References
- Goldman A, Hain R, Liben S. Oxford textbook of palliative care for children. 2nd ed. Oxford:Oxford University Press;c2012.
- Himelstein BP, Hilden JM, Boldt AM, Weissman D. Pediatric palliative care. N Engl J Med 2004;350:1752-62. https://doi.org/10.1056/NEJMra030334
- WHO: Definition of pediatric palliative care [Internet]. Geneva: World Health Organization; 1998 [cited 2019 Jan 28]. Available from: http://www.who.int/cancer/palliative/definition/en/.
- WHO: Palliative care factsheet [Internet]. Geneva: World Health Organization; 2017. [cited 2018 Nov 14]. Available from: http://www.who.int/mediacentre/factsheets/fs402/en/.
- Current status of hospice and palliative care 2017 [Internet]. Goyang: National Cancer Center; 2019 [cited 2019 Aug 10]. Available from: http://hospice.go.kr/square/archivesView.do?brd_no=91107.
- Wolfe J. Textbook of interdisciplinary pediatric palliative care. Philadelphia:Elsevier Saunders;2011. p. 7-17.
- Villanueva G, Murphy MS, Vickers D, Harrop E, Dworzynski K. End of life care for infants, children and young people with life limiting conditions: summary of NICE guidance. BMJ 2016;355:i6385.
- Kang KA, Hwang AR. Pediatric hospice and palliative care. Korean J Hosp Palliat Care 2012;15:131-40. https://doi.org/10.14475/kjhpc.2012.15.3.131
- Worldwide Palliative Care Alliance. Global Atlas of Palliative Care at the end of life [Internet]. Geneva: World Health Organization; 2014 [cited 2019 Jan 2]. Available from: http://www.who.int/nmh/Global_Atlas_of_Palliative_Care.pdf.
- National Hospice and Palliative Care. Standards of practice for pediatric hospice and palliative care programs. Virginia:National Hospice and Palliative Care Organization;2007.
- Kim MS, Lim NG, Kim HJ, Kim C, Lee JY. Pediatric deaths attributed to complex chronic conditions over 10 years in Korea: Evidence for the need to provide pediatric palliative care. J Korean Med Sci 2018;33:1-13. https://doi.org/10.3904/kjim.2017.377
- Kim CH, Kim MS, Shin HY, Song IG, Moon YJ. Pediatric deaths attributed to Life-limiting conditions in the Republic of Korea: Exploring the need for nationwide pediatric palliative care. 4th Global Gathering Maruzza Congress; 2018 Oct 24-26; Rome, Italy. Via del Nuoto: Foundation Maruzza; 2018.
- Stjernsward J, Foley KM, Ferris FD. The public health strategy for palliative care. J Pain Symptom Manage 2007;33:486-93. https://doi.org/10.1016/j.jpainsymman.2007.02.016
- Whittemore R, Knafl K. The integrative review: updated methodology. J Adv Nurs 2005;52:546-53. https://doi.org/10.1111/j.1365-2648.2005.03621.x
- Downing J, Powell RA, Marston J, Huwa C, Chandra L, Garchakova A, et al. Children's palliative care in low-and middle-income countries. Arch Dis Child 2015;101:85-90. https://doi.org/10.1136/archdischild-2015-308307
- How CQC regulates: Adult social care services: hospice services provider handbook [Internet]. Newcastle (UK): Care Quality Commission; 2016 [cited 2019 Jan 4]. Available from: https://www.cqc.org.uk/sites/default/files/20160422_ASC_hospice_provider_handbook_April%202016_update.pdf.
- Lewis M. Better care, better lives. Improving outcomes for children young people and their families living with life limiting and life threatening conditions [Internet]. London: Department of Health; 2008 [cited 2019 Jan 11]. Available from: http://eprints.uwe.ac.uk/5178/.
- National Collaborating Centre for Cancer. Improving outcomes in children and young people with cancer [Internet]. London: National Institute for Health and Clinical Excellence; 2005 [cited 2019 Jan 28]. Available from: https://www.nice.org.uk/guidance/csg7/resources/improving-outcomes-in-children-and-young-people-with-cancer-update-pdf-773378893.
- NHS England. Developing a new approach to palliative care funding: A revised draft for discussion [Internet]. London: NHS England; 2014 [cited 2019 Jan 20]. Available from: https://www.england.nhs.uk/wp-content/uploads/2014/12/apprch-palliative-care-rev-fin.pdf.
- Together for Short Lives, A Guide to Children's Palliative Care; Supporting babies, children and young people with life-limiting and lifethreatening conditions and their families [Internet]. Bristol: Together for short lives; 2018 [cited 2019 Jan 11]. Available from: https://www.togetherforshortlives.org.uk/wp-content/uploads/2018/03/TfSL-A-Guide-to-Children%E2%80%99s-Palliative-Care-Fourth-Edition-5.pdf.
- Hain R, Devins M, Hastings R, Noyes J. Paediatric palliative care: development and pilot study of a 'Directory' of life-limiting conditions. BMC Palliat Care 2013;12:43. https://doi.org/10.1186/1472-684X-12-43
- TFSL: Help for families. Support in your Area [Internet]. Bristol: Together for Short Lives; 2018 [cited 2019 Jan 29]. Available from: https://www2.togetherforshortlives.org.uk/portal/public/volunteer/List.aspx?page=3&skill =Children%27s+hospice+service.
- Hunt A, Coad J, West E, Hex N, Staniszewska S, Hacking S. et al. The big study for life-limited children and their families [Internet]. Bristol: Together for short lives; 2012. [cited 2019 Jan 23]. Available from: https://www.medicalmediation.org.uk/assets/The_Big_Study_-_An_overview__Oct_2012_.pdf.
- David H. Palliative & Hospice Care in United States. International Symposium on Hospice & Palliative Care; 2016 Dec 7; Seoul, Korea. Seoul: Korean Society for Hospice and Palliative Care; 2016.
- Field MJ. When children die: improving palliative and end-of-life care for children and their families. Washington, D.C.:National Academy Press;2003.
- DCPPCC. NHPCO: Concurrent Care for Children Implementation Toolkit: Section 2312 of the Patient Protection and Affordable Care Act [Internet]. Washington, D.C.: District of Columbia Pediatric Palliative Care Collaborative; National Hospice and Palliative Care Organization; 2013 [cited 2019 Jan 9]. Available from: https://www.nhpco.org/wp-content/uploads/2019/06/CCCR_Toolkit.pdf.
- CMS: An Overview of the Medicaid Hospice Benefit. Hospice Toolkit [Internet]. Baltimore, MD: Centers for Medicare and Medicaid Services; 2016 [cited 2019 Jan 28]. Available from: https://www.cms.gov/Medicare-Medicaid-Coordination/Fraud-Prevention/Medicaid-Integrity-Education/Downloads/hospice-overviewbooklet.pdf.
- [No authors listed]. American Academy of Pediatrics. Committee on Bioethics and Committee on Hospital Care. Palliative care for children. Pediatrics 2000;106(2 Pt 1):351-7. https://doi.org/10.1542/peds.106.2.351
- Bona K, Bates J, Wolfe J. Massachusetts' pediatric palliative care network: successful implementation of a novel state-funded pediatric palliative care program. J Palliat Med 2011;14:1217-23. https://doi.org/10.1089/jpm.2011.0070
- Feudtner C, Christakis DA, Connell FA. Pediatric deaths attributable to complex chronic conditions: a population-based study of Washington State, 1980-1997. Pediatrics 2000;106(1 Pt 2):205-9.
- Feudtner C, Womer J, Augustin R, Remke S, Wolfe J, Friebert S, et al. Pediatric palliative care programs in children's hospitals: a cross-sectional national survey. Pediatrics 2013;132:1-8. https://doi.org/10.1542/peds.2013-0116
- CMS: Hospice Quality Reporting [Internet]. Baltimore, MD: Centers for Medicare and Medicaid Services; 2018 [cited 2019 Jan 12]. Available from: https://www.cms.gov/Medicare/Quality-Initiatives-Patient-Assessment-Instruments/Hospice-Quality-Reporting/index.html.
- MHLW: Study group on further promotion of palliative care in cancer etc [Internet]. Tokyo: Ministry of Health, Labour, and Welfare; 2016 [cited 2019 Jan 18]. Available from: https://www.mhlw.go.jp/stf/shingi/other-kenkou_355813.html.
- Ando K, Nabetani M, Yotani N, Rin T, Sano H. Three years' experience with the first pediatric hospice in Asia. Brain Dev 2017;39:783-90. https://doi.org/10.1016/j.braindev.2017.04.019
- MHLW: About child cancer measures until now [Internet]. Tokyo: Ministry of Health, Labour, and Welfare; 2016 [cited 2019 Jan 13]. Available from: https://www.mhlw.go.jp/file/05-Shingikai-10901000-Kenkoukyoku-Soumuka/0000186546.pdf.
- MHLW: Explanation of amendment of medical care for 2016 [Internet]. Tokyo: Ministry of Health, Labour, and Welfare; 2017 [cited 2019 Jan 13]. Available from: http://www.mhlw.go.jp/file/06-Seisakujouhou-12400000-okenkyoku/00001159 80.pdf.
- MHLW: Basic data of disease prevention such as child specific chronic disease children [Internet]. Tokyo: Ministry of Health, Labour, and Welfare; 2013 [cited 2019 Jan 11]. Available from: https://www.mhlw.go.jp/file/05-Shingikai-12601000-Seisakutoukatsukan-Sanjikanshitsu_Shakaihoshoutantou/0000022423.pdf.
- Information related to Momiji's house [Internet]. Tokyo: Kakaku.com, Inc; 2019 [cited 2019 Jan 13]. Available from: https://kakaku.com/tv/search/keyword=%E3%82%82%E3%81%BF%E3%81%98%E3%81%AE%E5%AE%B6/page=2/.
- JSPM: Registration analysis of palliative care team in 2015 [Internet]. Tokyo: Japan Society for Palliative Medicine; 2016 [cited 2019 Jan 13]. Available from: https://www.jspm.ne.jp/record.html.
- JPM: Pediatric Home Care Review committee Report [Internet]. Tokyo: Japan Medical Association; 2018 [cited 2019 Jan 10]. Available from: http://dl.med.or.jp/dl-med/teireikaiken/20180404_4.pdf.
- History and timeline [Internet]. Singapore: Singapore Hospice Council; 2018 [cited 2019 Jan 27]. Available from: https://singaporehospice.org.sg/aboutus/timeline/.
- Andy H. Learning from diversity: Hospice and Palliative Care in Singapore and Hong Kong. Palliative Social Work Symposium; 2017 Dec 5.
- National Guidelines for Palliative Care [Internet]. Singapore: Singapore Hospice Council; 2015 [cited 2019 Jan 25]. Available from: https://www.singaporehospice.org.sg/en/wp-content/uploads/2018/05/National-Guidelines-for-Palliative-Care-Revised-Ed.-Jan-2015.pdf.
- HCA Annual Report [Internet]. Singapore: HCA Hospice Care; 2016 [cited 2019 Jan 25]. Available from: https://www.hca.org.sg/Upload/AnnualReport/218/HCA-Annual-Report-2015-16.pdf.
- WHO: Integrating palliative care and symptom relief into paediatrics: a WHO guide for health care planners, implementers and managers [Internet]. Geneva: World Health Organization; 2018 [cited 2019 Jan 25]. Available from: https://apps.who.int/iris/handle/10665/274561.
- Section on Hospice and Palliative Medicine and Committee on Hospital. Pediatric palliative care and hospice care commitments, guidelines, and recommendations. Pediatrics 2013;132:966-72. https://doi.org/10.1542/peds.2013-2731
- Wood F, Simpson S, Barnes E, Hain R. Disease trajectories and ACT/RCPCH categories in paediatric palliative care. Palliat Med 2010;24:796-806. https://doi.org/10.1177/0269216310376555
- Bogetz JF, Friebert S. Defining success in pediatric palliative care while tackling the quadruple aim. J Pallit Med 2017;20:116-9. https://doi.org/10.1089/jpm.2016.0389
Cited by
- A Network Analysis of Research Topics and Trends in End-of-Life Care and Nursing vol.18, pp.1, 2021, https://doi.org/10.3390/ijerph18010313