu G, Jiao Z, Fang Y, Tang F, et al. Validation of Chinese version of the Morisky medication adherence scale in patients with epilepsy. Seizure. 2014;23(4): 295-299. https://doi.org/10.1016/j.seizure.2014.01.003
  23. O' Rourke G, O' Brien JJ. Identifying the barriers to antiepileptic drug adherence among adults with epilepsy. Seizure. 2017;45: 160-168. https://doi.org/10.1016/j.seizure.2016.12.006
  24. Seo DW, Shin WC, Kim DW, Park HM, Song HK, Yum MS, et al. Clinical epileptology, 3rd ed. Seoul: Panmun Education; 2018. 573 p
  25. van Mil SGM, de la Parra NM, Reijs RP, van Hall MHJA, Aldenkamp AP. Psychomotor and motor functioning in children with cryptogenic localization related epilepsy. Neuro-Rehabilitation. 2020;26(4):291-297. https://doi.org/10.3233/nre-2010-0565
  26. Gordon KE, Dooley JM, Brna PM. Epilepsy and activity-A population based study. Epilepsia. 2010;51(11):2254-2259. https://doi.org/10.1111/j.1528-1167.2010.02709.x
  27. Devinsky O, Conway E, Glick CS. Epilepsy in children: What every parent needs to know. New York, NY: Demos Health; 2016. 320 p.
  28. Modi AC. The impact of new pediatric epilepsy diagnosis on parents: Parenting stress and activity patterns. Epilepsy & Behavior. 2009;14(1):237-242. https://doi.org/10.1016%2Fj.yebeh.2008.10.009 https://doi.org/10.1016%2Fj.yebeh.2008.10.009