대한간호학회지 (Journal of Korean Academy of Nursing)

한국간호과학회 (Korean Society of Nursing Science)
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HIV 감염인 남편과 살아가는 감염되지 않은 여성의 삶의 경험: 현상학적 연구

Life Experiences of Uninfected Women Living with HIV-Infected Husbands: A Phenomenological Study

  • 서명희 (군산간호대학교 간호학과) ;
  • 정석희 (전북대학교 간호대학.간호과학연구소)
  • Seo, Myoung Hee (Department of Nursing, Kunsan College of Nursing) ;
  • Jeong, Seok Hee (College of Nursing.Research Institute of Nursing Science, Chonbuk National University)
  • 투고 : 2017.08.07
  • 심사 : 2017.11.19
  • 발행 : 2017.12.31
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초록

Purpose: This study aimed to understand the meaning and essence of the life experiences of uninfected women living with HIV-infected husbands. Methods: This qualitative study adopted van Manen's hermeneutic phenomenological method. Study participants were 8 females whose husband had been diagnosed with HIV for longer than 6 months, who had known about their husband's infection for more than 6 months, who were in a legal or common-law marriage and were living with their husbands at the time of interview for this study, and whose HIV antibody test results were negative. Data were collected from in-depth individual interviews with the participants from May to August 2016, and from related idiomatic expressions, literature, artwork, and phenomenological references. Results: The following essential themes were identified regarding the life experiences of uninfected women living with HIV-infected husbands: 'experiencing an abrupt change that came out of the blue and caused confusion', 'accepting one's fate and making desperate efforts to maintain one's family', 'dealing with a heavy burden alone', 'experiencing the harsh reality and fearful future', and 'finding consolation in the ordeal'. Conclusion: This study provided a holistic and in-depth understanding of the meaning and essence of the life experiences of uninfected women living with HIV-infected husbands. Thus, this study recognizes these unnoticed women as new nursing subjects. Further, the present findings can be used as important basic data for the development of nursing interventions and national policy guidelines for uninfected women living with HIV-infected husbands.

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참고문헌

  1. Korea Centers for Disease Control and Prevention & Korean Federation for HIV/AIDS Prevention. National survey on HIV/AIDS knowledge, attitudes, beliefs, and behaviors in the general population, 2015. Seoul: Hanyang University Industry-University Cooperation Foundation; 2015 Dec. Report No: None.
  2. Judgeo N, Moalusi KP. My secret: The social meaning of HIV/AIDS stigma. SAHARA J: Journal of Social Aspects of HIV/AIDS. 2014;11(1):76-83. https://doi.org/10.1080/17290376.2014.932302
  3. Williams RJ, Stafford WB. Silent casualties: Partners, families, and spouses of persons with AIDS. Journal of Counseling and Development. 1991;69(5):423-427. https://doi.org/10.1002/j.1556-6676.1991.tb01538.x
  4. Joo HJ. The experiences of the families of persons with AIDS. The Journal of Korean Psychiatric and Mental Health Nursing Academic Society. 2009;18(1):41-50.
  5. Bogart LM, Cowgill BO, Kennedy D, Ryan G, Murphy DA, Elijah J, et al. HIV-related stigma among people with HIV and their families: A qualitative analysis. AIDS and Behavior. 2008;12(2):244-254. https://doi.org/10.1007/s10461-007-9231-x
  6. Korea Center for Disease Control and Prevention. Annual report on the notified HIV/AIDS in Korea, 2016. Cheongju: Korea Center for Disease Control and Prevention; 2017 Aug. Report No.: 117085.
  7. Rispel LC, Cloete A, Metcalf CA. 'We keep her status to ourselves': Experiences of stigma and discrimination among HIVdiscordant couples in South Africa, Tanzania and Ukraine. SAHARA J: Journal of Social Aspects of HIV/AIDS. 2015;12(1):10-17. https://doi.org/10.1080/17290376.2015.1014403
  8. Asiedu GB, Myers-Bowman KS. Gender differences in the experiences of HIV/AIDS-related stigma: A qualitative study in Ghana. Health Care for Women International. 2014;35(7-9):703-727. https://doi.org/10.1080/07399332.2014.895367
  9. Kipp W, Tindyebwa D, Rubaale T, Karamagi E, Bajenja E. Family caregivers in rural Uganda: The hidden reality. Health Care for Women International. 2007;28(10):856-871. https://doi.org/10.1080/07399330701615275
  10. Krishna VAS, Bhatti RS, Chandra PS, Juvva S. Unheard voices: Experiences of families living with HIV/AIDS in India. Contemporary Family Therapy. 2005;27(4):483-506. https://doi.org/10.1007/s10591-005-8235-9
  11. Nilmanat K, Street A. Search for a cure: Narratives of Thai family caregivers living with a person with AIDS. Social Science & Medicine. 2004;59(5):1003-1010. https://doi.org/10.1016/j.socscimed.2003.12.003
  12. D'cruz P. Moments of truth: The experiences of wives in HIV/AIDS affected nuclear households in Mumbai. Journal of Comparative Family Studies. 2003;34(2):255-281.
  13. Yang Y, Lewis FM, Wojnar D. Life changes in women infected with HIV by their husbands: An interpretive phenomenological study. Journal of the Association of Nurses in AIDS Care. 2015;26(5):580-594. https://doi.org/10.1016/j.jana.2015.05.008
  14. van Manen M. Researching lived experience: Human science for an action sensitive pedagogy. Albany (NY): State University of New York Press; 1990. p. 1-173.
  15. Lincoln YS, Guba EG. Naturalistic inquiry. Newbury park (CA): Sage; 1985. p. 289-331.
  16. Paik J. The changing nature in the Korean patriarchal family: Continuity and change. Hyonsang-gwa-Insik. 2009;33(1-2):204-224.
  17. Shin S. A study on health related quality of life in people living with HIV/AIDS in Korea. Health and Social Welfare Review. 2011;31(4):424-453. https://doi.org/10.15709/hswr.2011.31.4.424
  18. Lee IJ, Rhee YS. The moderating effects of social support on the relationship between stigma and quality of life in people living with HIV/AIDS. Korean Journal of Social Welfare Studies. 2013;44(3):347-369. https://doi.org/10.16999/kasws.2013.44.3.347
  19. Korean Statistical Information Service. Survey on the price/household income and expenditure [Internet] Daejeon: Statistics Korea; c2011 [cited 2017 Nov 15]. Available from: http://bit.ly/2AItZE2.
  20. Korea Center for Disease Control and Prevention. 2017 HIV/AIDS manage guideline. Cheongju: Korea Center for Disease Control and Prevention; 2016. p. 61-64.
  21. Kipp W, Matukala Nkosi T, Laing L, Jhangri GS. Care burden and self-reported health status of informal women caregivers of HIV/AIDS patients in Kinshasa, Democratic Republic of Congo. AIDS Care. 2006;18(7):694-697. https://doi.org/10.1080/13548500500294401
  22. Wight RG, Beals KP, Miller-Martinez D, Murphy DA, Aneshensel CS. HIV-related traumatic stress symptoms in AIDS caregiving family dyads. AIDS Care. 2007;19(7):901-909. https://doi.org/10.1080/09540120601163292
  23. Kim J, Shin G, Park YM, Lim EJ, Nam HA. Experience of people living with HIV working as caregivers for AIDS patients. Journal of Korean Academy of Psychiatric and Mental Health Nursing. 2011;20(4):334-344. https://doi.org/10.12934/jkpmhn.2011.20.4.334
  24. Gordon-Garofalo VL, Rubin A. Evaluation of a psychoeducational group for seronegative partners and spouses of persons with HIV/AIDS. Research on Social Work Practice. 2004;14(1):14-26. https://doi.org/10.1177/1049731503257864
  25. Stewart MJ, Hart G, Mann K, Jackson S, Langille L, Reidy M. Telephone support group intervention for persons with hemophilia and HIV/AIDS and family caregivers. International Journal of Nursing Studies. 2001;38(2):209-225. https://doi.org/10.1016/S0020-7489(00)00035-3
  26. Singh D, Chaudoir SR, Escobar MC, Kalichman S. Stigma, burden, social support, and willingness to care among caregivers of PLWHA in home-based care in South Africa. AIDS Care. 2011;23(7):839-845. https://doi.org/10.1080/09540121.2010.542122
  27. Vithayachockitikhun N. Family caregiving of persons living with HIV/AIDS in Thailand: Caregiver burden, an outcome measure. International Journal of Nursing Practice. 2006;12(3):123-128. https://doi.org/10.1111/j.1440-172X.2006.00560.x
  28. Ministry of Government Legislation. Act on decisions on life-sustaining treatment for patients in hospice and palliative care or at the end of life [Internet]. Sejong: The National Law Information Center; c2016 [cited 2016 Dec 28]. Available from: http://bit.ly/21Q0cV5.
  29. Kim DG. Pain and tragedy in Nietzsche's philosophy: From the viewpoint of cultural philosophy. Philosophical Investigation. 2009;26:139-167.

피인용 문헌

  1. HIV 감염인의 진단 후 치료 시작에 영향을 미치는 요인 vol.29, pp.3, 2017, https://doi.org/10.12799/jkachn.2018.29.3.279