Genomics & Informatics

  • 제11권4호
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  • Pages.218-223
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  • 2013
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  • 1598-866X(pISSN)
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  • 2234-0742(eISSN)
한국유전체학회 (Korea Genome Organization)
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Introduction to International Ethical Standards Related to Genetics and Genomics

  • Yim, Seon-Hee (Department of Medical Education, Integrated Research Center for Genome Polymorphism, The Catholic University of Korea College of Medicine) ;
  • Chung, Yeun-Jun (Department of Microbiology, Integrated Research Center for Genome Polymorphism, MRC, The Catholic University of Korea College of Medicine)
  • 투고 : 2013.10.19
  • 심사 : 2013.11.11
  • 발행 : 2013.12.31
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초록

The rapid advances in genetic knowledge and technology raise various, sometimes unprecedented, ethical dilemmas in the scientific community as well as the public realm. To deal with these dilemmas, the international community has prepared and issued ethical standards in various formats. In this review, seven international standards regarding genetics and genomics will be briefly introduced in chronological order. Critical reflections on them will not be provided in this review, and naturally, they have their own problems and shortcomings. However, a common set of the principles expressed in them will be highlighted here, because they are still relevant, and many of them will be more relevant in the future. Some of the interesting contents will be selected and described. After that, the morality of one recent event related to whole-genome sequencing and person-identifiable genetic data will be explored based on those international standards.

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참고문헌

  1. Aldhous P. Artworks highlight legal debate over 'abandoned' DNA. New Sci 2013;218:12.
  2. The Declaration of Inuyama and reports of the working groups. Hum Gene Ther 1991;2:123-129. https://doi.org/10.1089/hum.1991.2.2-123
  3. Council of Europe. Recommendation No. R(92)3 of the Committee of Ministers to member states on genetic testing and screening for health care purposes. J Int Bioethique 1992;3:255-257.
  4. Council of Europe. Convention for the protection of human rights and dignity of the human being with regard to the application of biology and medicine: convention on human rights and biomedicine. Strasbourg: Council of Europe, 1997. Accessed 2013 Oct 4. Available from: http://conventions.coe. int/Treaty/en/Treaties/Html/164.htm.
  5. United Nations Educational, Scientific and Cultural Organization. Universal declaration on the human genome and human rights. Paris: UNESCO, 1997. Accessed 2013 Oct 5. Available from: http://www.unesco.org/new/en/social-andhuman-sciences/themes/bioethics/human-genome-and-human-rights.
  6. United Nations Educational, Scientific and Cultural Organization. International declaration on human genetic data. Paris: UNESCO, 2003. Accessed 2013 Oct 5. Available from: http://www.unesco.org/new/en/social-and-human-sciences/themes/bioethics/human-genetic-data/.
  7. United Nations Educational, Scientific and Cultural Organization. Universal declaration on bioethics and human rights. Paris: UNESCO, 2005. Accessed 2013 Oct 6. Available from: http://www.unesco.org/new/en/social-and-human-sciences/themes/bioethics/bioethics-and-human-rights.
  8. Macpherson CC. Global bioethics: did the universal declaration on bioethics and human rights miss the boat? J Med Ethics 2007;33:588-590. https://doi.org/10.1136/jme.2005.013797
  9. Council of Europe. Additional protocol to the convention on human rights and biomedicine concerning genetic testing for health purposes. Strasbourg: Council of Europe, 2008. Accessed 2013 Oct 3. Available from: http://conventions.coe.int/Treaty/en/Treaties/Html/203.htm.

피인용 문헌

  1. Translational Research: From Biological Discovery to Public Benefit (or Not) vol.2014, pp.2314-7563, 2014, https://doi.org/10.1155/2014/278789
  2. Imagination Laboratory: Making Sense of Bio-Objects in Contemporary Genetic Art vol.64, pp.3, 2016, https://doi.org/10.1111/1467-954X.12387