Journal of Hospice and Palliative Care

Korean Society for Hospice and Palliative Care (한국호스피스완화의료학회)
권호 표지
DOI QR코드

DOI QR Code

The Lived Experience of Suffering of Family with Cancer Patients: Parse's Human Becoming Research Method

암환자 가족의 고통체험 - Parse의 인간되어감 연구방법 -

  • Choi, Ye-Sook (Department of Nursing, Daejeon Health Institute of Technology)
  • 최예숙 (대전보건대학교 간호학과)
  • Received : 2015.10.28
  • Accepted : 2016.04.18
  • Published : 2016.06.01
Download PDF
⟨ Previous Next ⟩

Abstract

Purpose: The purpose of this study was to discover the structure of the lived experience of suffering of families with cancer patients to develop a theoretical foundation that can be used to reinforce nursing practice for cancer patients and their families. Methods: A qualitative study was performed using Parse's research method. Participants were four families with cancer patients. From February 2009 through April 2010, data were collected via dialogical-engagement between participants and the researcher and analyzed through the extraction-synthesis and heuristic interpretation processes. Results: The structure was identified as follows. The families' lived experience of suffering was a process through which they experienced a psychological shock of cancer diagnosis and difficulties associated with reshuffled roles among family members, and made efforts to care for the patients. Conclusion: Amidst sadness, pain, anxiety, guilt, fear and agony, the families focused on the human-health-universe aspect and found meanings of their experiences as love, triumphant, responsibility and hope. As such, the study results suggest that the suffering of families with cancer patients is a human becoming process of positive transformation.

목적: 본 연구의 목적은 암환자 가족의 고통체험의 구조를 밝혀 이론적 기초를 개발하고 암환자 및 그 가족을 위한 임상간호에 기여하고자 한다. 방법: 본 연구는 Parse의 인간되어감 연구방법을 적용한 질적 연구이다. 대상자들은 암환자를 돌보고 있는 가족으로 4명이었다. 자료는 2009년 2월부터 2010년 4월까지 연구자와 참여자의 '너와 나'의 관계형성을 통해 수집하였고, 추출-종합과 발견적 해석 단계를 거치는 과정으로 분석하였다. 결과: 분석결과 다음과 같은 구조를 확인하였다: 암환자 가족의 고통 체험은 암 진단으로 인한 충격과 가족관계에서의 역할부담으로 힘겨워하나 정성껏 돌보며 노력하는 과정이었다. 결론: 암환자 가족의 고통체험은 인간-건강-우주의 과정에 초점을 두고 충격과 슬픔, 아픔, 불안, 죄책감, 두려움, 고통의 경험 속에서 사랑, 극복, 책임, 희망을 향해 자신의 경험에 의미를 부여하며 긍정적으로 변형되어가는 인간되어감의 과정으로 확인되었다.

Keywords

References

  1. Statistics Korea. 2013 annual report on cause of death. Daejeon: Statistics Korea;2014.
  2. Jung KW, Won YJ, Kong HJ, Oh CM, Cho HS, Lee DH, et al. Cancer statistics in Korea: incidence, mortality, survival, and prevalence in 2012. Cancer Res Treat 2015;47:127-41. https://doi.org/10.4143/crt.2015.060
  3. Hodges LJ, Humphris GM, Macfarlane G. A meta-analytic investigation of the relationship between the psychological distress of cancer patients and their carers. Soc Sci Med 2005;60: 1-12. https://doi.org/10.1016/j.socscimed.2004.04.018
  4. Yun YH, Rhee YS, Kang IO, Lee JS, Bang SM, Lee WS, et al. Economic burdens and quality of life of family caregivers of cancer patients. Oncology. 2005;68:107-14. https://doi.org/10.1159/000085703
  5. Friedman MM, Bowden VR, Jones EG. Family nursing : research, theory & practice. 5th ed. Upper Saddle River, N. J.: Prentice Hall;2003.
  6. Hwang JG, Kim YH. Family support perceived by cancer patients, family caregivers’ burden and physical & psychological health. J Family Relations 2005;10:173-98.
  7. Han KS, Khim SY, Lee SJ, Park ES, Park YJ, Kim JH, et al. Family functioning and quality of life of the family care-giver in cancer patients. J Korean Acad Nurs 2006;36:983-91. https://doi.org/10.4040/jkan.2006.36.6.983
  8. Cannam C, Acorn S. Quality of life for family caregivers of people with chronic health problems. Rehabil Nurs 1999;24: 192-6, 200. https://doi.org/10.1002/j.2048-7940.1999.tb02176.x
  9. Kim BH, Choi PS. Life experience on the middle age man spouse of terminal cancer patients. Qualitative Research 2000;1: 60-73.
  10. Jang HS, Lee JR, Lee MS, Yun YS, Kim YH. Health promotion behavior, self-efficacy and the role stress of family caregivers who care for hospitalized cancer patients. J Korean Acad Nurs 2000;30:402-12. https://doi.org/10.4040/jkan.2000.30.2.402
  11. Kang KA. Concept analysis and development of suffering: application of hybrid model method. J Nurs Acad Soc 1996;26: 290-303. https://doi.org/10.4040/jnas.1996.26.2.290
  12. Pilkington FB, Kilpatrick D. The lived experience of suffering: a parse research method study. Nurs Sci Q 2008;21:228-37. https://doi.org/10.1177/0894318408319274
  13. Hong BE, Shon EJ. A study on the factors affecting the economic cost of cancer. Korean J Soc Welf Stud 2008;38:193-215.
  14. Parse RR. Nursing science : major paradigms, theories, and critiques. Philadelphia:Saunders;1987.
  15. tvN HumanDocu Sopoong 40, Last Summer. An IH. tvN, Seoul. Aug 6 2008.
  16. Yoon SH. Types of caring for family caregivers of patients with terminal cancer [master's thesis]. Seoul; Hanyang Univ.; 2008. Korean.
  17. Choi JH. Study on psychological and social problems facing primary caregivers while taking care of a terminal cancer patient [master's thesis]. Yongin; Kangnam Univ.; 2003. Korean.
  18. Ben-Zur H, Gilbar O, Lev S. Coping with breast cancer: patient, spouse, and dyad models. Psychosom Med 2001;63:32-9. https://doi.org/10.1097/00006842-200101000-00004
  19. Ahn YJ. Psychological and social needs of the families of cancer patients who are undergoing hospice care [master's thesis]. Seoul; Sogang Univ.; 2003. Korean.
  20. Lee MK, Yoon HS, Choi KW. Factors affecting caregiving burden of the cancer patients’ family caregivers. J Future Social Work Research 2010;1:5-35.
  21. Parse RR. The human becoming modes of inquiry: emerging sciencing. Nurs Sci Q 2005;18:297-300. https://doi.org/10.1177/0894318405380394
  22. Choi ES, Kim KS. Experiences of family caregivers of Patients with Terminal Cancer. J Korean Acad Nurs 2012;42:280-90. https://doi.org/10.4040/jkan.2012.42.2.280

Cited by

  1. 암 환자의 삶의 질에 영향을 미치는 재정 관련 어려움 요인 vol.21, pp.10, 2020, https://doi.org/10.5762/kais.2020.21.10.299