참고문헌
- Beck, A. T., Weissman, A., Lester, D., & Trexler, L. (1974). The measurement of pessimism: The hopelessness scale. Journal of Consulting and Clinical Psychology, 42(6), 861-865.
- Carvalho, M., Schwartz, M. S., & Swash, M. (1995). Involvement of the external anal sphincter in amyotrophic lateral sclerosis. Muscle Nerve, 18(8), 848-853.
- Cedarbaum, J. M., & Stambler, N. (1997). Performance of the Amyotrophic Lateral Sclerosis Functional Rating Scale(ALSFRS) in multicenter clinical trials. Journal of the Neurological Sciences, 152(Suppl 1), S1-9.
- Cedarbaum, J. M., Stambler, N., Malta, E., Fuller, C., Hilt, D., Thurmond, B., & Nakanishi, A. (1999). The ALSFRS-R: A revised ALS functional rating scale that incorporates assessments of respiratory function. Journal of the Neurological Sciences, 169(1), 13.
- Charles, T., & Swash, M. (2001). Amyotrophic lateral sclerosis: Current understanding. Journal of Neuroscience Nursing, 33(5), 245-253.
- Chi, A., Gauthier, A., Montuschi, A., Calvo, A., Di Vito, N., Ghiglione, P., & Mutani, R. (2004). A cross sectional study on determinants of quality of life in ALS. Journal of Neurology, Neurosurgery, and Psychiatry, 75(11), 1597-1601.
- Chio, A., Gauthier, A., Calvo, A., Ghiglione, P., & Mutani, R. (2005). Caregiver burden and patients' perception of being a burden in ALS. Neurology, 64(10), 1780.
- Cohen, S. R., Mount, B. M., Strobel, M. G., & Bui, F. (1995). The McGill Quality of Life Questionnaire: A measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability. Palliative Medicine, 9(3), 207-219.
- Ferrell, B., Grant, M., Schmidt, G.M., Rhiner, M.,Whitehead, C., Fonbuena, P., et al. (1992). The meaning of quality of life for bone marrow transplant survivors. Part I. The impact of bone marrow transplant on quality of life. Cancer Nursing. 15(3), 153-160.
- Ganzini, L., Johnston, W. S., & Hoffman, W. F. (1999). Correlates of suffering in amyotrophic lateral sclerosis. Neurology, 52(7), 1434-1440.
- Ganzini, L., Johnston, W. S., McFarland, B. H., Tolle, S. W., & Lee, M. A. (1998). Attitudes of patients with amyotrophic lateral sclerosis and their caregivers toward assisted suicide. New England Journal of Medicine, 339(14), 967-973.
- Gauthier, A., Vignola, A., Calvo, A., Cavallo, E., Moglia, C., Sellitti, L., et al. (2007). A longitudinal study on quality of life and depression in ALS patient-caregiver couples. Neurology, 68(12), 923-926.
- Goldstein, L. H., Atkins, L., Landau, S., Brown, R., & Leigh, P. N. (2006). Predictors of psychological distress in carers of people with amyotrophic lateral sclerosis: A longitudinal study. Psychological Medicine, 36(6), 865-876.
- Gordon, P. H., Miller, R. G., & Moore, D. H. (2004). ALSFRS-R. Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders, 5(Suppl 1), 90-93.
- Kim, H. S., Gu, K. S., Yun, H. Y., Lee, G. C., Choi, S. Y., Lee, S. W., et al. (2007). Validation study of the Korean version of the McGill Quality of Life Questionnaire. Palliative Medicine, 21(5), 441-447.
- Kim, S. H. (2006). Diagnosis and Therapeutic Strategies of Amyotrophic Lateral Sclerosis. Hanyang Medical Reviews, 26(1), 44-51.
- Mitsumoto, H. (1997). Diagnosis and progression of ALS: Amyotrophic lateral sclerosis standard of care consensus conference. Neurology, 48(Suppl. 4), S2-S8.
- Mitsumoto, H., & Rabkin, J. G. (2007). Palliative care for patients with amyotrophic lateral sclerosis: "Prepare for the worst and hope for the best". JAMA: The Journal of the American Medical Association, 298(2), 207-216.
- Neudert, C., Wasner, M., & Borasio, G. D. (2004). Individual quality of life is not correlated with health-related quality of life or physical function in patients with amyotrophic lateral sclerosis. Journal of Palliative Medicine, 7(4), 551-557.
- Oh, H., Sin, M.-K., Schepp, K. (in press). Depressive symptoms and functional impairment among amyotrophic lateral sclerosis patients in South Korea. Rehabilitation Nursing Journal.
- Park, K. H., Kim, H. Y., Nam, Y. H., K, Joo, I. S., Sung, J. J., & Kim, S. H. (2006). Preliminary study on clinical characteristics and caregivers' burden of Korean patients with amyotrophic lateral sclerosis: Survey based on database of Korea ALS association. Journal of Korean Neurology Association, 24(3), 252-259.
- Paek, S. (2005). A study on the burden of family caregivers of amyotrophic lateral sclerosis patients. Unpublished master's thesis. Yonsei University, Seoul.
- Plahuta, J. M., McCulloch, B. J., Kasarskis, E. J., Ross, M. A., Walter, R. A., & McDonald, E. R. (2002). Amyotrophic lateral sclerosis and hopelessness: psychosocial factors. Social Science & Medicine, 55(12), 2131-2140.
- Rabkin, J. G., Wagner, G. J., & Del Bene, M. (2000). Resilience and distress among amyotrophic lateral sclerosis patients and caregivers. Psychosomatic Medicine, 62(2), 271.
- Rabow, M. W., Hauser, J. M., & Adams, J. (2004). Supporting family caregivers at the end of life: "They don't know what they don't know". JAMA: Journal of the- American Medical Association, 291, 483-491.
- Robbins, R. A., Simmons, Z., Bremer, B. A., Walsh, S. M., & Fischer, S. (2001). Quality of life in ALS is maintained as physical function declines. Neurology, 56(4), 442-444.
- Shin, M. S., Park, K. B., Oh, K. J., & Kim, Z. S. (1990). A study of suicidal ideation among high school students: The structural relation among depression, hopelessness, and suicidal ideation. Korean Journal of Clinical Psychology, 9(1), 1-19.
- Simmons, Z., Bremer, B. A., Robbins, R. A., Walsh, S. M., & Fischer, S. (2000). Quality of life in ALS depends on factors other than strength and physical function. Neurology, 55(3), 388-392.
- Simmons, Z., Felgoise, S. H., Bremer, B. A., Walsh, S. M., Hufford, D. J., Bromberg, M. B., et al. (2006). The ALSSQOL: Balancing physical and nonphysical factors in assessing quality of life in ALS. Neurology, 67(9), 1659-1664.
- Suh, M. H., & Oh, K. S. (1993). A study of well-being in caregivers caring for chronically ill family members. Journal of Korean Academy of Nursing, 23(3), 467-486.