DOI QR코드

DOI QR Code

Effects of Dementia Caregiver Program on Caregiver Burden

치매가족교실 프로그램이 치매 가족의 부양부담감에 미치는 효과

  • Oh, Hye Jee (Department of Psychiatry, Dankook University Hospital) ;
  • Kim, Do Hyun (Department of Psychiatry, Dankook University Hospital) ;
  • Kim, Kyung Min (Department of Psychiatry, Dankook University Hospital) ;
  • Lee, Jung Jae (Department of Psychiatry, Dankook University Hospital) ;
  • Lee, Kyung Kyu (Department of Psychiatry, Dankook University Hospital) ;
  • Lee, Seok Bum (Department of Psychiatry, Dankook University Hospital)
  • 오혜지 (단국대학교병원 정신건강의학과) ;
  • 김도현 (단국대학교병원 정신건강의학과) ;
  • 김경민 (단국대학교병원 정신건강의학과) ;
  • 이정재 (단국대학교병원 정신건강의학과) ;
  • 이경규 (단국대학교병원 정신건강의학과) ;
  • 이석범 (단국대학교병원 정신건강의학과)
  • Received : 2021.11.12
  • Accepted : 2021.12.13
  • Published : 2021.12.31

Abstract

Objectives : Dementia is one of the most distressing mental health problems in the older population. Caregivers also experienced physical, psychological, and emotional stress from taking care of dementia patients. So, we developed program for supporting dementia caregiver and evaluated its efficacy on reducing caregiver burden. Methods : We provided 5 sessions of dementia caregiver supporting program to 30 caregivers who were taking care of dementia patient in their home. Program was held in Cheonan Center for Alzheimer's disease and other dementia that was established by Cheonan city government for supporting dementia patients and their caregivers. We evaluated caregiver burden using short Zarit burden inventory consisted of 12 items scoring 0 (no burden) to 4 (everyday burden) before and after program. We evaluated satisfaction of caregiver about program using satisfaction survey consisted of 10 items scoring 0 (very dissatisfy) to 4 (very satisfy) after program. Results : Mean age of caregiver was 61.9. 40.0% (n=12) of caregivers were spouse. 53.3% (n=16) of caregivers were son or daughter. Caregiver burden that was estimated by short Zarit burden inventory were significantly decreased after program (p<0.001). When each item was compared, 4 items (7, 10, 11 and 12) were significantly decreased after program (p=0.036, p=0.018, p=0.01, p=0.024). All mean scores of 10 items about satisfaction were over 3 meaning that participants generally satisfied to program. Conclusions : Our study suggested that dementia caregiver supporting program could reduce caregiver burden and provide satisfaction. Therefore, programs for supporting dementia caregivers might be important as well as treating dementia patients. So, we should be interested in developing and providing efficiently this kind of program to reduce caregiver burden.

연구목적 치매는 노인인구의 가장 심각한 정신건강문제 중 하나이다. 치매환자를 돌보는 부양자 역시 신체적, 정신적, 감정적 스트레스를 경험한다. 따라서 본 연구는 부양자를 위한 프로그램(치매가족교실)을 개발하고, 이 프로그램이 부양부담을 줄여주는 효과가 있는지에 대해 알아보고자 하였다. 방 법 5회기로 구성된 치매 부양자 지원 프로그램을 30명의 치매환자를 집에서 돌보고 있는 부양자들에게 제공하였다. 프로그램은 천안시 치매지원센터에서 시행되었다. 프로그램 시행 전후 부양부담의 차이를 확인하기 위해 단축형 자릿 부양부담평가척도를 프로그램 시행 전후에 시행하였으며 프로그램의 전반적인 평가를 위해 만족도 조사를 하였다. 결 과 대상자의 평균연령은 61.9세였다. 40.0% (n=12)의 부양자는 배우자, 53.3%(n=16)의 부양자는 자녀였다. 프로그램 시행 이후 단축형 자릿 부양부담평가 총점이 시행 전 25.73 (±8.6)에서 시행 후에는 22.07 (±8.0)으로 유의하게 감소하였다(p<0.001). 각 항목 별로는 4개의 항목(7, 10, 11, 12)이 프로그램 시행 후 유의하게 감소하였다(p=0.036, p=0.018, p=0.01, p=0.024). 프로그램 완료 후 만족도 조사에서 10개 세부항목 모두 평균 3점 이상으로 '그렇다' 이상의 긍정적 평가였다. 결 론 연구결과 치매환자 부양자 지원 프로그램은 부양부담을 감소시키는 효과가 있으며 프로그램 자체에 대한 만족도도 높았다. 따라서 향후 치매환자 치료 뿐만 아니라 부양자 지원 프로그램의 중요성에 관심을 갖고 프로그램의 개발 및 효과적인 제공에 대해 추가적인 연구가 필요할 것으로 생각된다.

Keywords

References

  1. Lee JS, Kang MJ, Lee OJ, Lee HH, Kwak MY, You WS, Seo JW, Ko IS. Korean Dementia Observatory. National Institute of Dementia 2020.
  2. Cheon DS, Shin GY, Kim Beom, Kim CY. Jeollabuk-do Social Survey 2020. Jeollabuk-do Statistics;2020.
  3. Lee JY, Kim DS, Han KH, Cho BH, Kim KK, Kweon HJ, Park JS, Seo US, Jang SE, Kim JH, Kang EY, Han Jun. Korean Social Trends 2018. Statistical Research Institute;2018. p.50.
  4. Lee SH, Kweon JD. Living conditions and Welfare Needs of the Elderly with Dementia and Their Families. Seoul Northern Senior Center;1993.
  5. Son YJ, Kang KS, Kim SJ. The home care need and the burden of a primary family care giver with senile dementia patients. The Journal of Korean Community Nursing 2000;11:423-440.
  6. Lazarus AA. Has behavior therapy outlived its usefulness? American Psychologist 1977;32:550. https://doi.org/10.1037/0003-066X.32.7.550
  7. Cantor M. Caring for the frail elderly: Impact on family, friends, and neighbors. in 33rd annual scientific meeting of the Gerontological Society of America, San Diego, CA. 1980.
  8. Skaff MM, LI Pearlin. Caregiving: role engulfment and the loss of self. The Gerontologist 1992;32:656-664. https://doi.org/10.1093/geront/32.5.656
  9. Chenoweth B, Spencer B. Dementia: The experience of family caregivers. The Gerontologist 1986;26:267-272. https://doi.org/10.1093/geront/26.3.267
  10. Clipp EC, George LK. Dementia and cancer: a comparison of spouse caregivers. The Gerontologist 1993;33:534-541. https://doi.org/10.1093/geront/33.4.534
  11. Yates ME, Tennstedt S, Chang BH. Contributors to and mediators of psychological well-being for informal caregivers. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences 1999;54:12-22.
  12. Lee HJ, Song RY. Coping strategies utilized in the caregiving situation and predictors of health responses among informal caregivers of older adults. Journal of Korean Academy of Nursing 2000;30:893-904. https://doi.org/10.4040/jkan.2000.30.4.893
  13. Lee GO. A study on quality of life and it's influencing factors in family caregivers caring for dementia patient. Journal of Korean Academy of Psychiatric and Mental Health Nursing 2003;12:15-26.
  14. Yoo YS. The study on factors affecting adaption of the family with the elderly dementia. Korean Journal of Gerontological Social Welfare 2007;38:31-50.
  15. Son GR. The Predictors of Burden and Satisfaction among Korean Caregivers of Elders with Dementia. Ph.D. Case Western Reserve University;1998.
  16. Kim YJ, Hyun KJ, Yue JH. The positive experiences in caregiving of stroke patients: a study of caregiving satisfaction. Journal of the Korean Neurological Association 2004;22:590-597.
  17. Chang BL. Cognitive-behavioral intervention for homebound caregivers of persons with dementia. Nursing Research 1999;48: 173-182. https://doi.org/10.1097/00006199-199905000-00007
  18. Kim YI. Supporting burden, Knowledge about dementia, and Social Support of major caregivers for the elderly with dementia;2015.
  19. Park MH, Go YH, Jeong MR, Lee SJ, Kim SH, Kim JH, Lee DY. Influencing factors and risk of caregiver burden of family caregivers for patient with dementia. Korean Journal of Family Welfare 2017;22:431-448. https://doi.org/10.13049/kfwa.2017.22.3.3
  20. Yoo KS, So ES. The effectiveness of dementia education for the nursing method of family caregivers of the demented elderly. J Korean Acad Community Health Nurs 2014;25:97-108. https://doi.org/10.12799/jkachn.2014.25.2.97
  21. Kim JY, Ryu WJ, Choi YH. The effect of caregiver burden on depression of dementia family caregiversthe moderating role of perceived public support. Korean Journal of Gerontological Social Welfare 2018;73:171-191. https://doi.org/10.21194/kjgsw.73.2.201806.171
  22. Kim SY, Kim JS, Youn HS. Predictors of Depression and Life Satisfaction among Family Caregivers for Demented Elderly. Journal of the Korea Gerontological Society 2004;24:111-128.
  23. Bedard M, Molloy DW, Squire L, Dubois S, Lever JA, O'Donnell M. The Zarit Burden Interview: a new short version and screening version. Gerontologist 2001;41:652-657. https://doi.org/10.1093/geront/41.5.652
  24. Kwon OD, Kim TW, Park MY, Yi SD, Yi HA, Lee HW. Factors affecting caregiver burden in family caregivers of patients with dementia. Dement Neurocogn Disord 2013;12:107-113. https://doi.org/10.12779/dnd.2013.12.4.107