Child Health Nursing Research

Korean Academy of Child Health Nursing (한국아동간호학회)
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Educational Needs of Families of Children Undergoing Hematopoietic Stem Cell Transplantation

조혈모세포이식 아동 가족의 교육 요구

  • Koo, Hyun-Young (Department of Nursing, Catholic University of Daegu) ;
  • Kim, Gwang-Sung (Seoul St. Mary's Hospital affiliated to the Catholic University of Korea) ;
  • Park, Ho-Ran (College of Nursing, The Catholic University of Korea)
  • 구현영 (대구가톨릭대학교 간호학과) ;
  • 김광성 (가톨릭대학부속 서울성모병원) ;
  • 박호란 (가톨릭대학교 간호대학)
  • Published : 2009.04.30
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Abstract

Purpose: This study was done to investigate the educational needs of families of children who underwent hematopoietic stem cell transplantation and to compare these needs with the educational importance as perceived by nurses. Methods: The participants were 44 families of children who underwent hematopoietic stem cell transplantation and 50 nurses who cared for these children. Data was collected through self-report questionnaires which included items on educational needs and the degree of educational importance. The data was analyzed using the SPSS/WIN program. Results: The educational needs of families before and after transplantation were high, with items on disease and treatment, and direct care ranked as most important, respectively. The degree of educational importance as perceived by nurses was different from that of families. Conclusion: The findings indicate that the educational needs of families before hematopoietic stem cell transplantation were different from those after the procedure. Also, the perception of educational importance was different for families compared to nurses. Therefore nursing education programs based on the educational needs of families should be provided.

Keywords

References

  1. Ahn, H. S. (2004). Pediatrics. Seoul: Daehan Gyogwaseo.
  2. Ban, J. Y., Park, H. R., & Sohng, K. Y. (2005). Hope and related variables in patients undergoing hemopoietic stem cell transplantation for leukemia. Journal of Korean Oncology Nursing, 5(2), 116-125.
  3. Bok, J. N., Kim, K. S., Choi, S. E., & Song, B. E. (2003). Telephone counseling of outpatients who have undergone hemopoietic stem cell transplantation. Korean Journal of Stem Cell Transplantation Nurses Association, 55-61.
  4. Bok, J. N., Sohng, K. Y., & Park, H. J. (2005). Quality of life and family burden in hemopoietic stem cell transplantation recipients. Journal of Korean Oncology Nursing, 5(2), 136-145.
  5. Eriksson, E., & Lauri, S. (2000). Informational and emotional support for cancer patient's relatives. European Journal of Cancer Care, 9, 8-15. https://doi.org/10.1046/j.1365-2354.2000.00183.x
  6. Kang, H. R., Hong, Y. J., Hwang, K. A., Park, M. R., Chun, S. S., & Lim, N. Y. (2004). Stress and emotional status of patients undergone hematopoietic stem cell transplantation and their families. Korean Journal of Rehabilitation Nursing, 7(2), 115-126.
  7. Kim, H. K., Cho, B., Chung, N. G., Jeong, D. C., Jang, P. S., Kim, S. Y., et al. (2002). Two hundred cases of allogeneic hematopoietic stem cell transplantation In children: Sing center study. Korean Journal of Hematopoietic Stem Cell Transplanstation, 7, 63-71.
  8. Kim, K. J., & Lee, H. (2000). Hematopoietic stem cell transplantation in children. Hanyang Journal of Medicine, 20(2), 23-35.
  9. Koo, H. Y. (2002). The level of importance and performance of patient education perceived by patients and nurses. The Journal of Korean Academic Society of Nursing Education, 6(2), 29-37.
  10. Lee, S. Y., & Park, H. R. (2006). Depression and depression relating variables in hemopoietic stem cell transplantation recipients with leukemia. Journal of Korean Academy of Psychiatric and Mental Health Nursing, 15(1), 89-98.
  11. Lee, Y. S. (2002). The development of needs assessment tool for family of BMT(bone marrow transplantation) patients. Unpublished mater's thesis, Hanyang University, Seoul.
  12. Manne, S., DuHamel, K., Ostroff, J., Parsons, S., Martini, D. R., Williams, S. E., et al. (2004). Anxiety, depressive, and posttraumatic stress disorders among mothers of pediatric survivors of hematopoietic stem cell transplantation. Pediatrics, 113(6), 1700-1708. https://doi.org/10.1542/peds.113.6.1700
  13. Min, W. S. (2001). Bone marrow transplantation. Korean Journal of Critical Care Medicine, 16, 17-20.
  14. Min, W. S. (2004). Allogeneic peripheral blood stem celltransplantation. Korean Journal of Medicine, 66(4), 373-382.
  15. Moon, J. S. (1997). Nursing research. Seoul: Shinkwang.
  16. Mulhern, R. K., Fairclough, D., Douglas, S. M., & Smith, B. (1994). Physical distress and depressive symptomatology among children with cancer. Children's Health Care, 23(3), 167-179. https://doi.org/10.1207/s15326888chc2303_2
  17. Pott, N. L., & Mandleco, B. L. (2002). Pediatric nursing: Caring for children and their families. New York: Delmar.
  18. Shin, H. J. (2003). Development of teaching materials for families of children with hemopoietic stem cell transplantations. Unpublished mater's thesis, Yonsei University, Seoul.
  19. Shin, H. J. (2006). Development of standards of nursing practice and nursing activity for hematopoietic stem cell transplantation patients. Unpublished mater's thesis, Yonsei University, Seoul.
  20. Sim, M. K., & Son, S. Y. (2003). A study on the comparison of psychosocial adjustment of children with cancer between on and off treatment. Journal of Korean Academy of Child Health Nursing, 9(1), 85-95.
  21. Snowdon, A. W., & Kane, D. J. (1995). Parental needs following the discharge of a hospitalized child. Pediatric Nursing, 21(5), 425-428.
  22. Stinson, J., & McKeever, P. (1995). Mothers' information needs related to caring for infants at home following cardiac surgery. Journal of Pediatric Nursing, 10(1), 48-57. https://doi.org/10.1016/S0882-5963(05)80098-3
  23. Waber, D. P., Silberman, L. B., & Mullenix, P. J. (2000). Cognitive sequelae In children treated for acute lymphoblastic leukemia with dexamethasone or prednisone. Journal of Pediatric Hematology/Oncology, 22(3), 206-213. https://doi.org/10.1097/00043426-200005000-00004
  24. Whaley, L. F., & Wong, D. (1997). The essential of pediatric nursing(5th ed.). St. Louis: Mosby.
  25. Wong, D. L. (1999). Whaley & wong's nursing care of infants and children(6th ed.). St. Louis: Mosby.