Adjustment Patterns of Illness Process of People with Hemophilia in Korea

혈우병 환자의 질병과정 적응유형

  • 김원옥 (경희대학교 간호과학대학) ;
  • 강현숙 (경희대학교 간호과학대학) ;
  • 이명선 (서울대학교 간호대학)
  • Published : 2004.02.01


Purpose: The purpose of this study was to explore adjustment pattern of illness process of people with hemophilia in Korea. Method: 23 people with hemophilia had participated for this study. The data were collected through in-depth interviews and analyzed using Strauss & Corbin's grounded theory method. Results: 'would be free from' was emerged as a core category and it reflects that all participants wanted to be free from the constraints of the disease. The adjustment process was categorized into two stage, the ‘unstable stage’ and the ‘stable stage’. In the process of 'would be free from' four different patterns were identified: hopelessness type; appreciation type; challenge type; and transcendence type. These types were identified based on the degree of pursuing normal life and managing the disease, and social support. The most frequently occurring type was hopelessness type but the participants of this type suffered the most. The transcendence type was the most ideal type, but it occurred the least. Conclusion: The results of this study indicate that people with hemophilia in Korea still suffer from the disease and they need supports. The results would be useful for health care professionals in establishing education and counseling program for the people with hemophilia.


  1. Agle, D., Gluck, H., and Pierce, G. F. (1987) The risk of AIDS : Psychological impact on the hemophilia population. General Hospital Psychiatry, 9, 11-17
  2. Corbin, J. M. (2000) 2000 workshop : Grounded theory approach. International institute for qualitative methodology, korea qualitative research center.
  3. Djulbegovic, B., Goldsmith, G., Vaughn, D., Birkimer, J., Marasa, M., Joseph, G., Huang, A., & Hadley, T. (1996) Comparison of quality of life between HIV-positive haemophilia patients and HIV-negative haemophilia patients. Haemophilia, 2, 166-172
  4. Glaser, B. (1978) Theoretical Sensitivity, Sociology Press, Mill Valley, California
  5. Glaser, B., & Strauss, A. (1967) The discovery of grounded theory, Chicago Aldine.
  6. Gordon, J., & Shontz, F. (1990) Living with the AIDS virus: A representative case. J Counsel and Develop, 68, 287-292
  7. Kim, E. J., & Lee, H. (2000) Current Status and Comprehensive Care of Korean Hemophiliacs, J Korean Acad Hematol, 35(3, 4), 222-232
  8. Kim, K. Y. (1998). Clinical practice of hemostasis and thrombosis. Seoul, Kunjah Co
  9. Kim, W.O., Go, K. J., & Kang H. S. (2000). A Study on the lived experience of patients with hemophilia. Journal of Korean Academy of Fundamental Nursing, 7(1),30-41
  10. Kim, W. O. (2001). The Adjustment Process of Patients with Hemophilia , Unpublished Doctoral Dissertation Kyung Hee University
  11. Korea Hemophilia Foundation (2001) Current Activities of Korea Hemophilia Foundation.
  12. Korn, F. (1998). A caremark family profile, Belonging, Spring,1-3
  13. Lee, O. J. (1997) The Development of the Nursing Practice Guideline in Patients with Hemophilic Arthritis, Unpublished Master’s Dissertation Kyung Hee University
  14. Miners, A. H., Sabin, C. A., Tolley, K. H., Jenkinson, C., Ebrahim, S., & Lee, C. A. (1999) Assessing health-related quality-of-life in patients with severe haemophilia A and B. Psychology. Health & Medicine, 4(1), 5-11
  15. Mishel, M. H. (1990) Reconceptualization of the uncertainty in illness theory, Image : J Nurs Scholarship, 22(4), 256-262
  16. Morse, J. M., & Johnson, J. L. (1991) The illness experience, Newbury Park, CA : Sage Publications
  17. Oh, H. S. (2001). Theory Construction in Nursing of Uncertainty, J Korean Acad Adult Nurs, 13(2), 200-208
  18. Strauss, A., & Corbin, J. (1990) Basics of qualitative reaserch: Grounded theory procedures and technique. California Sage Publications
  19. Strauss, A., & Corbin, J. (1998) Basics of qualitative reaserch: Techniques and procedures for developing grounded theory. Newbury Park, California Sage Publications
  20. Szucs, T., Offner, A., & Schramm, W. (1996) Socioeconomic impact of haemophilia care : Results of a pilot study. Haemophilia, 2, 211-217