Journal of the Korea Convergence Society (한국융합학회논문지)

Korea Convergence Society (한국융합학회)
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The relationships among health related quality of life and uncertainty in adult patients with congenital heart diseases

성인 선천성 심장 질환자의 삶의 질과 불확실성간의 관계

  • Jang, Youha (Department of pediatric nursing, Asan Medical Center) ;
  • Shin, Nayeon (Department of nursing, Bundang CHA Hospital)
  • 장유하 (서울 아산병원 어린이병원 간호팀) ;
  • 신나연 (분당차병원 간호국)
  • Received : 2018.12.31
  • Accepted : 2019.03.20
  • Published : 2019.03.28
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Abstract

Purpose: The purpose of this study was to determine the relationships among health related quality of life and uncertainty in adult patients with congenital heart diseases. Methods: The subjects were 136 adult congenital heart disease patients at the congenital heart center out-patient clinic of the A General Hospital in S city. Data were analyzed using descriptive statistics, t-test, ANOVA, Pearson's correlation coefficient and multiple regression. Results: There were significant negative correlations of quality of life with general motor function area and uncertainty. Among predictors, gross motor(${\beta}=-.38$) and daily activity (${\beta}=-.21$) had statistically significant influences on uncertainty(F=6.15, p=.018). Conclusion: Nursing interventions to promote gross motor and daily activity might be essential for adult patients with congenital heart disease in order to reduce uncertainty.

본 연구의 목적은 성인 선천성 심장 질환자의 불확실성과 삶의 질 간의 관계를 파악하기 위한 서술적 상관 관계연구이다. S시에 있는 종합 병원의 성인 선천성 심장 질환자 136명을 대상으로 하였다. 삶의 질은 불확실성과 대근육 운동기능 영역(r=-.15, p=.041), 인지(r=-18, p=.014), 통증(r=-.14, p=.045), 일상 생활(r=-.15, p=.039), 활력(r=-.16, p=.029)에서 모두 음의 상관관계가 있었다. 성인 선천성 심장 질환자의 대근육 운동 기능 영역, 일상 생활을 투입한 회귀모형은 유의한 것으로 나타났으며(F=6.15, p=.018), 모형의 설명력은 22.0%였다. 이를 통해 성인 선천성 심장 질환자의 불확실성을 개선시키기 위해서는 대근육 운동 기능 영역 및 일상 생활 기능을 증진시킬 수 있는 중재 프로그램이 제공되어야 할 필요가 있음을 알 수 있었다.

Keywords

Table 1. General and disease related characteristicsof participants

OHHGBW_2019_v10n3_347_t0001.png 이미지

Table 2. Degree of quality of life and uncertainty

OHHGBW_2019_v10n3_347_t0002.png 이미지

Table 3. Correlations between quality of life and uncertainty

OHHGBW_2019_v10n3_347_t0003.png 이미지

Table 4. Influencing Factors on Uncertainty

OHHGBW_2019_v10n3_347_t0004.png 이미지

References

  1. K. J. Guleserian. (2011). Adult Congenital Heart Disease: Surgical Advances and Options. Progress in Cardiovascular Disease, 53(4), 254-64. DOI: 10.1016/j.pcad.2010.12.005
  2. A. J. Marelli, R. Ionescu-Ittu, A. S. Mac-kie, L. Guo, N. Dendukuri & M. Kaouache. (2014). Lifetime prevalence of congenital heart disease in the general population from 2000 to 2010. Circulation, 130(90), 749-56. DOI: 10.1161/CIRCULATIONAHA.113.008396
  3. T. van der Bom, B. J. Bouma, F. J. Meij-boom, A. H. Zwinderman & B. J. Mulder. (2012). The prevalence of adult congeni-tal heart disease, results from a systematic review and evidence based calculation. American Heart Journal, 164(4), 568-75. DOI: 10.1016/j.ahj.2012.07.023.
  4. G. B. Kim. (2014). Psychosocial adjustment and quality of life of adolescents and adults with congenital heart disease. Korean Journal of Pediatrics, 57(6), 257-63. DOI: 10.3345/kjp.2014.57.6.257. Epub 2014 Jun 30.
  5. T. Fteropoulli, J. Stygall, S. Cullen, J. Deanfield & S. P. Newman. (2013). Quality of life of adult congenital heart disease patients:a systematic review of the literature. Cardiology in the Young, 23(4), 473-85. DOI: 10.1017/S1047951112002351
  6. C. A. Chen, S. C. Liao, J. K. Wang, C. I. Chang, I. S. Chiu, Y. S. Chen, et al. (2011). Quality of life in adults with congenital heart disease: biopsychosocial determinants and sex-related differences. Heart, 97(1), 38-43. DOI: 10.1136/hrt.2010.200709. Epub 2010 Oct 26
  7. M. M. Mokhles, P. C. van de Westijne, P. L. de Jong, M. Witsenburg, J. W. Roos-Hesselink, J. J. M. Takkenberg, et al.(2011). Clinical outcome and health-related quality of life after right-ventricular out- flow-tract reconstruction with an allograft couduir. European Journal of Cardiothoracic Surgery, 40(3), 571-8. DOI: 10.1016/j.ejcts.2010.10.023
  8. D. Overgaard, A. M. Schrader, K. H. Lis-by, C. King, R. F. Christensen, H. F. Jen- sen, et al. (2011). Patient-reported outcom- es in adult survivors with single-ventricle physiology. Cardiology, 120(1), 36-42. DOI: 10.1159/000333112
  9. A. M. Silva, C. Vaz, M. E. Areias, D. Vieira, C. Proenca, V. Viana, et al. (2011). Quality of life of patients with congenital heart disease. Cardiology in the Young, 21(6), 670-6. DOI: 10.1017/S1047951111000576. Epub 2011 Jun 8
  10. F. M. Teixeira, R. M. Coelho, C. Proenca, A. M. Silva, D. Vieira, C. Vaz, et al.(2011). Quality of life experienced by adolescents and young adults with congenital heart disease. Pediatric Cardiology, 32(8), 1132-1138. DOI: 10.1007/s00246-011-0039-0. Epub 2011 Jun 28
  11. M. Vigl, E. Niggemeyer, A. Hager, G. Schwedler, S. Kropf & U. Bauer. (2011). The importance of socio-demographic factors for the quality of life of adults with congenital heart disease. Quality of Life Research, 20(2), 169-77. DOI: 10.1007/s11136-010-9741-2. Epub 2010 Nov2.
  12. T. Cotts, S. Malviya & C. Goldberg. (2012). Quality of life and perceived health status in adults with congenitally corrected transposition of the great arteries. The Journal of Thoracic and Cardiovascular Surgery, 143(4), 885-90. DOI: 10.1016/j.jtcvs.2011.08.031. Epub 2011 Sep 28
  13. J. Muller, J. Hess & A. Hager. (2012). Daily physical activity in adults with congenital heart disease is positively correlated with exercise capacity but not with quality of life. Clinical Research in Cardiology, 101(1), 55-61. DOI: 10.1007/s00392-011-0364-6. Epub 2011 Sep 21.
  14. B. Esalmi, G. Macassa, O. Sudin, H. R. Khankeh & J. J. F. Soares.(2015). Quality of life and life satisfaction among adults with and without congenital heart disease in a developing country. European Journal of Preventive Cardiology, 22(2), 169-79. DOI: 10.1177/2047487313514017.Epub2013Nov 18.
  15. P. Avila, L. A. Mercier, A. Dore, F. Marcotte, F. P. Mongeon, R. Ibrahim, et al.(2014). Adult congenital heart disease:A growing epidemic. Canadian Journal of Cardiology. 30(12 Suppl), S410-9. DOI: 10.1016/j.cjca.2014.07.749. Epub 2014 Sep 28.
  16. M. H. Mishel & C. J. Braden(1988). Finding meaning; Antecedents of uncertainty in illness. Nursing Research, 37(2), 98-103.
  17. M. H. Mishel. (1997). Uncertainty in acute illness. Annual Review of Nursing Research, 15, 57-80. https://doi.org/10.1891/0739-6686.15.1.57
  18. K. Madhavi, A. Abhachandra & G. Maiya. (2011). Influence of graded aerobic exercise in post-surgical adult acyanotic congenital heart disease- a prospective randomized clinical trial. Indian Journal of Physiotherapy and Occupational Therapy, 5(4), 87-94.
  19. C. A. Warnes, R. Liberthson, G. K. Danielson, A. Dore, L. Harris & J. I. Hoffman. (2001). Task Force 1: The changing profile of congenital heart disease in adult life. Journal of the American College of Cardiology, 37(5), 1170-5. https://doi.org/10.1016/S0735-1097(01)01272-4
  20. F. H. Rodriguez, D. S. Moodiem, M. Neeland, G. J. Adams & C. S. Snyder.(2012). Identifying arrhythmias in adults with congenital heart disease by 24-hambulatory electrocardiography. Pediatric Cardiology, 33(4), 591-5. DOI: 10.1007/s00246-012-0183-1. Epub 2012 Feb 9.
  21. R. J. Czosek, J. Anderson, P. R. Khoury, T. K. Knilans, D. S. Spar & B. S. Marino. (2013). Utility of ambulatory monitoring in patients with congenital heart disease. The American Journal of Cardiology, 111(5), 723-30. DOI: 10.1016/j.amjcard.2012.11.021. Epub 2012 Dec 13.
  22. A. C. Zomer, I. Vaartjes, D. E. Grobbee, & B. J. M. Mulder. (2013). Heart failure admission in adults with congenital heart disease: risk factors and prognosis. International Journal of Cardiology, 168(3) 2487-93. DOI: 10.1016/j.ijcard.2013.03.003. Epub 2013 Apr 18.
  23. E. V. Krieger & A. M. Valente. (2014). Heart failure treatment in adults with congenital heart disease: where do we stand in 2014? Heart, 100(17), 1329-34. DOI: 10.1136/heartjnl-2014-305667. Epub 2014 Jun 12.
  24. A. Marelli. (2012). The future of ACHD care symposium: changing demographics of congenital heart disease. Progress in Pediatric Cardiology, 34(2), 85-90. DOI: 10.1016/j.ppedcard.2012.08.005
  25. S. Apers, K. Luyckx & P. Moons. (2013). Quality of life in adult congenital heart disease: what do we already know and what do we still need to know? Current Cardiology Reports, 15(10), 407. DOI: 10.1007/s11886-013-0407-x.
  26. J. Bruil, M. Fekkes, T. Vogels & G. H. W. Verrips. TAAQOL Manual. Leiden Center for Child Health and Pediatrics LUMC-TNO 2004.
  27. J. P. Riley, H. Habibi, W. Banya, M. A. Gatzoulis, M. Lau-Walker & M. R. Cowie. (2012). Education and support needs of the older adult with congenital heart disease. Journal of Advanced Nursing, 68(5), 1050-60. DOI: 10.1111/j.1365-2648.2011.05809.x. Epub 2011 Aug 16.
  28. M. J. Lee & Y. H. Kang. (2009). Uncertainty, appraisal of uncertainty and health related quality of life in recovering clients discharged from hospital after CABG. Health & Nursing, 21(1), 49-63.
  29. Q. Wang, M. Hay, D. Clarke & S. Menahem. (2014). Associations between knowledge of disease, depression and anxiety, social support, sense of coherence and optimism with health-related quality of life in an ambulatory sample of adolescents with heart disease. Cardiology in the Young, 24(1), 126-33. DOI: 10.1017/S1047951113000012. Epub 2013 Feb 12.
  30. J. Jackson, B. Misiti, J. A. Bridge, C. J. Daniels. & K. Vannatta. (2015). Emotional functioning of adolescents and adults with congenital heart disease: a meta-Analysis. Congenital Heart Disease, 10(1), 2-12. DOI: 10.1111/chd.12178. Epub 2014 Feb 26.