DOI QR코드

DOI QR Code

Korean parents' perceptions of the challenges and needs on school re-entry during or after childhood and adolescent cancer: a multi-institutional survey by Korean Society of Pediatric Hematology and Oncology

  • Lee, Jun Ah (Department of Pediatrics, Center for Pediatric Cancer, National Cancer Center) ;
  • Lee, Jae Min (Department of Pediatrics, Yeungnam University College of Medicine) ;
  • Park, Hyeon Jin (Department of Pediatrics, Center for Pediatric Cancer, National Cancer Center) ;
  • Park, Meerim (Department of Pediatrics, Center for Pediatric Cancer, National Cancer Center) ;
  • Park, Byung Kiu (Department of Pediatrics, Center for Pediatric Cancer, National Cancer Center) ;
  • Ju, Hee Young (Department of Pediatrics, Samsung Medical Center) ;
  • Kim, Ji Yoon (Department of Pediatrics, Kyungpook National University School of Medicine) ;
  • Park, Sang Kyu (Department of Pediatrics, Ulsan University Hospital, University of Ulsan College of Medicine) ;
  • Lee, Young Ho (Department of Pediatrics, Hanyang University College of Medicine) ;
  • Shim, Ye Jee (Department of Pediatrics, Keimyung University School of Medicine) ;
  • Kim, Heung Sik (Department of Pediatrics, Keimyung University School of Medicine) ;
  • Park, Kyung Duk (Department of Pediatrics, Chonbuk National University Hospital) ;
  • Lim, Yeon-Jung (Department of Pediatrics, Chungnam National University College of Medicine) ;
  • Chueh, Hee Won (Department of Pediatrics, Dong-A University College of Medicine) ;
  • Park, Ji Kyoung (Department of Pediatrics, Inje University Busan Paik Hospital) ;
  • Kim, Soon Ki (Department of Pediatrics, Inha University College of Medicine) ;
  • Choi, Hyoung Soo (Department of Pediatrics, Seoul National University Bundang Hospital) ;
  • Ahn, Hyo Seop (Department of Pediatrics, Seoul National University Bundang Hospital) ;
  • Hah, Jeong Ok (Department of Pediatrics, Daegu Fatima Hospital) ;
  • Kang, Hyoung Jin (Department of Pediatrics, Cancer Research Institute, Seoul National University College of Medicine) ;
  • Shin, Hee Young (Department of Pediatrics, Cancer Research Institute, Seoul National University College of Medicine) ;
  • Lee, Mee Jeong (Department of Pediatrics, Dankook University College of Medicine)
  • 투고 : 2019.06.24
  • 심사 : 2019.11.13
  • 발행 : 2020.04.15

초록

Background: For children and adolescents with cancer, going back to school is a key milestone in returning to "normal life." Purpose: To identify the support vital for a successful transition, we evaluated the parents' needs and the challenges they face when their children return to school. Methods: This multi-institutional study was conducted by the Korean Society of Pediatric Hematology and Oncology. The written survey comprised 24 questions and was completed by 210 parents without an interviewer. Results: Most parents (165 of 206) reported that their children experienced difficulties with physical status (n=60), peer relationships (n=30), academic performance (n=27), emotional/behavioral issues (n=11), and relationships with teachers (n=4) on reentering school. Parents wanted to be kept informed about and remain involved in their children's school lives and reported good parent-teacher communication (88 of 209, 42.1%). Parents reported that 83.1% and 44.9% of teachers and peers, respectively, displayed an adequate understanding of their children's condition. Most parents (197 of 208) answered that a special program is necessary to facilitate return to school after cancer therapy that offers emotional support (n=85), facilitates social adaptation (n=61), and provides tutoring to accelerate catch up (n=56), and continued health care by hospital outreach and school personnel (n=50). Conclusion: In addition to scholastic aptitude-oriented programs, emotional and psychosocial support is necessary for a successful return to school. Pediatric oncologists should actively improve oncology practices to better integrate individualized school plans and educate peers and teachers to improve health literacy to aid them in understanding the needs of children with cancer.

키워드

참고문헌

  1. Greenzang KA, Cronin AM, Mack JW. Parental preparedness for late effects and long-term quality of life in survivors of childhood cancer. Cancer 2016;122:2587-94. https://doi.org/10.1002/cncr.30092
  2. Thompson AL, Christiansen HL, Elam M, Hoag J, Irwin MK, Pao M, et al. Academic continuity and school reentry support as a standard of care in pediatric oncology. Pediatr Blood Cancer 2015;62 Suppl 5:S805-17. https://doi.org/10.1002/pbc.25760
  3. McLoone JK, Wakefield CE, Butow P, Fleming C, Cohn RJ. Returning to school after adolescent cancer: a qualitative examination of australian survivors' and their families' perspectives. J Adolesc Young Adult Oncol 2011;1:87-94. https://doi.org/10.1089/jayao.2011.0006
  4. Masera G, Jankovic M, Deasy-Spinetta P, Adamoli L, Ben Arush MW, Challinor J, et al. SIOP Working Committee on Psychosocial Issues in Pediatric Oncology: guidelines for school/education. Med Pediatr Oncol 1995;25:429-30. https://doi.org/10.1002/mpo.2950250602
  5. Moore JB, Kaffenberger C, Goldberg P, Kyeung Mi Oh, Hudspeth R. School reentry for children with cancer: perceptions of nurses, school personnel, and parents. J Pediatr Oncol Nurs 2009;26:86-99. https://doi.org/10.1177/1043454208328765
  6. Korean Ministry of Education. Education support system for students with health impairments. Sejong (Korea): Korean Ministry of Education, 2005.
  7. French AE, Tsangaris E, Barrera M, Guger S, Brown R, Urbach S, et al. School attendance in childhood cancer survivors and their siblings. J Pediatr 2013;162:160-5. https://doi.org/10.1016/j.jpeds.2012.06.066
  8. Yi J, Kim MA, Hong JS, Akter J. Childhood cancer survivors' experiences in school re-entry in South Korea: focusing on academic problems and peer victimization. Child Youth Serv Rev 2016;67:263-9. https://doi.org/10.1016/j.childyouth.2016.06.022
  9. Kim MA, Yi JH. Childhood cancer survivor's services needs for the better quality of life. J Korean Acad Child Health Nurs 2012;18:19-28. https://doi.org/10.4094/jkachn.2012.18.1.19
  10. Lee Y. The effects of school re-entry support program in the hospital school on the self-perception of children with cancer. Disabil Soc Welf 2008;1:111-38.
  11. Nam SI, Choi KH. School reintegration, adjustment difficulties, and services for childhood cancer survivors. Korean J Soc Welf Res 2013;38:181-215.
  12. Yi J, Kim MA, Sang J. Worries of childhood cancer survivors in young adulthood. Eur J Oncol Nurs 2016;21:113-9. https://doi.org/10.1016/j.ejon.2016.02.003
  13. Lee S, Shouse RC. The impact of prestige orientation on shadow education in South Korea. Sociology of Education 2011;84:212-24. https://doi.org/10.1177/0038040711411278
  14. Dumas A, Cailbault I, Perrey C, Oberlin O, De Vathaire F, Amiel P. Educational trajectories after childhood cancer: When illness experience matters. Soc Sci Med 2015;135:67-74. https://doi.org/10.1016/j.socscimed.2015.04.031
  15. Irwin MK, Elam MP, Merianos AL. Coordination of care between health and education systems for patients with a hematologic or oncologic diagnosis: a time study analysis. J Pediatr Nurs 2015;30:244-53. https://doi.org/10.1016/j.pedn.2014.07.003
  16. Bruce BS, Newcombe J, Chapman A. School liaison program for children with brain tumors. J Pediatr Oncol Nurs 2012;29:45-54. https://doi.org/10.1177/1043454211432296
  17. Grandinette S. Supporting students with brain tumors in obtaining school intervention services: the clinician's role from an educator's perspective. J Pediatr Rehabil Med 2014;7:307-21. https://doi.org/10.3233/PRM-140301
  18. McLoone JK, Wakefield CE, Cohn RJ. Childhood cancer survivors' school (re)entry: Australian parents' perceptions. Eur J Cancer Care (Engl) 2013;22:484-92. https://doi.org/10.1111/ecc.12054
  19. Yamamoto Y, Holloway SD. Parental expectations and children's academic performance in sociocultural context. Educ Psychol Rev 2010;22:189-214. https://doi.org/10.1007/s10648-010-9121-z
  20. Dumas A, Berger C, Auquier P, Michel G, Fresneau B, Allodji RS, et al. Educational and occupational outcomes of childhood cancer survivors 30 years after diagnosis: a French cohort study. Br J Cancer 2016;114:1060-8. https://doi.org/10.1038/bjc.2016.62
  21. Kurt BA, Armstrong GT, Cash DK, Krasin MJ, Morris EB, Spunt SL, Robison LL, Hudson MM. Primary care management of the childhood cancer survivor. J Pediatr 2008;152:458-66. https://doi.org/10.1016/j.jpeds.2007.10.002

피인용 문헌

  1. A systematic review of the educational experiences and needs of children with cancer returning to school vol.77, pp.7, 2021, https://doi.org/10.1111/jan.14784