Journal of Korean Academy of Nursing (대한간호학회지)

Korean Society of Nursing Science (한국간호과학회)
권호 표지

Family Resiliency Facto for the Adaptation of Family who have a Congenital Heart Disease

선천성 심장 질환 아동 가족의 복원 요인이 적응에 미치는 영향

  • Tak Young-Ran (Department of Nursing, Hanyang University) ;
  • Yun E-Hwa (Department of Nursing, Hanyang University) ;
  • An Ji-Yeon (Department of Nursing, Hanyang University) ;
  • Kim Sang-Hwa (Department of Pediatric Cardiac Surgery, Seoul Asan medical center)
  • 탁영란 (한양대학교 의과대학 간호학과) ;
  • 윤이화 (한양대학교 의과대학 간호학과) ;
  • 안지연 (한양대학교 의과대학 간호학과) ;
  • 김상화 (서울아산병원)
  • Published : 2004.12.01
Download PDF
⟨ Previous Next ⟩

Abstract

Purpose: The purpose of this study was to explore the relationships of family strain, perceived social support, family hardiness, and family adaptation and identify the family resiliency factors for the adaptation of families who have a child with congenital heart disease. Method: The sample consisted of 90 families who had a child diagnosed with congenital heart disease and completed surgical treatment. Data was collected from parents using a questionnaire. Results: Results from path analyses revealed that family strain had a direct effect on both perceived social support and family hardiness, and an indirect effect on family adaptation. Also, the findings revealed that perceived social support had a direct effect on both family hardiness and family adaptation, and family hardiness had a direct effect on family adaptation. Thus, these results indicated that perceived social support and family hardiness had a mediating effect on family strain. Conclusion: Findings provide the evidence for the theoretical and empirical significance of perceived social support and family hardiness as family resiliency factors for family adaptation. Clinical implications of these findings might be discussed in terms of family-centered nursing interventions for the families who have a child with congenital heart disease based on an understanding of family resiliency for adaptation.

Keywords

References

  1. Amer, K. S. (1999). Children's adaptation to insulin dependent diabetes mellitus: a critical review of the literature, Pediatr Nurs, 25(6), 627-641
  2. Bennett, D. (1994). Depression among children with chronic medical problems: a meta analysis, J Pediatr Psychol, 19(2), 149-169 https://doi.org/10.1093/jpepsy/19.2.149
  3. Brandt, & Weinert (2000). Measuring social support(www.montana.edu/cweinert)
  4. Campbell, C. L., & Demi, A. S. (2000). Adult children of fathers missing in action: an examination of emotional distress, grief, and family hardiness, Fam Relat, 49(3), 267-276 https://doi.org/10.1111/j.1741-3729.2000.00267.x
  5. Cary, L. K., Nicholson, B. C., & Fox, R. A. (2002). Maternal factors related to parenting young children with congenital heart disease. J Pediatr Nurs, 17(3), 174-183
  6. Cohen, M. S. (1999). Families coping with childhood chronic illness: a research review, Fam Syst & Health, 17, 149-164
  7. Ell, K. (1996). Social networks, social support and coping with serious illness: the family commection, Soc Sc. Med, 42(2), 173-183 https://doi.org/10.1016/0277-9536(95)00100-X
  8. Ergh, T. C., Rapport, L. J., Coleman, R. D., & Hanks, R. A, (2002). Predictors of caregiver and family functioning following traumatic brain injury: social support moderates caregiver distress, J Head Trauma Rehabil, 17(2), 155-174 https://doi.org/10.1097/00001199-200204000-00006
  9. Goldberg, S., Janus, M., Wshington, J., Simmons, R., MacLusky, I., & Fowler, R. (1997). Prediction of preschool behavioral problems in healthy and pediatric samples, J Dev Behav Pediatr, 18(5), 304-313 https://doi.org/10.1097/00004703-199710000-00004
  10. Hibbard, M. R., Cantor, J., Charatz, H., Rosenthal, R., Ashman, T., & Gundersen, N. (2002). Peer support in the community: initial findings of a mentoring program for individuals with traumatic brain injury and their families, J Head Trauma Rehabil, 17(2), 112-131 https://doi.org/10.1097/00001199-200204000-00004
  11. Lavigue, J. V., & Fier-Routman, J. (1993). Psychological adjustment to pediatric physical disorders: meta-analytic review, J Pediatr Psychol, 17, 133-157
  12. Lee, H. J., Kim, M. H., Jung, J. W., Kim. S. H., & Choi, B. Y. (2001). Prevalence of congenital heart disease from the elementary student heart disease screening program, Korean J Prev Med, 34(4), 427-436
  13. Leske, J. S., & Jiricka, M. K. (1998). Impact of family demands and family strengths adn capabilities on family well-being and adaptation after critical injury, Am J Crit Care, 7(5), 383-392
  14. Lin, S. L. (2000). Coping and adaptation in families of children with cerebral palsy, Except Child, 66(2), 201-218
  15. McCubbin, H. I., Thompson, A. I., & McCubbin, M. A. (2001). Family measures: Stress, coping and resiliency. In H.I. McCubbin, A.I. Thompson, & M.A. McCubbin (Eds.). Hawaii: Kamehameha Schools
  16. Morrow, G., Hoagland, A. C., & Morse, I. P. (1982). Source of support perceived by parents of children with cancer: implications for counseling, Patient Counseling Health Education, 4, 36-4
  17. Morelius, E., Lundh, D., Nelson, M. (2002). Parental stress in relation to the severity of congenital heart disease in the offspring, Pediatr Nurs, 28(1), 28-34
  18. National Statistical Office. (2000). Annual report on the cause of death statistics (www.healthguide.kihasa.re.kr/infobank/statistics2)
  19. Tak, Y. R. (2001). Family stress, perceived social support, and coping of mothers who have a child newly diagnosed with congenital heart disease, J Korean Acad Child health Nurs, 7(4), 451-460
  20. Tak, Y. R. & McCubbin, M. A. (2002), Family stress, perceived social support and coping following the diagnosis of a child's congenital heart disease, J Adv Nurs, 39(2), 190-198 https://doi.org/10.1046/j.1365-2648.2002.02259.x
  21. Tak, Y. R., Yun, E. H., Chon, Y. S., & An, J. Y. (2003). Perceived social support as a predictor on adaptation of family who has a child with pediatric caner, J Korean Acad Child Health Nurs, 9(1), 9-17
  22. Wallander, J. L., Varni, J. W., Babani, L., DeHaan, C. B., Banis, H. T., & Wilcox. (1989). Family resources as resistance factors for psychological maladjustment in chronically ill and handicapped children, J Pediatr Pyschol, 14, 157-173
  23. Wren, O. & O'Sullivan, J. J. (2001). Survival with congenital heart disease and need for follow up in adult life, Heart, 85(4), 438-443 https://doi.org/10.1136/heart.85.4.438