DOI QR코드

DOI QR Code

뇌성마비 환아 중증도별 시각화척도, 시간교환법, EQ-5D-Y Proxy를 이용한 삶의 질 측정

Measuring Quality of Life in Cerebral Palsy Children According to the Severity Using the Visual Analogue Scale, Time Trade-Off, and EQ-5D-Y Proxy

  • 이고은 (국립재활원 한방재활의학과) ;
  • 김남권 (부산대학교 한의학전문대학원 한방안이비인후피부과) ;
  • 윤영주 (동서협진의학) ;
  • 왕혜민 (전북대학교 통계학과) ;
  • 김정훈 (우석대학교 근거중심보건의료연구협력센터) ;
  • 이동효 (우석대학교 한의과대학 한방안이비인후피부과)
  • Lee, Go-Eun (Department of Oriental Rehabilitation, Korean National Rehabilitation Center) ;
  • Kim, Nam Kwen (Department of Ophthalmology & Otolaryngology & Dermatology, School of Korean Medicine, Pusan National University) ;
  • Yun, Young Ju (Department of Integrative Medicine, School of Korean Medicine, Pusan National University) ;
  • Wang, Hye Min (Department of Statistics, Chonbuk National University) ;
  • Kim, Jeong Hun (Evidence-based Healthcare Research Collaborating Center, Woosuk University) ;
  • Lee, Dong Hyo (Department of Ophthalmology & Otolaryngology & Dermatology, School of Korean Medicine, Woosuk University)
  • 투고 : 2017.04.17
  • 심사 : 2017.06.13
  • 발행 : 2017.06.30

초록

Objectives: To measure the quality of life in patients according to virtual cerebral palsy severity by using the Korean version of EQ-5D-Y proxy, Visual Analogue Scale (VAS), and Time Trade-Off method (TTO). Methods: The study was conducted in parents of children and adolescents aged 4 to 15 years in Seoul. We analyzed the difference in the utility value according to five levels of cerebral palsy severity in the Gross Motor Function Classification System (GMFCS) and test-retest reliability. Results: 1. There were significant differences in VAS, TTO, and EQ-5D-Y proxy according to the cerebral palsy severity (p<.001). 2. VAS was significantly different according to the respondent's visit to the medical institution, the presence of disease in the respondent, a visit to the child's medical institution, the age of the child, and the sex of the child. The value of TTO was significantly different according to the respondent's visit to the medical institution, respondent's sex, and the age of the child. Also, EQ-5D-Y proxy was significantly different according to the age of the child. 3. Intraclass correlation coefficient values were more than 0.6 for both VAS and TTO at all stages. But for the EQ-5D-Y proxy, the value was less than 0.6 at all stages. Conclusions: The quality of life assessment using EQ-5D-Y proxy showed significant differences in the severity of cerebral palsy. However, large-scale studies using EQ-5D-Y proxy are needed because of low test-retest reliability.

키워드

참고문헌

  1. Park CI, Moon JH. Rehabilitation Medicine. Seoul:Hanmi medicine. 2007:936.
  2. Peter R, Nigel P, Alan L, Murray G, Martin B, Diane D, Bernard D, Bo J. A report: the definition and classification of cerebral palsy April. Dev Med Child Neurol. 2006. 2007;109:8-14.
  3. Else O, Marij E R. Hendrik J S. The epidemiology of cerebral palsy: incidence, impairments and risk factors. Disability and rehabilitation. 2006;28(4):183-91. https://doi.org/10.1080/09638280500158422
  4. Maryam O, Franzina C, Jonathan D, Nathalie J, Tamara P. An update on the prevalence of cerebral palsy: a systematic review and meta‐analysis. Developmental Medicine & Child Neurology. 2013;55(6):509-19. https://doi.org/10.1111/dmcn.12080
  5. Geraldine S, Karla H, Mary J P, Jackie P, Abbi G, Jane H, Jennifer J K. Children with cerebral palsy: severity and trends over time. Paediatric and perinatal epidemiology. 2009;23(6):513-21. https://doi.org/10.1111/j.1365-3016.2009.01060.x
  6. Novak, I. Evidence-based diagnosis, health care, and rehabilitation for children with cerebral palsy. Journal of child neurology. 2014;29(8):1141-56. https://doi.org/10.1177/0883073814535503
  7. David S, Robert S, Robert R, Lewis R, Steven D. Survival in cerebral palsy in the last 20 years: signs of improvement? Developmental Medicine & Child Neurology. 2007;49(2):86-92. https://doi.org/10.1111/j.1469-8749.2007.00086.x
  8. Reading, R. Survival at 19 years of age in a total population of children and young people with cerebral palsy. Child: care, health and development. 2012;38(2):300-1.
  9. Antonio T, Teresa V, Antonella D L, Luigi R. Multidisciplinary rehabilitation for patients with cerebral palsy: im - proving long-term care. Journal of Multidisciplinary Healthcare. 2016;9:455. https://doi.org/10.2147/JMDH.S88782
  10. Yun YJ, Kim SC, Yu SA. Three Cases of Developmental Delay Due to Cerebral Palsy Treated with Korean Medicine. J. Pediatr Korean Med. 2017;31(1):82-91. https://doi.org/10.7778/jpkm.2017.31.1.082
  11. Yu SA, Cho SW, Lee SY. A literature study on acupuncture for spastic cerebral palsy. J Pediatr Korean Med. 2015; 29(4):108-18. https://doi.org/10.7778/jpkm.2015.29.4.108
  12. Jeong MJ, Lim JH, Hwangbo M, Kim KB, Yun YJ. A study on the utilization of Korean medicine & other parallel treatments for neurological disease children & adolescents treated with western medicine. J Pediatr Korean Med. 2012;26(2):72-84. https://doi.org/10.7778/jpkm.2012.26.2.072
  13. Michael H L, Peter L R, Dianne J R, RObert J P. Quality of life among adolescents with cerebral palsy: what does the literature tell us? Developmental Medicine & Child Neurology. 2007;49(3):225-31. https://doi.org/10.1111/j.1469-8749.2007.00225.x
  14. Elise D, Amy S, Elizabteh W, Andrew M, Dinah R, Roslyn B, Kerr H G. Quality of life of adolescents with cerebral palsy: perspectives of adolescents and parents. Developmental Medicine & Child Neurology. 2009;51(3):193-9. https://doi.org/10.1111/j.1469-8749.2008.03194.x
  15. Cho SM, Oh DW, Kim SY. Comparison of Parent-reported Quality of Life Associated With Functional Levels in School-aged Children With Cerebral Palsy. J. of Korean Society of Occupational Therapy. 2009;17(1):29-37.
  16. Lee BH, Song CH, Kim NJ, Baek JY. A Study of the Health Related Quality of Life in School-Aged Children with Severe Cerebral Palsy. J. of Coaching Development. 2007;9(1):207-17.
  17. Nancy J D, Richard B. EQ-5D and the EuroQol Group: Past, Present and Future. Applied Health Economics and Health Policy. 2017:1-11.
  18. Nora W, Xavier B, Gouke B, Kristina B, Gulia C, Nancy D, Ann-Charlotte E, Wolfgang G, Narcis G, Michael H. Development of the EQ-5D-Y: a child-friendly version of the EQ-5D. Quality of Life Research. 2010;19(6):875-86. https://doi.org/10.1007/s11136-010-9648-y
  19. Robert J P, Steven E H, Peter L R, Dianne J R. Validation of a model of gross motor function for children with cerebral palsy. Physical therapy. 2000;80(10):974.
  20. Ellen W, Peter R. The gross motor function classification system for cerebral palsy: a study of reliability and stability over time. Developmental Medicine & Child Neurology. 2000;42(05):292-6. https://doi.org/10.1017/S0012162200000529
  21. Im SJ, Kang HY, Kang YJ, Lee BS, Park HM, Shin DH. Measuring Utility for Menopausal Symptoms Based on Time Trade-Off and Visual Analogue Scale Methods. J. of Health Policy and Management. 2007;17(4):113-33. https://doi.org/10.4332/KJHPA.2007.17.4.113
  22. Lee JW, Chung EJ, Lee BH. A Study of the Quality of Life in School-aged Children with Cerebral Palsy. Journal of Special Education & Rehabilitation Science. 2013;52(2): 291-306.
  23. Cho SM, Oh DW, Kim SY, Choi JD. A Study of the Quality of Life and Participation in Everyday Activities for Schoolaged Children With Cerebral Palsy.The Journal of Korean Society of Occupational Therapy. 2010;18(2):95-106.
  24. Lee BH, Ko JY. Influential Factors for the Health Related Quality of Life in Children with Mental Retardation and Cerebral Palsy. Journal of Special Education & Rehabilitation Science. 2010;49(2):105-26.
  25. Bjornson, KF, McLaughlin JF. The measurement of healthrelated quality of life (HRQL) in children with cerebral palsy. European Journal of Neurology. 2001;8(s5): 183-93. https://doi.org/10.1046/j.1468-1331.2001.00051.x
  26. Saroj S, Peter L R, David F, Elizabeth B, William F, Barbara L S, Lorraine H. Parental perspectives of the health status and health-related quality of life of teen-aged children who were extremely low birth weight and term controls. Pediatrics. 2000; 105(3):569-74. https://doi.org/10.1542/peds.105.3.569
  27. James W V, Tasha M B, Sandra A S, Kanela H, Susan J B, Vanessa L M, Henry G C. Health-related quality of life of children and adolescents with cerebral palsy: hearing the voices of the children. Developmental Medicine & Child Neurology. 2005;47(09):592-7. https://doi.org/10.1111/j.1469-8749.2005.tb01209.x
  28. Davis, E, Mackinnon A, Waters E. Parent proxy-reported quality of life for children with cerebral palsy: is it related to parental psychosocial distress? Child: care, health and development. 2012;38(4):553-60. https://doi.org/10.1111/j.1365-2214.2011.01267.x