Satisfaction of Utilization of Physical Therapy and Quality of Life for Caregivers of Cerebral Palsy Children

뇌성마비아동 보호자의 삶의 질 측정과 물리치료 서비스의 만족도 조사

  • Kwon, Mi-Ji (Department of Physical Therapy, Gwangju health college university)
  • 권미지 (광주보건대학 물리치료과)
  • Received : 2009.03.25
  • Accepted : 2009.05.14
  • Published : 2009.06.25

Abstract

Purpose: This study evaluated of quality of life (QOL) and physical therapy satisfaction (PTS) in caregivers of cerebral palsy children. Methods: Eighty six caregivers in Gwang-ju were examined. The caregivers' QOL was assessed through self-reports using the WHO Quality of Life-BREF (WHOQOL-BREF), and the data was analyzed separately for each of its 5 domains. Physical therapy satisfaction was assessed using a self-reported questionnaire and the data was analyzed separately for the 2 domains. The results were processed by the mean and standard deviation and then verified by ANOVA and a t-test to determine the significant differences in the QOL and PTS. The factors affecting the QOL were processed by logistic regression. Results: Life environment domain of the QOL across the caregivers factors showed a statistically significant difference in age at natal, monthly income and education. The birth order in the cerebral palsy child factor showed a significant difference in the general, physical and emotional domain of the QOL. The PTS showed a significant difference in the delivery of therapy domain and in the birth order and walking condition of the environment domain. Caregivers education was found to be associated independently with the life environment domain of QOL. Conclusion: Because the QOL of caregivers is an important treatment goal for children with cerebral palsy, early family intervention should be considered.

Keywords

References

  1. Raina P, O'Donnell M, Rosenbaum P et al. The health and well-being of caregivers of children with cerebral palsy. Pediatrics. 2005;115(6):626-36. https://doi.org/10.1542/peds.2004-1689
  2. Yoo HK. A literature review on the important factors related to the quality of life in families with disabled children. Journal of Special Education & Rehabilitation Science. 2007;46(4):19-54.
  3. Refshauge K, Ada L, Ellis E. Science-based rehabilitation, theories into practice, USA, Elsevier Limited, 2005:6-8.
  4. Arnaud C, White-Koning M, Michelsen SI et al. Parentreported quality of life of children with cerebral palsy in Europe. Pediatrics. 2008;121(1):54-64. https://doi.org/10.1542/peds.2007-0854
  5. Aran A, Shalev RS, Biran G et al. Parenting style impacts on quality of life in children with cerebral palsy. J Pediatr. 2007;151(1):56-60. https://doi.org/10.1016/j.jpeds.2007.02.011
  6. Schor EL. Family pediatrics:report of the task force on the family. Pediatrics. 2003;111(6):1541-71.
  7. Brehaut JC, Kohen DE, Raina P et al. The health of primary caregivers of children with cerebral palsy: how does it compare with that of other Canadian caregivers? Pediatrics. 2004;114(2):182-91. https://doi.org/10.1542/peds.114.1.182
  8. Lee BH, Song CH, Kim NJ et al. A study of the health related quality of life in school-aged children with severe cerebral palsy. Journal of Coaching Development. 2007;9(1):207-17.
  9. Liptak GS, O'Donnell M, Conaway M et al. Health status of children with moderate to severe cerebral palsy. Dev Med Child Neurol. 2001;43(6):364-70. https://doi.org/10.1017/S001216220100069X
  10. Rosenbaum PL, Livingston MH, Palisano RJ et al. Quality of life and health-related quality of life of adolescents with cerebral palsy. Dev Med Child Neurol. 2007;49(7):516-21. https://doi.org/10.1111/j.1469-8749.2007.00516.x
  11. Sohn HS. A study on quality of life index of mothers with cerebral palsy children. Graduate school of health science and management. Yonsei University. Dissertation of Master's Degree. 2005.
  12. Lee SY. The effects of parent''s participation and satisfaction degree on physical therapy for the improvement of motor function in cerebral palsy patients. Wonkwang University. Dissertation of Master's Degree. 2004.
  13. Choi SH, Kim BY, Yoon CY. The effects of disability and family factors on needs of support service and quality of life in parents' children with developmental disabilities. Journal of Special Education & Rehabilitation Science. 2007;46(4):347-64.
  14. Song JY, Lee HJ. Experiences of parent education and needs of physical therapy education for mother who has disabled children. Journal of Special Education & Rehabilitation Science. 2007;46(3):105-22.
  15. Lindblad BM, Rasmussen BH, Sandman PO. Being invigorated in parenthood: parents' experiences of being supported by professionals when having a disabled child. J Pediatr Nurs. 2005;20(4):288-97. https://doi.org/10.1016/j.pedn.2005.04.015
  16. Herbert R, Jamtvedt G, Mead J et al. Practical evidence-based physiotherapy, USA, ELSEVIER Limited, 2005:6-7.